Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Malabsorption & Vitamin Deficiencies


ElizFost

Recommended Posts

ElizFost Newbie

How do you correct the vitamin deficiencies caused by malabsorption. I take a good multivitamin daily and yet I am anemic. How does a celiac get the nutrients they need. I'm thinking liquid vitamins, or whole food vitamin or juicing? Or is the situation that your body won't absorb them whatever you do?

I'm seeing that I have gluten, lactose and fructose intolerance issues. I assumed I would recover if I got off gluten but almost 2 years later have discovered the malabsorption issue as well as lactose and fructose intolerance.

I have a 2 year old Down Syndrome daughter who is gluten intolerant and so I'm trying to figure out how to help her as well. I have a support group for her issues and they are all into the natural health medicine but I want to ask this question of you because you are more familiar with the celiac condition. Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



+jasonparker Newbie

How do you correct the vitamin deficiencies caused by malabsorption. I take a good multivitamin daily and yet I am anemic. How does a celiac get the nutrients they need. I'm thinking liquid vitamins, or whole food vitamin or juicing? Or is the situation that your body won't absorb them whatever you do?

I'm seeing that I have gluten, lactose and fructose intolerance issues. I assumed I would recover if I got off gluten but almost 2 years later have discovered the malabsorption issue as well as lactose and fructose intolerance.

I have a 2 year old Down Syndrome daughter who is gluten intolerant and so I'm trying to figure out how to help her as well. I have a support group for her issues and they are all into the natural health medicine but I want to ask this question of you because you are more familiar with the celiac condition. Thanks.

I have a injection of vitamin B every 4-6 weeks. Helps unbelievably well.

Skylark Collaborator

You have to heal your gut. A lot of us find sublingual B12 useful and sometimes iron injections are necessary.

Once you get off the fructose and the inflammation improves, you should absorb better. I'd recommend you start taking probiotics and eating probiotic food like the new Yoplait lactose-free yogurt and unpasteurized sauerkraut or other lacto-fermented veggies. Look for Bubbie's brand if you don't care to ferment your own kraut.

I'm on a diet called GAPS that is supposed to help heal but I don't see how you could do it with fructose malabsorption. Open Original Shared Link is the website if you're interested.

mushroom Proficient

I too take B12 injections, and I have some liquid Vitamin A. Many people use sublingual B12 supplementation as it bipasses the gut. When you have an intestinal system that is not absorbing it is hard to get the proper nutrients into your system. The best thing you can do is try to heal your gut with probiotics and to take digestive enzymes to aid in the breakdown of foods, in my experience, since celiac disease has a negative impact on enzyme production. The probiotics are to combat the growth of the bad bacteria in the gut which often overpower the good, and are especially important to take if you have had to take antibiotics which kill off all the good guys as well. :)

sfamor Rookie

My primary care doctor prescribed B-12 shots weekly and then monthly for a b-12 deficiency when I was first diagnosed with both celiacs and low B-12. I also had low iron and was able to get my number back up to normal by taking a vitamin tablet daily for a couple months. Until your gut is "healed" though taking vitamins in a pill form won't be useful because you won't be able to absorb them. The sublingual tablets should work though because you absorb them through the lining of the skin under your tongue. I work with a Naturopathic doctor now and she has suggested a quality liquid vitamin as it is easier to digest and absorb, but again that's only for after you've healed your gut (some say it can take 6 months to a year after going gluten free).

AVR1962 Collaborator

The multi probably will not be enough, especially if you are trying to get the benefits of the iron from it. Keep taking it but you will probably have to add an extra iron supplement. I have found Gentle iron taken after breakfast with a glass of juice works well. Some people can become a bit nauseated from iron supplements but if you take it with food on your stomach it will help absorb it. Keep in mind you ned vit C to help absorb the iron.

Part of the problem with B12 besides leaking gut, is that it needs methylcobalamin to help the body absorb it. B12 is a water soluable vit and therefore does not stay in the system. It is incredibly difficult to get enough B12, especially for those with damaged villa. Best form is thru diet and if you are not doing injections, try a B complex with methyl.....this is what made the difference for me. The regular B12 that you can buy at the grocery store will go right thru your system. Take it after a meal to help with absorbtion. Open Original Shared Link

You may find at first there are various foods the body cannot take in as so much repair has to be done. So dairy, fructose along with some food additives just might not set well. I even had a hard time with meat at first. Raw diet is the answer. I also found chicken broth in everything helped me alot, maybe just the issues I was having and may not apply to everyone. But I would boil up a chicken, save the broth and then use that broth for my rice, veggies, home made soups.

At 2 your daughter can take a child's multi. A wholoe raw food diet could also be very helpful for her as well.

plumbago Experienced

The vitamins I take are a monthly injection of B12 and a weekly mega dose (50,000) of D. However, it makes sense to get your blood tested for vitamins every once in a while just to make sure that vitamin-taking is still necessary (I am not that into it - prefer eating them). I look forward to the day when I no longer have to take these. It's probably not very likely, but one might be low on B12 due to something other than celiac disease, for example pernicious anemia, in which case B12 injections are necessary for life. Again, yearly blood tests would be helpful, and insist on what you want tested.

Plumbago


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



samie Contributor

I had to take iron iv weekly till my body started healing. The pills wouldn't absorb.

ElizFost Newbie

Thanks friends. This helps me to know where to start.

  • 1 year later...
MIgrainePosterChild Newbie

I have been suffering for a long time with migraines and GI issues. Doctors kept trying to only treat the migraines yet I began to notice a connection between my migraine aura and GI issues. I became so frustrated that I decided I needed to do my own research. I know the hazards in self-diagnosing, but the definition of malabsorption could have had my picture next to it! It has probably been going on for years and only in the past few months or so become a big enough problem that I had to quit my job, have felt sick and fatigued every day, been dealing with constant constipation and flatulence, afraid to eat the wrong things to make it worse, and now I am attempting to go completely Gluten free hoping that will fix everything, but I am more confused them ever. I already know I am mildly anemic and have been taking a multi-vitamin in pill form, but I had my doctor test me for B12 deficiency today. I can't afford to see any specialists and my primary doctor does not seem to understand what I am experiencing. My hubby and I are now barely scraping by on his low income, so doctors bills and gluten free lifestyle changes really add up! I could really use some advice.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,899
    • Most Online (within 30 mins)
      7,748

    dcarter1682
    Newest Member
    dcarter1682
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.