Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Circulation


swittenauer

Recommended Posts

swittenauer Enthusiast

This weekend, my husband & I went to the Nascar race in Bristol. This was our first adventure after being diagnosed with Celiac. He seems to do fine with finding foods that he can eat but for some reason he had trouble with walking & swelling in his lower legs & hands. His calves were so swollen that it looked like they were going to bust. He ached all over & the walking was so hard on him. We were wondering if this could be related to Celiac?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

Is it fluid retention causing the swelling? Last week I was eating alot of different foods...previously I'd only been eating meats and veggies. I have fluid retention anyway but adding all the new foods really made my legs swell and it was hurting to stand...thats never happened before. Not sure if it was just too much too soon or maybe too much sodium. I was eating some microwave dinners...they are high in sodium. I'm eating more simple again this week and the swelling in my legs is gone.....for now.

ravenwoodglass Mentor

It could be but usually the swelling doesn't go into the calfs, in most anyway. I would call the doctor tommorrow morning. Were his calves red or hot to the touch, has his discomfort been relieved at all by now? If his legs are hot or red and still real painful it might be prudent to call his doctor tonight for advice. If things have subsided a bit one of the things that helped me the most was I used to lay upside down on the bed with my legs straight up against the wall for a half hour or so each night about 2 hours before bed. If it is not painful for him you could gently massage down from the feet to help the fluid go back down. Might not be helpful but shouldn't hurt. I hope he feels better soon.

swittenauer Enthusiast

It could be the sodium. I'm not sure. He ate a massive amount of Lays Stacks this weekend. They seem to be a bit better but when he sits for long periods lately, his hands & feet swell. They weren't hot but just felt like they were going to burst they were so tight. I just thought that circulation problems could be related to Celiac.

Guest gfinnebraska

When I go for walks my hands swell. It usually goes away pretty quick after being home. Strange, huh?? :blink: I've never thought about it being celiac disease related, but it does happen all the time. Fun, fun...

ravenwoodglass Mentor
It could be the sodium.  I'm not sure.  He ate a massive amount of Lays Stacks this weekend. 

<{POST_SNAPBACK}>

Please be aware that while Lay's lists many of their foods as gluten-free there are real issues with crosscontamination. If he is newly diagnosed especially he needs to watch out for this. I have come to realize that I am playing with fire if I consume any of their products, sometimes they are fine other times I react big time. I know this isn't great news but I have found it better to stick with snack products that specify they are gluten-free. Good luck and hope he feels better soon.

jenvan Collaborator

since he was eating the Lays Stacks specifically though...he should be okay. ...since they are made on a dedicated gluten-free line. but as mentioned, not all of their products are. i get similar hand swelling as Kimberly said. i when walking outside b/c of a combination of the heat and my hands swinging low at my sides, below heart level. i will try and pump them up, keep them elevated more when walking to help with this. this page may give you more ideas on the swelling. Open Original Shared Link Also ck out this page on edema--perhaps it is merely from doing a lot of walking, or edema from another cause: Open Original Shared Link

Sorry i can't be more help....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator
Please be aware that while Lay's lists many of their foods as gluten-free there are real issues with crosscontamination. If he is newly diagnosed especially he needs to watch out for this. I have come to realize that I am playing with fire if I consume any of their products, sometimes they are fine other times I react big time. I know this isn't great news but I have found it better to stick with snack products that specify they are gluten-free. Good luck and hope he feels better soon.

<{POST_SNAPBACK}>

I agree with this last post. Being only recently diagnosed I think it might be better for your husbands recovery to eat more simple foods. I could be wrong but I thouht I'd read in previous posts that he is still eating out and at fast food chains daily. His risk for getting contaminated is pretty high. I'm finding I feel better if I don't go crazy trying to eat all kinds of different foods...even the ones that are labeled gluten-free cause me trouble right now. I think some healing has to take place first so I'll just stick to more veggies, fruit and meat for now. The more processed stuff I eat the more fluid I retain and its very uncomfortable...especially since I tend to accumulate it in my face/neck mainly. If I sit for long periods I start to swell more but I don't get that "ready to pop" look anymore cuz I'm not eating all that processed stuff with so much sodium.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,930
    • Most Online (within 30 mins)
      7,748

    Mhp
    Newest Member
    Mhp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AnnaNZ
      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.