Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Withdrawl Y Or N

DawnMarie127

Recommended Posts

DawnMarie127 Newbie
DawnMarie127
Posted

I have been Gluten free for a week, and today I have a terrible headache on and off all day.. Is this normal??

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ciamarie Rookie
ciamarie
Posted

Y. :D

That was the short answer. The longer answer is that was my experience, I don't think it's terribly unusual.

deltron80 Rookie
deltron80
Posted

I have been Gluten free for a week, and today I have a terrible headache on and off all day.. Is this normal??

For the first two weeks after I quit I felt like I was on drugs, then the next two weeks I was light-headed. Now I'm just getting fatter lol. I bet the head ache is just some weird symptom.

nmull #newly diagnosed Newbie
nmull #newly diagnosed
Posted

I have had Migraines recently and I am in my 3rd month of being gluten free. I also felt drugged and lightheaded in the beginning weeks. I thought my headaches were because I had accidentally Glutened myself but I am pretty sure it was withdrawal symptoms :)

krystynycole Contributor
krystynycole
Posted

My withdrawals to gluten were 10x worse than my caffeine addition...both I stopped cold turkey! Yeah they are bad :( but they will get better.

  • 2 weeks later...
Mateto Enthusiast
Mateto
Posted

**well this thread really makes me excited to start going gluten-free** :unsure:

mushroom Proficient
mushroom
Posted

**well this thread really makes me excited to start going gluten-free** :unsure:

You just have to keep swimming to the other side of the river, where there is a nice sandy beach and soft green newly mown grass, and ...... :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JustNana Apprentice
JustNana
Posted

I wonder what causes withdrawal symptoms from gluten.

I guess I am fortunate I had none. The carbs I deleted by going gluten-free I just naturally made up for by eating more rice, corn and even some sweets. ( Mind you, this was not from any logical nutritional decisions but, rather, my tendency to indulge myself because I was feeling "deprived.". LOL

One really nice thing happened rather quickly for me was that I stopped craving bread and sweets. I still love my corn tortillas, potatoes and Asian rice dishes.

Here's a little tale off topic but so typical of me. I have already smacked myself good over this one. After about 3 weeks of gluten-free food I was craving fried rice. I easily found gluten-free soy sauce and after lots of recipe reading I made a delicious version that my husband now asks for once a week. I always start with cold, long grain rice cooked in broth, at least 8 hours old. Two days in the fridge is even better. I use sauted chicken, pork if I have it and shrimp. Onions, a tiny bit of ginger, some sesame oil, soy sauce, peas and it is easy and so satisfying. So we've had this maybe half a dozen times. Visiting family last week they all wanted Chinese take out so I just asked for a side of fried rice. It was filling and I was happy. At 3:00 in the morning I woke up scratching myself raw. DH flare up! I completely forgot that the soy sauce they used was likely full of gluten!

Sheesh!

peter99ff Rookie
peter99ff
Posted

Give it about six months, so ya got 5.5 months to go. I read in a couple of places thats how long, about , for it to get out of your system. GL :)

peter99ff Rookie
peter99ff
Posted

Sorry to hear about the soy sauce. Look into salt triggering dh also. I use sea salt, no iodine. ;)

And theres a lot of different types of sea salt, go figure :lol: I dont even use surgical scrub on my hands or I break out.

JustNana Apprentice
JustNana
Posted

Peter

I just today started looking at all the evidence for iodine triggering the DH stuff! I am currently cooking and seasoning food with Kosher salt but using "Iodized table salt" sparingly as I dont want to go totally without.

I am going to really pay attention to the DH reactions to try to figure it out.

All of these things are so NEW to me as my Dr is good but not an expert by any any stretch on the whole celiac/DH/Hashimoto's thing. I am alternately grateful and frustrated at all the issues presented on this forum.

Bless all of you. Thank you so much for taking the time to respond. I appreciate it very much.

  • 1 month later...
Raywuwei Explorer
Raywuwei
Posted

I guess I am fortunate I had none. The carbs I deleted by going gluten-free I just naturally made up for by eating more rice, corn and even some sweets. ( Mind you, this was not from any logical nutritional decisions but, rather, my tendency to indulge myself because I was feeling "deprived.". LOL

Same here! I am on day 5 of being gluten-free and getting a little nervous that I'm not having any withdrawals at all. I should probably note that I was diagnosed on accident after suffering from stress induced ulcer-like indigestion. The testing came back negative for an ulcer, but my doctor tested me for celiac just in case... and I had it! I took Prilosec for 10 days and all of my stomach pain went away... Now I feel fine, and I feel a little bit guilty when I read all of the comments on this forum.

Did you have a lot of pain being diagnosed. And did you find that after being on the gluten-free diet for a long time that you started having more severe symptoms when you were glutened?

sa1937 Community Regular
sa1937
Posted

Same here! I am on day 5 of being gluten-free and getting a little nervous that I'm not having any withdrawals at all. I should probably note that I was diagnosed on accident after suffering from stress induced ulcer-like indigestion. The testing came back negative for an ulcer, but my doctor tested me for celiac just in case... and I had it! I took Prilosec for 10 days and all of my stomach pain went away... Now I feel fine, and I feel a little bit guilty when I read all of the comments on this forum.

Did you have a lot of pain being diagnosed. And did you find that after being on the gluten-free diet for a long time that you started having more severe symptoms when you were glutened?

I was one of the lucky ones who did not experience withdrawal symptoms when I went gluten-free the day of my endoscopy, Some people do; others do not.

I did not have a lot of pain when diagnosed...only the big D, which was bad enough. I do think we become more sensitive after we've been diagnosed and go gluten-free. Sometimes we find other intolerances, which are many times difficult to figure out.

mommida Enthusiast
mommida
Posted

For some people there is an opiate affect on the brain. :blink:

To ease some of the headache pain. Vitamin supplemented water (smartwater), sublingual vitamin B12, deep breathing as if you were smoking a cigarette, and slowly stretching your neck and shoulders. Use the mantra. Remember what it feels like not to have a headache.

If the headache is still persistant, or you have a fever,, stiff neck get medical attention.

Seriously this really can take away a lot of headache pain. I drove myself to the doctor's office when I had meningitus. (Was promptly wrongly diagnosed with a migraine and sent home.) So like I said any fever with a severe headache, hurts to move your eyes (side to side will send bands of pain), putting your head forward and the pain just explodes, my neck was also swollen to twice the size.

Adults usually do not seek treatment for most viral cases of meningitus. :huh:

  • 3 weeks later...
EPrasn Newbie
EPrasn
Posted

**well this thread really makes me excited to start going gluten-free** :unsure:

lol, I can't wait for my bloodtest to confirm this or not for me.

bartfull Rising Star
bartfull
Posted

I LIVED on gluten, and I did have withdrawal symptoms, but they only lasted a few weeks, and during that time OTHER things started feeling better so it was no big deal.

  • 1 month later...
FruitEnthusiast Enthusiast
FruitEnthusiast
Posted

I have been Gluten free for a week, and today I have a terrible headache on and off all day.. Is this normal??

It's usual to feel worse during withdrawal from anything as the toxins leaving your body cause symptoms. The toxins get stirred up in the process. A detox bath in Epsom salts could help and drinking lots of water, of course. Hope that helps. Hope you feel better :)

  • 2 weeks later...
katt983 Newbie
katt983
Posted

I'm not sure if it's normal or not. When I first went completely gluten-free, I felt some serious fatigue for a few days - week. I usually really feel it throughout my body when I get some gluten in my diet and feel quite a bit better when following a strict gluten-free diet.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,553
    • Most Online (within 30 mins)
      7,748
    Jennifer CCC
    Newest Member
    Jennifer CCC
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.