Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Not So Gluten Free


Littllemel

Recommended Posts

Littllemel Apprentice

Is there a list of foods that say they are gluten free but people have had reactions from? I swear the kinnikinnick bread I got is giving me a reaction.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Marilyn R Community Regular

I absolutely love your Avatar Mel!

Regarding your question, I've found that there are certain grains and other foods that don't agree with me, even though they are gluten-free and acceptable to other people with celiac disease or gluten intolerance. I react to quinoa, so I avoid a number of gluten-free products because they include quinoa seed or other derivatives. It took me quite awhile to tolerate certified gluten-free oats. I had a reaction from a reputable gluten-free manufacturerer's gluten-free granola early on. Some posters have had issues with Rice Chex. I could eat corn tortillias like crazy at first, and then not at all.

I haven't had the desire to try gluten-free Bisquick because it upset me the first time I tried it.

It's tough trying to figure out what bothers you, but it's easier if you stick to whole foods at first while you're healing, and really pay attention to what goes on the next day(s). I don't know if it's quinoa for you, but I think that brand has quinoa in it. I haven't bought it, but it's well respected.

Good luck!

Lisa Mentor

Is there a list of foods that say they are gluten free but people have had reactions from? I swear the kinnikinnick bread I got is giving me a reaction.

Depending on how long you have been gluten free will determine your ongoing heath. It takes time, days weeks, months and even years to feel 100% healthy.

There is no list of foods, but being an expert at label reading and expanding knowledge will carry you safely. :D

Coolclimates Collaborator

I personally don't get sick if I get glutened so it's hard for me to tell. However, i would caution you eating foods whose labels say "no gluten ingredients" such as those at Trader Joes. Although no gluten is put in intentionally, these products could very well have issues with cross-contamination. 'no gluten ingredients" should be a red flag. I personally avoid products that say that.

kareng Grand Master

Lots of foods have " no gluten added" whether they state that or not. Frozen corn has " no gluten added". But they don't label it that way. It just means they haven't tested anything for gluten. Most items don't bother saying " no gluten ingredients".. They just list the ingredients. If we required companies to test everything for gluten, the price would go up.

GFinDC Veteran

I think some Kinickinick products have potato starch in them. Yo might react to that. You really need to look at all the ingredients in a product to see what might be a problem. And then try to match the ingredient list up to other products that cause symptoms. That way when you find a match you can shout "Eureka!" and stop eating those ingredients.

dilettantesteph Collaborator

Different celiacs/gluten intolerants react to different levels of gluten. The large majority show no symptoms at all even on a normal gluten filled diet. The products that give no symptoms for one are different than the products that give no symptoms for another. Some of us feel that we need to avoid all processed foods. Others feel the need to grow most of their own food to avoid contamination from farming practices.

Many seem just fine eating the typical gluten free diet containing the standard gluten-free foods.

There can't be such a list as it is different for different individuals.

It takes awhile to figure out if you are in a more sensitive group or a less sensitive group. Then sensitivity levels change, and other food intolerances can show up. This condition is a challenge for some.

They say that the large majority do fine with the proposed gluten free standards.

I also have had problems with food from the company that you mentioned. I have problems with most processed grain containing foods.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Littllemel Apprentice

I think it might be something I am putting on my skin. Avalon Organics Moisturizer Plus w Vit C is the only product I have where I can't verify if it is gluten free. The company won't commit to an answer. I didn't use it today but I am still itchy all over.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      30

      My journey is it gluten or fiber?

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,815
    • Most Online (within 30 mins)
      7,748

    JaneD
    Newest Member
    JaneD
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.