Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dh And Sores On Gums


dani nero

Recommended Posts

dani nero Community Regular

Hi everyone. I've been posting a lot lately and am thankful for all your support. I would have been lost without it.

My DH broke out two days ago.. I think it's because I've been eating a lot of fish and still detoxing from my previous CC. At the same time I got three blisters in my nose (at the usual place) and my nose has been terribly itchy. I don't know if the blisters are ulcers, herpes, or DH, but they bleed a lot and they HURT while my whole nose itches.

It was two days ago that my gums and the lymph nodes under them got swollen up as well. I thought it was because the CC lowered my immunity.. which caused a gum and lymph infection around my wisdom teeth, so I started using anti-biotic mouth wash.

Today however I find that my gums (around my teeth, where the swelling is) are covered with white spots. At first they reminded me of the rash. I don't know what they are. Some are very small and a few are large ulcers (specifically around my wisdom teeth).

If anyone remembers, I have been complaining about throat pain after eating. I think I might have had and still be having those white spots in my throat as well.

I read that celiacs are likely to have gum infections and such which is why I always treated my mouth with anti-biotics once a month, but now I'm really confused about what is what. And they seem to be breaking out at the same time as my rash.

PS. I take very good care of my teeth. I brush, use mouth wash and floss regularly. So I know it's not poor dental hygiene.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

dani, I can't speak for the sores on the gums but you mentioned you've been eating a lot of fish. Salt water fish? Because you may, like so many of us with dh, be getting affected by iodine. Many of us have to limit our iodine intake because otherwise our dh flares so bad we can't stand it.

dani nero Community Regular

dani, I can't speak for the sores on the gums but you mentioned you've been eating a lot of fish. Salt water fish? Because you may, like so many of us with dh, be getting affected by iodine. Many of us have to limit our iodine intake because otherwise our dh flares so bad we can't stand it.

Yes I agree. I read somewhere on this forum that both CC and iodine together cause a rash problem. The fish is one of the few foods that is soft enough to chew with swollen gums and lymph nodes sadly. I'll have to find something else now.

squirmingitch Veteran

If you can get fresh water fish it does not have the iodine content.

dani nero Community Regular

If you can get fresh water fish it does not have the iodine content.

I'll see what I can dig up :-) Thanks

pricklypear1971 Community Regular

Has a dentist ever checked those sores?

Have you ever had oral thrush? That said, I had thrush after my son was born that in retrospect may have been DH. Skin problems are terribly difficult.

I'm sorry you're going through this, I know or must hurt.

squirmingitch Veteran

Are you going to try to dig up fish? Good luck with that! laugh.giflaugh.giflaugh.giflaugh.giflaugh.gif

Humor never hurts.cool.gif


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dani nero Community Regular

Has a dentist ever checked those sores?

Have you ever had oral thrush? That said, I had thrush after my son was born that in retrospect may have been DH. Skin problems are terribly difficult.

I'm sorry you're going through this, I know or must hurt.

Hi pricklypear! Sadly my dentist appointment won't be for another three weeks.

I don't think it can be thrush because I've been on an elimination diet for the past three weeks. I just recently added clementines two days ago so there is no way the little yeasties could have overpopulated in this short amount of time. Sorry for the grossness!

I've only had severe sores like this once before when I was incredibly ill, but I don't remember a rash at the time.

I was thinking the skin problems could spread into the mouth like it does into the nose.. maybe?

Thanks for the comforting. I'm getting plenty of help from this forum so it's all ok :-)

dani nero Community Regular

Are you going to try to dig up fish? Good luck with that! laugh.giflaugh.giflaugh.giflaugh.giflaugh.gif

Hahahahaha :-D I was actually thinking of "digging" into the frozen fish coolers at the supermarket when I wrote that!

pricklypear1971 Community Regular

Hi pricklypear! Sadly my dentist appointment won't be for another three weeks.

I don't think it can be thrush because I've been on an elimination diet for the past three weeks. I just recently added clementines two days ago so there is no way the little yeasties could have overpopulated in this short amount of time. Sorry for the grossness!

I've only had severe sores like this once before when I was incredibly ill, but I don't remember a rash at the time.

I was thinking the skin problems could spread into the mouth like it does into the nose.. maybe?

Thanks for the comforting. I'm getting plenty of help from this forum so it's all ok :-)

Well, actually I'd be more concerned the thrush was caused by the state of your immune system and the antibiotic wash. Have you googled pictures of oral thrush (sorry, they can be ugly and painful looking)?

Also, could you have developed a problem with the antibiotic? That can cause local/general swelling, rash, lymph node issues.

Sure, it's possible you have DH in your mouth and up your nose. Makes my under arm DH sound like a picnic. Yowza.

Btw I had an antibiotic rash and DH once. That was a messed up experience, and I'm using polite terminology on that one. I think there was a time when I reacted to every little thing that came along....grrr.

lovegrov Collaborator

I think I'd quit the oral antibiotics. I'm not sure where you read about the gum infections (never a problem for me) but even if true if you're gluten-free I'd think that would go away.

richard

dani nero Community Regular

Well, actually I'd be more concerned the thrush was caused by the state of your immune system and the antibiotic wash. Have you googled pictures of oral thrush (sorry, they can be ugly and painful looking)?

Also, could you have developed a problem with the antibiotic? That can cause local/general swelling, rash, lymph node issues.

Sure, it's possible you have DH in your mouth and up your nose. Makes my under arm DH sound like a picnic. Yowza.

Btw I had an antibiotic rash and DH once. That was a messed up experience, and I'm using polite terminology on that one. I think there was a time when I reacted to every little thing that came along....grrr.

They all almost look alike to me. I don't know what they are. If they are thrush how do I get rid of them? If I stop the antibiotic and my gums are really infected then I'm still in trouble. I only started the antibiotic two days before the white patches showed up.

pricklypear1971 Community Regular

They all almost look alike to me. I don't know what they are. If they are thrush how do I get rid of them? If I stop the antibiotic and my gums are really infected then I'm still in trouble. I only started the antibiotic two days before the white patches showed up.

Antibiotics are notorious for causing thrush.

There's a medication they can give you - I don't remember the name, but they give it to moms/babies all the time. It may be OTC where you are. Ask a pharmacist and see? If it works, you'll know it's thrush (at least what's in your mouth).

You really should have a doctor check it out. You are correct, if it's an infection you need to have it dealt with, same if it's thrush. If its an allergy you need to know so you don't use that antibiotic again (this will be the hardest dx to get, btw).

Is there an urgent care clinic you can get into for these types of things? You're in Sweden?

Here are some treatment options: Open Original Shared Link

dani nero Community Regular

Antibiotics are notorious for causing thrush.

There's a medication they can give you - I don't remember the name, but they give it to moms/babies all the time. It may be OTC where you are. Ask a pharmacist and see? If it works, you'll know it's thrush (at least what's in your mouth).

You really should have a doctor check it out. You are correct, if it's an infection you need to have it dealt with, same if it's thrush. If its an allergy you need to know so you don't use that antibiotic again (this will be the hardest dx to get, btw).

Is there an urgent care clinic you can get into for these types of things? You're in Sweden?

Here are some treatment options: Open Original Shared Link

Yeah there is a hotline. I'm calling them now.

Thanks for this advice :-) You're wonderful!

squirmingitch Veteran

Go Prickly!

Prickly is always pretty much on top of things.smile.gif

rosetapper23 Explorer

I think pricklypear is correct--the mouthwash may have caused thrush. That's what occurred to me (and, sorry--I only just saw this posting). Your immune system sounds so out of balance at the moment.....I sure hope things begin turning around for you soon.

dani nero Community Regular

Ok everyone, I feel very silly but I'm going to post an update anyway.

I called a hotline to see if I can get an appointment, and the nurse asked what kindof mouth-wash and gel I used. I checked because I didn't remember the name, and I found that BOTH of them were Corsodyl, which are anti-fungal and not anti-biotic (It is weird that I didn't know what I was using for a long time but that's something I often do so I'm used to the embarrassment). Anyway, they couldn't help much and gave me a DENTAL hotline number to call tomorrow. Gotta love Sweden's health-care.

So I'm back to square one of not knowing what on earth is in my mouth. I tried looking up oral DH, but all the articles stated it was very rare.

rosetapper23 Explorer

It may be that you're simply suffering from stomatitis caused by celiac. My daughter suffered with this condition for many years, even though she refuses to get a test for celiac. My son is diagnosed as having celiac, and my daughter has had many symptoms since she was three years old....but she says she has no intention of following a gluten-free diet unless she's on her deathbed. I think that perhaps one day when she wants children and has issues with infertility, she may change her mind. Anyway, stomatitis was a major issue for her, and our dentist stated that she didn't have canker sores--they were caused by some kind of immune disease. Here's a good site for information, but you may have already found it yourself:

Open Original Shared Link

I suffered from this condition while undergoing chemotherapy--it can truly be awful. So sorry for Sweden's health system!

pricklypear1971 Community Regular

Ok everyone, I feel very silly but I'm going to post an update anyway.

I called a hotline to see if I can get an appointment, and the nurse asked what kindof mouth-wash and gel I used. I checked because I didn't remember the name, and I found that BOTH of them were Corsodyl, which are anti-fungal and not anti-biotic (It is weird that I didn't know what I was using for a long time but that's something I often do so I'm used to the embarrassment). Anyway, they couldn't help much and gave me a DENTAL hotline number to call tomorrow. Gotta love Sweden's health-care.

So I'm back to square one of not knowing what on earth is in my mouth. I tried looking up oral DH, but all the articles stated it was very rare.

Assuming this is what you're using did you read the side effects? Open Original Shared Link

You may just have an issue with the product or allergy to the active ingredient.

It is unlikely you have thrush since this is used to treat it. You might glance at this, and read the contradictions. Uhm, did you notice the part about not using it with iodone preparations? I wonder what it does with iodone and I wonder if that could cause a DH problem. I'm really reaching on that one - but hey...

Open Original Shared Link

I really hope you don't have DH in your mouth. That's horrible.

dani nero Community Regular

Assuming this is what you're using did you read the side effects? Open Original Shared Link

You may just have an issue with the product or allergy to the active ingredient.

It is unlikely you have thrush since this is used to treat it. You might glance at this, and read the contradictions. Uhm, did you notice the part about not using it with iodone preparations? I wonder what it does with iodone and I wonder if that could cause a DH problem. I'm really reaching on that one - but hey...

Open Original Shared Link

I really hope you don't have DH in your mouth. That's horrible.

I read the side-effects. I don't think I'm having a reaction to the wash itself.

My mouth and throat don't itch at all, unlike the ones in my nose. (I really feel very unattractive whenever I mention those!)

Thanks so much for helping me through this pricklypear. I'll post an update if anything helpful comes out of the call tomorrow.

dani nero Community Regular

It may be that you're simply suffering from stomatitis caused by celiac. My daughter suffered with this condition for many years, even though she refuses to get a test for celiac. My son is diagnosed as having celiac, and my daughter has had many symptoms since she was three years old....but she says she has no intention of following a gluten-free diet unless she's on her deathbed. I think that perhaps one day when she wants children and has issues with infertility, she may change her mind. Anyway, stomatitis was a major issue for her, and our dentist stated that she didn't have canker sores--they were caused by some kind of immune disease. Here's a good site for information, but you may have already found it yourself:

Open Original Shared Link

I suffered from this condition while undergoing chemotherapy--it can truly be awful. So sorry for Sweden's health system!

Rosetapper, I really hope I don't have an immune disease, but I have a question. Did you or your daughter suffer from these ulcers/infections even while using anti-fungal medication? Don't get me wrong but I'm hoping your answer would be yes, as that would explain why I got the ulcers /infection even though I've been treating my gums with anti fungal solutions for 5 days.

Sorry to hear about your daughter. She sounds exactly like my entire family. They make me feel so sad!

pricklypear1971 Community Regular

I read the side-effects. I don't think I'm having a reaction to the wash itself.

My mouth and throat don't itch at all, unlike the ones in my nose. (I really feel very unattractive whenever I mention those!)

Thanks so much for helping me through this pricklypear. I'll post an update if anything helpful comes out of the call tomorrow.

I'm very relieved to hear the mouth and throat sores don't itch. I hope they go away soon.

They will probably tell you to stop using the wash to see if it goes away.

I was reading about oral DH and one study said oral lesions are quite common in DH patients, and tend to precede a skin breakout. It wasn't clear to me if the oral lesions were DH, or just a sign DH was coming.

dani nero Community Regular

I found this article, but it's not free. Is there any chance someone could have access to it or to an article similar to it?

Open Original Shared Link

It seems that the oral lesions don't have to be itchy for them to be related to DH. I know I'm no expert or anything so please feel free to correct me if what I'm assuming might be the case is wildly off and unlikely :-)

Di2011 Enthusiast

So I'm back to square one of not knowing what on earth is in my mouth. I tried looking up oral DH, but all the articles stated it was very rare.

Can you describe the lesions or rash that is occuring in your mouth?

Many of us with DH have had canker sores. I am no guru/academic but I believe mine and my sons where a mouth manifestition of DH:

Open Original Shared Link

Google Image "canker sore" to make a judgment..

dani nero Community Regular

Can you describe the lesions or rash that is occuring in your mouth?

Many of us with DH have had canker sores. I am no guru/academic but I believe mine and my sons where a mouth manifestition of DH:

Open Original Shared Link

Google Image "canker sore" to make a judgment..

I don't see any that look exactly like mine. They are also in my throat I think because eating and talking hurts. My lymph nodes are also swollen and painful. The sores are only on the gingiva around the lining of my teeth. None of them is as awful looking as the ones on google. They're on both sides of my mouth. The little ones are closer to my front teeth and the larger ones right by my wisdom teeth. The big ones are flat and white but do not dent into my gums or stick out. Just flat. The small ones are almost in a line and they poked out a little and were more reddish.

They're a lot better today as the whiteness on them is almost gone.. they're only red patches around my teeth.

I haven't had any problems with this anti-fungal gel before and I've been using it for a long time. I really don't think it's the cause. And the wash I only started using because this time my teeth were getting worse and the gums where the sores are now got seriously swollen.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,333
    • Most Online (within 30 mins)
      7,748

    Donna Chem
    Newest Member
    Donna Chem
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.