Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Greetings

youwillrise

Recommended Posts

youwillrise Rookie
youwillrise
Posted

hello all! I don't usually do intros, but I figure...what the heck?! I am from new york (not nyc lol). I haven't been diagnosed with celiac or any gluten sensitivity (yet anyway...we'll see what test results show), but I'm here and I'm glad I am. I actually had about 9 million vials of blood drawn today and they'll test for a variety of things (which is *supposed* to include celiac) I've been searching through this forum for days. It's been great. So whether I end up having celiac or not, I might just hang around. ; )

Anyway...

Shake it up, rock it out, break it down.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted

Welcome riser! Please make sure & post your test results when you get them. There are those on here who can interpret them quite well as they are very knowledgeable on the subject.

Here's hoping you find the answers you are seeking in your 9 million vials of blood.cool.gif

Lisa Mentor
Lisa
Posted

Hello back and welcome! :D

Bubba's Mom Enthusiast
Bubba's Mom
Posted

hello all! I don't usually do intros, but I figure...what the heck?! I am from new york (not nyc lol). I haven't been diagnosed with celiac or any gluten sensitivity (yet anyway...we'll see what test results show), but I'm here and I'm glad I am. I actually had about 9 million vials of blood drawn today and they'll test for a variety of things (which is *supposed* to include celiac) I've been searching through this forum for days. It's been great. So whether I end up having celiac or not, I might just hang around. ; )

Anyway...

Shake it up, rock it out, break it down.

Hello..and welcome! It's crazy how many vials of blood they can take when doing tests. I figured if I wasn't anemic when they started..I should have been by the time they were done? :lol:

I hope the tests give you the answrs you need.

GottaSki Mentor
GottaSki
Posted

Welcome!

I hope you get answers from the mass blood draw...as others mention - if you have questions post the results here -- many can explain the results better than some medical personnel (especially primary docs and nurses -- even some GIs that don't specialize in Celiac can be less than helpful).

Good luck to you on finding an answer to improve your health!

youwillrise Rookie
youwillrise
Posted
  • Author

Thanks for the welcome, all! I'm hoping for (and expecting) the best. I will be sure to post my results. I got my blood drawn by a hematologist, so hoooopefully he knows how to read and interpret the results. I guess we'll see? : p.

I'm thinking of starting a gluten free diet as a test to see if it helps any...I know it'll take time once I start the gluten free. I wanted to wait until after I got the blood drawn before I started and now that I have...I think ill give it a shot.

Or...do you guys suggest I wait until after I get results?

Bubba's Mom Enthusiast
Bubba's Mom
Posted

Thanks for the welcome, all! I'm hoping for (and expecting) the best. I will be sure to post my results. I got my blood drawn by a hematologist, so hoooopefully he knows how to read and interpret the results. I guess we'll see? : p.

I'm thinking of starting a gluten free diet as a test to see if it helps any...I know it'll take time once I start the gluten free. I wanted to wait until after I got the blood drawn before I started and now that I have...I think ill give it a shot.

Or...do you guys suggest I wait until after I get results?

IMO you should wait for the results of the tests before going gluten-free if you think they'll want to do an endoscope. They want you to be consuming gluten to get a good biopsy.

If you think you won't be getting a scope..go ahead and go gluten-free.

Be aware that 20-30% of us test negative in the blood work, but have positive biopsies when scoped. If you think it would be hard to stay on the diet without that biopsy DX..stay on gluten, but ask to have the scope scheduled ASAP.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GottaSki Mentor
GottaSki
Posted

I second Bubba's Mom -- I misread your original post and thought you had already had an endoscopy.

If there is a chance you will be considering having an endoscopy, do not stop eating gluten until after that is complete.

sharilee Rookie
sharilee
Posted

Welcome! I was just diagnosed with celiac on February 22nd. I was in shock when I went for the first blood work and they took all those vials. Then even more shocked after I was diagnosed with celiac and they took more blood to check my iron, vitamin levels, etc. Never had so much blood taken in my life.

Keep us posted on the results.

squirmingitch Veteran
squirmingitch
Posted

I third those suggestions.

youwillrise Rookie
youwillrise
Posted
  • Author

Yeah, they're also checking iron and other vitamins/minerals...I'm sure other things, too. Ill wait for the results before I make any changes. Thanks for the help!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,782
    • Most Online (within 30 mins)
      7,748
    BH1951
    Newest Member
    BH1951
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • nanny marley
      Manitol and mri

      By nanny marley · Posted

      Hi I've been told I need a MRI on my bowels , I was booked for a colonoscopy, but because of my sever back issues and trapped nerve it can't be done , the nurse told me I will have to have a manitol drink a hour before the scan , I'm just a bit worried has I have issues with sweeteners like even a little,  I get a weird throat and ears and I've read it is a similar substance , not sure if anyone has had one of these scans or could give me some advise on the drink prep thanks in advance 😄
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Ok thank you.  Me either 
    • Colleen H
      Celiac attack confusion and anxiety

      By Colleen H · Posted

      Hi all ! Can a celiac attack be so intense that it causes your entire body to work in reverse? Meaning really bad pain,  neuropathy and muscle,  jaw pain,  the stomach issues , Horrible anxiety and confusion??  I had a Tums and you would think I ate poison. My jaw and stomach did not like it . Not the norm for me. Things that are simple are just out of control. Anyone ever have this happen??  I'm trying to figure out what I ate or did to bring on a celiac like attack. I had an idea before but yesterday I didn't have any gluten unless it was in a medication ?! Any positive suggestions ??  Thank you 
    • Scott Adams
      Gluten free stuff

      By Scott Adams · Posted

      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • trents
      Gluten free stuff

      By trents · Posted

      Tammy, in the food industry, "gluten free" doesn't mean the same thing as "no gluten". As Scott explained, the FDA (Food and Drug Administration) allows food companies to use the "gluten-free" label as long as the product does not contain more than 20 ppm (parts per million) of gluten. This number is based on studies the FDA did years ago to determine the reaction threshold for those with celiac disease. And the 20 ppm figure works for the majority of celiacs. There are those who are more sensitive, however, who still react to that amount. There is another, stricter standard known as "Certified Gluten Free" which was developed by a third party organization known as GFCO which requires not more than 10 ppm of gluten. So, when you see "GFCO" or "Certified Gluten Free" labels on food items you know they are manufactured with a stricter standard concerning gluten content. Having said all that, even though you may read the disclaimer on a food item that says the spices may contain wheat, barley or rye (the gluten grains), you should be able to trust that the amount of gluten the spices may contain is so small it allows the total product to meet the requirements of gluten free or certified gluten free labeling. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.