Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Extremely Personal........females Only!


Mahee34

Recommended Posts

Heather22 Rookie

Wrong board.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



skbird Contributor

For me, the cramps I feel in my legs aren't like charlie horses, more like a dull ache that starts in my low back and pelvic region, travels down the front of my thighs and continues down to my ankles. I have been telling my husband about this for ages, he gives me really good ankle rubs when I'm having this problem. I was reading about endometriosis the other day and one of the symptoms was aches/cramps in your legs and I thought OMG! that's me!

So when you took the med for 6 months and went into menopause, did you stay in menopause after you stopped the drug? While it would be a tough 6 months, I WOULD LOVE THAT!!!!!

Honestly, I used to dream of getting a hysterectomy but my mom's friend got one last year and when I heard the details, I got chicken about the whole thing. Anyway, I'll see the gyne in three weeks so maybe I'll find some good solutions.

Stephanie

hthorvald Rookie

I've had similar pain during intercourse, too, but my doc just figures it's associated with menopause -- early onset due to hysterectomy. Prior to diagnosis, I was told I had adenemyosis a cousin to endo. He's just given me vaginal hormone suppositories I use twice a week. What a hassle! If anyone can give me any info to give to him, let me know. My docs are learning about celiac disease right along with me.

Helen.

cgilsing Enthusiast

skbird and Jen

The Lupron is for the treatment of endometriosis and after your last dose it takes about 2 months to get over it and it's back to normal periods and no more hot flashes. For me it was a godsent, I was only 20 and not even dating anyone much less ready for a family. They were conserned that my fertility was at stake. It's not a cure all, the endometriosis can return. THey told me it would be seven years. It's been 5 and just now my periods are getting heavier again and my cramps are getting worse, but NOTHING like it was before! I would do it again (although unpleasent) if I had to. It's a rough 6 months, but in comparison to the monthly hell I say it's worth it!! ;)

skbird Contributor

Wow, thanks for the info. That sounds really intense, but I can understand. I'll do some research on that. Though the rough 6 months is pretty daunting.

Good to know what options exist out there.

Thanks!

Stephanie

Mahee34 Enthusiast

How do they do a test to notice that you have endometrioso?

sdore Enthusiast

Is the pain on the outside or inside?

I have cysts and they can hurt. (inside)

I went my doctor and he said that I have vestublites (that may be spelt wrong) and this hurts on the outside. It's simply another allergic reaction. I have to wear cotton, white underwear and only use detergents without any dyes or parfume. I cannot use saop with any scent. My Dr. recommended neutrogena. Also do not d%$#@#$!!! I didn't know you are not suppose to and this brought on a PID infection which is one of the worse things that I have ever experienced!! Also, use unscented and white tp, and unscented tampons.

I have been doing this for a few weeks now and I am feeling much better.

I hope this may help!!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,585
    • Most Online (within 30 mins)
      7,748

    Josephine Minaudo
    Newest Member
    Josephine Minaudo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.