Hypereosinophilic Syndrom,heart Problem

[grantschoep]

Hey, I was just thinking if there could be a connection with celiac deases

Quick background.

Summer of 2005 sucked big time for me. All spring I had been feeling sicker and sicker. Also started getting really weak and so on. Found out my heart valve's were about shot. Had to have major heart surgery and artificial valves put in. This happened a few days after my 30th birthday. Rather young...

In the meantime, I was also daignosed with celiac desease, something I thought I probably had(lots of family history) but I was being stubborn and not getting tested.

In any event, my heart, it got all screwed up do to another deasease I was diagnosed with. "Hypereosinophilic Syndrome" It was the thing that damaged my heart. Its fairly rare.

I was just wondering, if there could be any connection between celiac desease, and eosinophilia. Eosinophilia is rather rare, and its causes are unknown. I was just wondering, in the celiac community, if anyone else had it.

[Claire]

Hi - I am not really familar with your rare condition but I do a lot of research and have seen it related to celiac in the literature. Are you at all used to doing internet research. If you are, go to it - using all the search parameters you can think of. If you are not just ask me and perhaps I can help you find a few items to read. Claire

[emeraldskies]

I was just diagnosed with a condition that's similar but not the same, polycythemia. I have no idea what the cause is. The two most uncomfortable symptoms are poor circulation (my feet will never warm up) and numerous daily struggles to breathe. Even the tiny smoke released from the hair dryer is enough to make me fight for breath for over an hour. I guess I'm going to have to find a hematologist. Have you tried any treatments?

[Bette]

Hmmm... interesting topic grantschoep, I was just diagnosed earlier this year with mitral valve prolapse and a bicuspid aortic valve. Both are leaking but very mininal. I was put on heart medication (beta blockers) but just had too many side affects from the drugs.

My cardiologist agreed it was okay not to have to take them at this point. I just have to get annual echocardiograms.

My mother has had 3 open heart valve surgeries, the same valves (mitral and bicuspid) needed replaced. Her last surgery which has been about 20 years ago she had mechanical valves put in. They are now leaking very bad, but unfortunately she refuses to have her chest cracked one more time.

Just exactly is Eosinophilia? and what are the symptoms? My mother also had very poor circulation in her legs (not a diabetic) and has had steents put in the veins of both of her legs.

She was told her valves were destroyed by rheumatic fever when she was a child, but she does not remeber, nor did her mother of her being ill with that when she was a kid.

I know I definiately did not have rheumatic fever, and I have problems with the exact 2 heart valve. She has not been diagnosed with Celiac, nor could I convince her to get tested (very stubborn), but I would swear that she probably has it.

[Bette]

My mother has had 3 open heart valve surgeries, the same valves (mitral and bicuspid) needed replaced.

Jeesh, I need to give it up tonight. I meant to say my mother has had 3 different surgeries for valve replacements on her mitral and aortic valve. Her first 2 replacements were pigs valves, the last surgery she had the mechanical valves put it. They lasted the longest!!!