Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Malabsorption & Vitamin Deficiencies


ElizFost

Recommended Posts

ElizFost Newbie

How do you correct the vitamin deficiencies caused by malabsorption. I take a good multivitamin daily and yet I am anemic. How does a celiac get the nutrients they need. I'm thinking liquid vitamins, or whole food vitamin or juicing? Or is the situation that your body won't absorb them whatever you do?

I'm seeing that I have gluten, lactose and fructose intolerance issues. I assumed I would recover if I got off gluten but almost 2 years later have discovered the malabsorption issue as well as lactose and fructose intolerance.

I have a 2 year old Down Syndrome daughter who is gluten intolerant and so I'm trying to figure out how to help her as well. I have a support group for her issues and they are all into the natural health medicine but I want to ask this question of you because you are more familiar with the celiac condition. Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



+jasonparker Newbie

How do you correct the vitamin deficiencies caused by malabsorption. I take a good multivitamin daily and yet I am anemic. How does a celiac get the nutrients they need. I'm thinking liquid vitamins, or whole food vitamin or juicing? Or is the situation that your body won't absorb them whatever you do?

I'm seeing that I have gluten, lactose and fructose intolerance issues. I assumed I would recover if I got off gluten but almost 2 years later have discovered the malabsorption issue as well as lactose and fructose intolerance.

I have a 2 year old Down Syndrome daughter who is gluten intolerant and so I'm trying to figure out how to help her as well. I have a support group for her issues and they are all into the natural health medicine but I want to ask this question of you because you are more familiar with the celiac condition. Thanks.

I have a injection of vitamin B every 4-6 weeks. Helps unbelievably well.

Skylark Collaborator

You have to heal your gut. A lot of us find sublingual B12 useful and sometimes iron injections are necessary.

Once you get off the fructose and the inflammation improves, you should absorb better. I'd recommend you start taking probiotics and eating probiotic food like the new Yoplait lactose-free yogurt and unpasteurized sauerkraut or other lacto-fermented veggies. Look for Bubbie's brand if you don't care to ferment your own kraut.

I'm on a diet called GAPS that is supposed to help heal but I don't see how you could do it with fructose malabsorption. Open Original Shared Link is the website if you're interested.

mushroom Proficient

I too take B12 injections, and I have some liquid Vitamin A. Many people use sublingual B12 supplementation as it bipasses the gut. When you have an intestinal system that is not absorbing it is hard to get the proper nutrients into your system. The best thing you can do is try to heal your gut with probiotics and to take digestive enzymes to aid in the breakdown of foods, in my experience, since celiac disease has a negative impact on enzyme production. The probiotics are to combat the growth of the bad bacteria in the gut which often overpower the good, and are especially important to take if you have had to take antibiotics which kill off all the good guys as well. :)

sfamor Rookie

My primary care doctor prescribed B-12 shots weekly and then monthly for a b-12 deficiency when I was first diagnosed with both celiacs and low B-12. I also had low iron and was able to get my number back up to normal by taking a vitamin tablet daily for a couple months. Until your gut is "healed" though taking vitamins in a pill form won't be useful because you won't be able to absorb them. The sublingual tablets should work though because you absorb them through the lining of the skin under your tongue. I work with a Naturopathic doctor now and she has suggested a quality liquid vitamin as it is easier to digest and absorb, but again that's only for after you've healed your gut (some say it can take 6 months to a year after going gluten free).

AVR1962 Collaborator

The multi probably will not be enough, especially if you are trying to get the benefits of the iron from it. Keep taking it but you will probably have to add an extra iron supplement. I have found Gentle iron taken after breakfast with a glass of juice works well. Some people can become a bit nauseated from iron supplements but if you take it with food on your stomach it will help absorb it. Keep in mind you ned vit C to help absorb the iron.

Part of the problem with B12 besides leaking gut, is that it needs methylcobalamin to help the body absorb it. B12 is a water soluable vit and therefore does not stay in the system. It is incredibly difficult to get enough B12, especially for those with damaged villa. Best form is thru diet and if you are not doing injections, try a B complex with methyl.....this is what made the difference for me. The regular B12 that you can buy at the grocery store will go right thru your system. Take it after a meal to help with absorbtion. Open Original Shared Link

You may find at first there are various foods the body cannot take in as so much repair has to be done. So dairy, fructose along with some food additives just might not set well. I even had a hard time with meat at first. Raw diet is the answer. I also found chicken broth in everything helped me alot, maybe just the issues I was having and may not apply to everyone. But I would boil up a chicken, save the broth and then use that broth for my rice, veggies, home made soups.

At 2 your daughter can take a child's multi. A wholoe raw food diet could also be very helpful for her as well.

plumbago Experienced

The vitamins I take are a monthly injection of B12 and a weekly mega dose (50,000) of D. However, it makes sense to get your blood tested for vitamins every once in a while just to make sure that vitamin-taking is still necessary (I am not that into it - prefer eating them). I look forward to the day when I no longer have to take these. It's probably not very likely, but one might be low on B12 due to something other than celiac disease, for example pernicious anemia, in which case B12 injections are necessary for life. Again, yearly blood tests would be helpful, and insist on what you want tested.

Plumbago


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



samie Contributor

I had to take iron iv weekly till my body started healing. The pills wouldn't absorb.

ElizFost Newbie

Thanks friends. This helps me to know where to start.

  • 1 year later...
MIgrainePosterChild Newbie

I have been suffering for a long time with migraines and GI issues. Doctors kept trying to only treat the migraines yet I began to notice a connection between my migraine aura and GI issues. I became so frustrated that I decided I needed to do my own research. I know the hazards in self-diagnosing, but the definition of malabsorption could have had my picture next to it! It has probably been going on for years and only in the past few months or so become a big enough problem that I had to quit my job, have felt sick and fatigued every day, been dealing with constant constipation and flatulence, afraid to eat the wrong things to make it worse, and now I am attempting to go completely Gluten free hoping that will fix everything, but I am more confused them ever. I already know I am mildly anemic and have been taking a multi-vitamin in pill form, but I had my doctor test me for B12 deficiency today. I can't afford to see any specialists and my primary doctor does not seem to understand what I am experiencing. My hubby and I are now barely scraping by on his low income, so doctors bills and gluten free lifestyle changes really add up! I could really use some advice.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

    3. - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    4. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    5. - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,470
    • Most Online (within 30 mins)
      7,748

    Elkay008
    Newest Member
    Elkay008
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.