Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New (Recent) Symptoms


peeptoad

Recommended Posts

peeptoad Apprentice

Hello all:

I am undiagnosed celiac (but "diagnosed" as sensitive/intolerant to gluten) and have been gluten free for 6 months. All (or roughly 90%) of my GI symptoms (abdo distension, incomplete evacuation, etc) disappeared when I went gluten-free and I have been symptoms-free for the last 6 month... up until about a 7-10 days ago.

For the last week or so I have been experiencing moderate-severe postprandial bloating. I have no other symptoms (no pain, no diarrhea, etc). My abdomen becomes visibly distended about 15-30 minutes after I eat anything, to the point where I look pregnant. I assume this is gas buildup except that I have no flatulence at all (zero). I am also not constipated.

Anybody have ideas about what could be causing this? I am very careful with gluten, so I don't think I'm accidentally ingesting anything. I'm thinking about trying dairy-free for 2 weeks and see if that helps, but I tried that one other time before (two years ago) and no change. I've also tried digestive enzymes and they barely helped.

I have also had SIBO in the past, so it could be a recurrence of that I suppose?

Thanks for any information...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

Sounds like a good time for an elimination diet. Other intolerances often do manifest after going gluten-free.

T.H. Community Regular

If you've already gone through one round of SIBO, I'd go get that checked first, honestly. A 2008 study on SIBO recurrence after antibiotic treatment found that by 3 months post-treatment, around 12% of patients tested positive for SIBO again. By 9 months post-treatment, it was over 40% of patients.

( Open Original Shared Link )

Odds that it's come back seem good enough to at least discuss it with your doctor.

peeptoad Apprentice

If you've already gone through one round of SIBO, I'd go get that checked first, honestly. A 2008 study on SIBO recurrence after antibiotic treatment found that by 3 months post-treatment, around 12% of patients tested positive for SIBO again. By 9 months post-treatment, it was over 40% of patients.

( Open Original Shared Link )

Odds that it's come back seem good enough to at least discuss it with your doctor.

Thanks. I've been through two recurrences of SIBO already... I'm going to give it a couple of weeks and attempt to eliminate dairy again, in the off chance that I have a new food sensitivity developing. If no improvement then I'll email my doctor.

Sparky10 Newbie

Thanks. I've been through two recurrences of SIBO already... I'm going to give it a couple of weeks and attempt to eliminate dairy again, in the off chance that I have a new food sensitivity developing. If no improvement then I'll email my doctor.

What is SIBO.?

peeptoad Apprentice

What is SIBO.?

Small Intestine Bacterial Overgrowth

peeptoad Apprentice

Well, I couldn't stand it any longer and emailed my doctor yesterday... going back on rifaximin for a week or two and see if that helps.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Golden Girl Rookie

Well, I couldn't stand it any longer and emailed my doctor yesterday... going back on rifaximin for a week or two and see if that helps.

What are your symptoms? I have been gluten free almost 3 years and I am still having issues with bloating and depression, can't concentrate, and irritable. I am also dairy free. I am seeing my Dr. again he checked my thyroid/B-12/Iron he has told me my Iron level is low. I take probiotics, caprylic acid, levothyroxine, lexapro, busporin, D3, low dose aspirin, prilosec and liquid iron. The gluten free diet really helped with other symptoms but other symptoms appeared and have been doctoring for 2 years with no results. I finially asked by doctor to put me on a leave of absence from work due to the depression and the lack of concentration. I desperately need help! I can't give up my coffee I have no energy it helps in the morning. If you can give me any info I would greatly appreciate it.

peeptoad Apprentice

What are your symptoms? I have been gluten free almost 3 years and I am still having issues with bloating and depression, can't concentrate, and irritable. I am also dairy free. I am seeing my Dr. again he checked my thyroid/B-12/Iron he has told me my Iron level is low. I take probiotics, caprylic acid, levothyroxine, lexapro, busporin, D3, low dose aspirin, prilosec and liquid iron. The gluten free diet really helped with other symptoms but other symptoms appeared and have been doctoring for 2 years with no results. I finially asked by doctor to put me on a leave of absence from work due to the depression and the lack of concentration. I desperately need help! I can't give up my coffee I have no energy it helps in the morning. If you can give me any info I would greatly appreciate it.

I was symptom-free for 6 months after going gluten-free and my main symptom now (suddenly) is abdominal distension. I had this before with bacterial overgrowth (in the exact same way), so I suspect that what the issue is again. As an example I drank a small amount of orange juice (with my iron supplement, I"m also taking iron) last night when I got home and I swelled up like I was pregnant. That's exactly what the SIBO did to me previously (hence why I'm going back on abs).

You are on a lot of medications... you might want to try weaning off one or two things (with your doctor's supervision) to see if that helps. Or at least speak with your doctor about it.I get side effects from practically everything, so what you're experiencing could be compounded by med side effects.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,162
    • Most Online (within 30 mins)
      7,748

    Jean Kemling
    Newest Member
    Jean Kemling
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...