Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

And Now I'm Coping...


LabyrinthRunner13

Recommended Posts

LabyrinthRunner13 Rookie

I don't know what it was that changed my outlook...maybe its that I have managed to go almost an entire month without a glutening. Or maybe its that my skin has been clear long enough that my fingers almost look normal. Maybe its the worry that the gluten was causing the bleeding kidneys. Or maybe its just that all the gluten is out of my brain. ;-)

I wanted to do a follow up post, just to thank you all for your advice (and for listening to me vent).

I found some foods that are naturally gluten free, (fruit, cottage cheese, eggs, rice, fish) that are delicious, nutricious and leave my bowels alone. After my last post, I started eating crazy simple meals and feeling better and better. I wont go so far as to say that I dont miss a double-double animal style, but, the fact that I cannot have one also doesnt make me feel like jumping off a bridge, so, call it a success.

I dont know if this made any difference or not, but I switched the troops (a trio of furry feline soldiers) over to a gluten free food. Not sure what the rate of contamination from cat food was, but atleast now I am not afraid of their food.

And.... I am learning to cook again! I bought a gluten free loaf pan and made a gluten free meatloaf that tasted just as good as the original! I think the next step is to find some sort of gluten free cookbook and make with the science experiments.

So thanks again, everyone, for listening. Gluten freedom for all!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Way to go, LabyrinthRunner!! There is life after gluten :)

dilettantesteph Collaborator

I dont know if this made any difference or not, but I switched the troops (a trio of furry feline soldiers) over to a gluten free food. Not sure what the rate of contamination from cat food was, but atleast now I am not afraid of their food.

That sounds like a great idea to me. The way cats climb and lick all over the place, that will be one less possible source of problems.

Good for you. You sound like you figured this stuff out a lot faster than I did.

Poppi Enthusiast

Hooray! I'm getting close to a year gluten free and while I still have my moments of self-pity I am also coping really well.

We are planning a trip to Vegas and Phoenix this summer (Vegas for fun, Phoenix for business) and I'm not panicking. Last year when I went to San Diego for business I was freaking out ahead of time, mapping out all the possible places to eat and really worrying about food. Now I will do a little recon a week or so before we leave and pack some snacks but I've learned that life doesn't have to just be about the food.

I haven't had a major glutening since early October and I think that helps a lot. I feel clear, in control, focused and healthy. And that feels amazing.

PS. If you want to start baking again my recommendation would be to pick up a well-reviewed AP gluten-free Flour blend and start with some simple cookie and muffin recipes that you already love. My favourite is Namaste Perfect Flour Blend. It makes great muffins, quick breads and cookies. And their Spice Cake mix is to die for if you follow the directions on the back to make it into gingerbread cake.

LabyrinthRunner13 Rookie

Hooray! I'm getting close to a year gluten free and while I still have my moments of self-pity I am also coping really well.

It sounds like we are on similar time frames here. I was diagnosed May 9th, 2011 so I am at the 8 month mark. Congrats on getting this stuff figured out. Its hard, but I keep finding other things to be more careful about.

mbrookes Community Regular

I've been gluten free for 4 years this week. It does get easier and easier. I still occasionally have the blues about something I can't have (most recently, a beer at my favorite bar). I have found substitutes for almost everything and at the risk of sounding too Pollyiannaish (I think Imade that word up) I eat as well as anyone I know. Plus I FEEL GOOD!!!!

sa1937 Community Regular

I've been gluten free for 4 years this week. It does get easier and easier. I still occasionally have the blues about something I can't have (most recently, a beer at my favorite bar). I have found substitutes for almost everything and at the risk of sounding too Pollyiannaish (I think Imade that word up) I eat as well as anyone I know. Plus I FEEL GOOD!!!!

I would venture a guess that we probably eat a whole lot better than most people consuming the average American diet (the sad American diet).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

Good for you, Kiddo!!! :)

Life is good when we do not feel like crap every day, yes?

I think having one's brain de-glutened and the vitamin/minerals,

EFAs, amino acids, etc. leveling off does improve one's outlook.

Continued healing to you !! ---and thanks so much for telling us how well you are doing.

It is encouraging to everyone who reads these posts! :)

A gluten free lifestyle is not a "death sentence"--on the contrary, it is a chance for good health. I know---because it saved my life.

Cheers,

IH

Sarah P Rookie

I am a little envious of you. I still am not real happy about this and today I chose to eat how I wanted to, which included a piece of cake, Oi and UGH :blink: Now I feel yuck and will have to live with it for at least a week.

I even like Gluten Free food so don't know what I was thinking. I had made it 2 months gluten free and was feeling pretty good. At least I can see all the posts here and realize that I am only 4 months in, so maybe another 4 months and I will have this figured out.

love2travel Mentor

Just over nine months gluten free and I have not yet cheated and I have been glutened once to my knowledge. It became a part of every-day life for me at about four months so be encouraged - there is hope for everyone!

Sure, I still have moments where I find it difficult (wonderful food festivals in Europe, for example) but my passion about cooking and baking really makes all the difference because at home I never, ever feel deprived. Having such a supportive, helpful husband (and other family members) is crucial. I feel so safe at home that I do not think about celiac much at all because I make everything myself.

It is great that so much delicious baking can easily be made gluten free including brownies, cupcakes, cookies, cakes, pastry because those things do not need gluten as yeast breads do. So, if you ever have a craving for that type of thing it is easily remedied by making your own. Don't forget about two inches of buttercream on top! :P

What others say about it getting easier is certainly the case. Do not be too hard on yourself for those momentary lapses in judgement - just pick up and move on. Take one hour or one meal or one day at a time. Keep in mind that those five minutes of devouring gluten just is not worth it. Having goals and rewards help, too. Focusing on other things takes your mind off celiac. I think of people far worse off than I, those who would do almost anything just for a clean glass of water. That smartens me up in a hurry! When you think about it, we do not NEED gluten to live. We need nourishment but thankfully many incredibly delicious foods are naturally gluten free anyway.

Thankfully we are able to CHOOSE what goes in our mouths and choosing to eat strictly gluten free is extremely liberating. It becomes habit and then becomes incorporated into routine.

This road certainly is not easy but it is a road that is doable. And we are all here to support one another when that road becomes tough to follow, and we share when we made advances. Every baby step matters - they all add up and eventually become giant leaps! :)

IrishHeart Veteran

I am a little envious of you. I still am not real happy about this and today I chose to eat how I wanted to, which included a piece of cake, Oi and UGH :blink: Now I feel yuck and will have to live with it for at least a week.

I even like Gluten Free food so don't know what I was thinking. I had made it 2 months gluten free and was feeling pretty good. At least I can see all the posts here and realize that I am only 4 months in, so maybe another 4 months and I will have this figured out.

Many people decide to "test the waters" for some reason. Does not matter why, it's human nature. :) You "get it" now--so just get back to you "new normal"--gluten-free all the way. ;)

It's a learning process. Hope you feel better soon.

Do you want an easy recipe for a chocolatey decadent flourless cake that will make you cry it is so good?? I can give you one.

No need for gluten. EVER. :)

Take care--drink a lot of water and take some probiotics to get past your glutening.

IH

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.