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Can My Child Have Celiac If Parents Dont

Guest flowermom6117

By Guest flowermom6117
in Celiac Disease Pre-Diagnosis, Testing & Symptoms

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Guest flowermom6117
Guest flowermom6117
Posted

My 4 yr old daughter has recieved all the testing for celiac, and will get the results friday. Neither my husband or I have been diagnosed with celiac. My husband has suffered stomach problems all his life. He has been told everything from acid reflux to ulcers. If my daughter is possitive should my husband be tested? If her test come back negitive should I still make her gluten free since she is allergic to wheat? She does not have all the symptoms of celiac no diareha not a hole lot of stomach craps.

I will list her symptoms since I think she may have something more like lupus.

Since the age of 13months she has suffered from headachs not everyday but often I have had her eyes checked the are perfect, high fever that last for days (seen doctor for most, always told she has a virus, temps will hit 105 and stay there for 3 to 5 days) mouth ulcers on her tonge and perticia rash on the roof of her mouth, gas all the time,stools are small and hard, bloating, joint swelling most of the time in her knees, can not walk for long periods of time, 30 min tops, face rash when in the sun for to long. always itchy, sick with colds the flu all the time bring home something new every week she spent 4 weeks on antibiotics for a white blood cell count of 24 to 30. I'm sure there are more I am not thinking of. She has been diagnose with food allergies.(eggs, orange, corn, oat, wheat, banana, peanuts, and tomatoes. All off the charts)

Could the allergies be causing all these symptoms or should I push for more testing?

Doctors are testing for celiac mainly because of one instance. She had a reaction to flour on her skin that made it hard for her to breath and break out in a rash.

Any experiance people have with the doctors would help. I feel they think I am full of it because she is so sweet and refuses to complain, sometimes even speak to the doctors.

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mushroom Proficient
mushroom
Posted

If your daughter does have celiac, she inherited the gene for it from either you or your husband (or both), and your husband sounds like the more likely candidate. Most people who carry the gene which predisposes to celiac do not actually develop the disease - there is usually some emtional or physical trauma trigger which sets it off

Celiac could be at the root of all your daughter's symptoms pretty much, and causing cross-reactivity to other foods because her immune system is hyperreactive. That being said, she may remain intolerant to some of those other foods, especially the grains.

Let us know how her results come in on Friday.

Lisa Mentor
Lisa
Posted

temps will hit 105 and stay there for 3 to 5 days)

This a LARGE concern. Four year olds can't handle that duration of temperature. Adults can't. I hope you found medical help asap.

One of my girls had a 105 and it was medically addressed swiftly (within an hour or two). Yet, I believe it re-arranged the person that she is. A temp of 105 for three to five days would be a worst nightmare.

I would hope that you are exaggerating her illness to some DEGREE.

psawyer Proficient
psawyer
Posted

The mushroom speaks the truth. The susceptibility is genetic, but less than ten per cent of those with the genes actually develop the disease. A trigger is required to activate it. Triggers can include anything that puts a stress on your system. It can be an infectious disease, childbirth, or an emotional stress like loss of a job or breakdown of a relationship.

Guest flowermom6117
Guest flowermom6117
Posted

I am in no way exaggerating her symptoms. We have taken her to the ER on 4 different occations for fevers above 105 and always been told its a virus. The hospital seems to think if I can control it with double doses of Ibprofin and tylonal then they must be right. Every time we take her to that ER they say virus. They proved there stupidity to me last month when the night befor her allergy testing we took her to the ER with a swollen tunge and mouth ulcers. Again told it was a virus. We had given her an orange because she was sick and we thought the vitimin C would do her good. Turns out oranges is one of her most potant allergies.

The closest major medical center is a 1 1/2 hour drive, but next time we will be going that far unless she wont make it that long.

frieze Community Regular
frieze
Posted

I am in no way exaggerating her symptoms. We have taken her to the ER on 4 different occations for fevers above 105 and always been told its a virus. The hospital seems to think if I can control it with double doses of Ibprofin and tylonal then they must be right. Every time we take her to that ER they say virus. They proved there stupidity to me last month when the night befor her allergy testing we took her to the ER with a swollen tunge and mouth ulcers. Again told it was a virus. We had given her an orange because she was sick and we thought the vitimin C would do her good. Turns out oranges is one of her most potant allergies.

The closest major medical center is a 1 1/2 hour drive, but next time we will be going that far unless she wont make it that long.

The ED isn't the place for ongoing care. She needs to be seen and worked up by her pediatrician
Lisa Mentor
Lisa
Posted

The ED isn't the place for ongoing care. She needs to be seen and worked up by her pediatrician

I agree 100%! These advanced fevers are not to be taken lightly.

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Roda Rising Star
Roda
Posted

The ED isn't the place for ongoing care. She needs to be seen and worked up by her pediatrician

Try getting a referral to an allergist/immunologist. My youngest son was referred(at my urging) at 14 months old(he is now 7). He really helped us a lot.

lovegrov Collaborator
lovegrov
Posted

I had a fever of up to 105 for weeks before an after my diagnosis.

richard

Guest flowermom6117
Guest flowermom6117
Posted

She has seen an allergist the 13th of december. They are saying now that the fevers are from celiac and began testing her for that. I want her to see a rummy but they want to do this first. Unfortianally I'm now on medicaid because I left my job last may to be home with her when she was ill. Its hard to get referrals to good doctors. I miss my old insurance.

Celtic Queen Explorer
Celtic Queen
Posted
She does not have all the symptoms of celiac no diareha not a hole lot of stomach craps.

I will list her symptoms since I think she may have something more like lupus.

A lot of Celiac symptoms aren't related to the GI tract. Many of them are neurological or related to the immune system. And Celiacs are at a higher risk for getting autoimmune diseases like Lupus. That's why she definitely needs to be tested.

Personally, I tested borderline for Lupus before I found out about the Celiac Disease. Now that I'm gluten free, my levels have dropped back into the normal range. But I have no doubt that if I'd kept on a diet with gluten, I would have developed full-blown Lupus in the next few years.

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