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Fevers Are Back


Guest flowermom6117

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Guest flowermom6117

For now we are calling my 4 yr old NCGI. She has been gluten free for 10 days now, with a lot of improvements. Tonight her fever came back. (101.0) She has not been out of the house in 5 days so I know she has not picked up anything new. We are not sure if the gluten is causing the fever or if it is something else. I hate to call the GP again, I feel like I call them all the time. Do I give it more time? Could gluten cause the fever? (maybe CC happened) I just don't know anymore. If she is not celiac why all the celiac symptoms?


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beebs Enthusiast

Not to worry you, but lupus can cause unexplained fevers and its autoimmune so if she is celiac she has more of a chance of that kind of thing. I know some people on here do get fevers from gluten. Might be worth getting some bloods done just to rule it out though.

kareng Grand Master

You mentioned on another post that she is extremely allergic to wheat. If that's the case, have you checked her lotions, shampoos, etc? Is there anything she is allergic to that might be causing this?

Guest flowermom6117

Fever lasted 6 hours and then went away. How confusing!! The only thing soap wise that I have not changed is the laundry soap. I have been washing her cloths in plain water.Guess I will never know what caused it this time, just like most other times.

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      Thanks for the reply. 
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      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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