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Friends Purposely Glutening Me!


Victoria6102

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Googles Community Regular

You need to get your parents involved. You need to tell them about your fears about them putting gluten in your food. This is not a small issue. This is a BIG issue. The exposure to gluten causes your risk of long term consequences to increase. While the reaction to gluten isn't as fast acting as peanuts (and unless there is an allergy on top of the celiac) will not cause anaphalaxis, it doesn't mean it is any less important. Tell your parents. It is your parent's job to help protect you. I know it can be hard for teenagers to ask for help from their parents, but you need their help. This situation has gotten out of hand. Don't only talk to the youth minister, talk to your parents.


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kareng Grand Master

THANK YOU!! That's exactly what I was thinking. The youth pastor should be talking to the parents of the kids who are causing you trouble. Anyone causing trouble should not have the privilege of taking outings with a Christian-centered group. It's like rewarding bad behavior, especially when it continues after the youth pastor has talked to the offending group of kids.

When you seal your food, make sure your tape doesn't overlap perfectly. Then sign and date the tape over the overlap. If they manage to get the tape off, they won't be able to align the signature back up, and you will know if they messed with it. I am suggesting this because duct tape does actually come off pretty easy if you give it the right yank. And, you can use plastic containers with duct tape if you choose.

Good idea on the signing the tape overlaps! Why did my sneaky mind not think of that! And if you wrap the tape around the container a few times & different directions .I would think it would be hard to get it back on the same without bubbles, gaps, wrinkles, etc.

Roda Rising Star

I know that despite teaching your child right from wrong it is ultimately up to them how they act when they are not with you. I hope my children would know better and would act appropriately , but there's no guarantee. If my children even thought of doing something like this to another person they would regret it big time!! As some of the other posters have stated already, what they are doing is dangerous and not to be taken lightly.

Have you ever considered attending another youth group perhaps? It doesn't sound like things have changed much since your posts last year.

I hope you can find something that works for you and also get the attention this matter deserves from the appropriate people.

  • 2 weeks later...
Victoria6102 Contributor

Ok, I am back from my trip! I made many precautions to make sure I wouldn't get glutened! I found out on this trip that the reason everyone had been talking about glutening my food lately is because my sister put flour in my pasta sauce a year ago, but I just found out now! I was so upset. My sister told me this, and then one of my friends said "I dont think you are really as sick as you think you are Victoria, and neither does anyone else." We proceeded to have a long discussion and finally I said I am not going to argue about this anymore cuz I've already told you the truth so whether or not you believe me is up to you! She later apologized but that doesn't mean she still doesn't think that. Know what I mean? Anyway, noone glutened me on the trip. I came home safe and sound and I hope everything will be ok from now on.

Skylark Collaborator

I'm glad to hear your trip went well.

Your friends, and I use the word loosely, don't understand that even if you don't have an obvious reaction to gluten there is autoimmune damage being done. Remember that true friends are the ones who respect what you say. A real friend will go to great lengths to make sure you have safe food, even if eating gluten once doesn't make you obviously sick every single time it happens.

You also need to let your parents know your sister poisoned you. You may need help making sure it won't happen again.

anabananakins Explorer

Ok, I am back from my trip! I made many precautions to make sure I wouldn't get glutened! I found out on this trip that the reason everyone had been talking about glutening my food lately is because my sister put flour in my pasta sauce a year ago, but I just found out now! I was so upset. My sister told me this, and then one of my friends said "I dont think you are really as sick as you think you are Victoria, and neither does anyone else." We proceeded to have a long discussion and finally I said I am not going to argue about this anymore cuz I've already told you the truth so whether or not you believe me is up to you! She later apologized but that doesn't mean she still doesn't think that. Know what I mean? Anyway, noone glutened me on the trip. I came home safe and sound and I hope everything will be ok from now on.

I'm late to this thread but I remembered you from last year. I'm glad you had a good trip and didn't get sick.

It sounds like your sister and your friends are irrationally jealous of any perceived extra attention you are getting, though why anyone would be jealous of something with food problems is beyond me. Oh well. It's good you and your sister talked. Hopefully she'll have a good think about what she did, and how it is hurting you. It'll serve her right if in the future she gets diagnosed too, or her children! Not that I'd wish that on your hyptothetical future nieces or nephews, lol.

  • 5 months later...
123glldd Collaborator

I haven't been able to read more than the first page of this topic so far as I have to go out but...while some people are appalled this is a religious group I am not. Nothing against the Bible or Churches..I'm not a christian anymore but ...some of the worst bullying i ever experienced was from kindergarten to grade 9 in a pentecostal school. No pun intended but ...thank GOD I went to a different high school after. Some of us know the theology of the bible better than others. These types of kids don't know the real meaning of "being saved". They are bullies and are not following the example of Jesus Christ. Just my two cents.


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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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