Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do You Comfort Yourself When Glutened?


Guest BERNESES

Recommended Posts

Guest BERNESES

I'm just wondering what people do to comfort themselves when glutened. I sleep and tell myself it will pass but I'm wondering if others have ways of coping. Things I'm interested in are things you do- not vitamins you take, etc. It seems that lately sleeping and telling myself it will pass has not been enough and I've been crying a lot with frustration. The people on this board have been a HUGE comfort but I'm just wondering if there's other things I could do, even if just to lift my mood and distract me for awhile. So what do you do to help yourself? Thanks, Beverly


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

I like to sleep but something I love to do to lift my mood is watch comedies. Whenever I get laughing I seem to forget about how bad I feel and it really helps me to feel better.

I also love to eat my comfort foods too

lorka150 Collaborator

I lay down (I can never sleep, but am so tired I want to die! Good ol' molasses feeling), and chill out. I usually need time to myself because it is always depressing for me. I drink lots of herbal tea and when it's meal times, steam everything to mush. I always feel good eating mushy vegetables.

I tend to feel sorry for myself the first day, which isn't good, but i'm still new at all of this. It's so frustrating still. :(

tarnalberry Community Regular

Go about my normal practices. I know it sounds ... something ... but I'm often cranky, so I might whine "I don't want to go to yoga; I want to sit on my ass tonight", but I go. I'll generally be somewhat quiet, sleeping when I need to sleep and doing other low key things like reading or surfing the net or updating my website until the abdominal bits pass. I try to spend some time meditating too, but my ability to not get distracted varies. ;-)

FaithInScienceToo Contributor

Hi -

Good post!

What do I do?

I do some more reading/research about what to avoid, and what to be more suspect of, to help prevent it from happening again. I also commit right away to being MUCH more careful about what I put in my mouth, and that makes it easier to not take similar risks again.

I also drink more water, get more sleep and take digestive enzymes...and Tylenol PM (or Ambien or Valium) if I need it for sleep...to let my body rest and heal up...

Plus, my cat, Mr. Bo Jangles, seems to know when I am not feeling well...so, he's always a great source of warmth and cuddling :-)

Gina

burdee Enthusiast

What helps me is to relax the cramps, cope with the bloat and move the gas. So I drink really strong herbal peppermint tea, wear my 'celiac' episode clothes (really loose fitting tops and elastic waist pants) and walk, do yoga positions or elevate the foot of my 'tempurpedic' bed while I watch funny movies or "Funniest Animal Videos". :D Also just focussing on anything else which I feel passionate about distracts me enough to remember "This too shall pass ..." I just assumed leadership of our local floundering leaderless celiac support group. I've been soooo busy that I only noticed the excruciating pain once in awhile, even though I've had several 'episodes' in a row this week. :o I'm still not sure what caused this last one. I've been too busy to do adequate post episode contamination culprit sleuthing. :lol:

BURDEE

Rachel--24 Collaborator

The only thing that really helps me is sleep....and lots of it. I do get extremely tired but also it helps me escape the pain. If the reaction is bad I'll sleep for most of 2 days. Also I cry alot but after a crying session I'll feel better...then I'll fall into a deep sleep. If the reaction is mild then I'll go outside in the sun and start doing yardwork or something. For some reason being in the sun relieves some of my symptoms. My doc told me its because I'm lacking vitamin D...I don't know if thats the real reason...I just know that it works for me. Luckily I havent had many of the real bad reactions lately.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carriefaith Enthusiast

I usually try my best to go to school, work, ect, but I don't push it. When I am extremley tired and not feeling well from the gluten I will sleep in for the morning and go to school late. When I get severe pain while I am out or at home I just have to sit there and wait it out.

bratcat Apprentice

Most of the time I walk.Just go out in the yard and wear out the grass.I can't be still,because I am so uncormfortable.I tend to withdraw from everyone and try to walk where no one will bother me.I don't like for people(even family) to see me when I am not my best.I have a hard time coping with being sick.I have never been a whiner,nor could I tolerate anyone who was.If I can't go outside,I do to another room and do some kind of craft--standing up.When I sit down I feel like there is something on top of my stomach that doesn't belong there.Sometimes I get into a good hot bath and just lie there.

jenvan Collaborator

Rest, watch funny shows like Kaiti mentioned... I'll put on some Sex in the City or Gilmore Girls... Focus on normalcy, because I will be there again, take a walk, even a slow one and get some fresh air. I also just taken everything slower and cut back on what I do. If I am really in a bad spot, I may choose to lay down and veg, rather than clean the sink. That's important for types like me who have a tendency to do too much...

rmmadden Contributor

When I feel lousy I usually try and go for walks to get my mind off how I feel. I also like to listen to jazz or other light music and sleep as much as possible. Finally I rely heavily on my natural magnet belt to ease my aches & pains associated with the bloating etc.

Cleveland Bob B)

Guest BERNESES

Thanks Everyone- I really appreciate it. I think I need a mental coping scheme. I know what to do physically but sometimes I am just so uncomfortable all I can do is cry. I hate it- I consider myself a relatively strong person but this has pushed me to my limits and I want to find more positive things to do that don't require a lot of physical energy. But maybe some yoga, comedy, sleep and a little walk would help. Calling my sister helps too. Just tired of moaning to my husband and crying on his shoulder. I've noticed if I get distracted I can usually forget how crappy I feel. Best, Beverly

laurelfla Enthusiast

i'm new to all this, so it's good to see other strategies for coping with the ickiness!

first i call one of my very good friends (i rotate them out so no one has to deal with a crying Laurel every time she talks to me!) and i rant for a few minutes about how awful i feel. after the phone call i lie on the couch and let my cat put his warm paw on my arm (that's what he does when i'm upset -- it's too cute). and i watch my mexican soap opera that i am addicted to. or sex and the city. Bridget Jones is probably my favorite, though, for when i'm feeling down. and i am just as slothful as i need to be until i feel better. (not counting work/school of course). oh, and sometimes i journal about it first, just to get all the emotional response out. then i distract myself with the tv or movies.

Rachel--24 Collaborator
i'm new to all this, so it's good to see other strategies for coping with the ickiness!

first i call one of my very good friends (i rotate them out so no one has to deal with a crying Laurel every time she talks to me!) and i rant for a few minutes about how awful i feel.

<{POST_SNAPBACK}>

I do the same thing...its very rare now but for 2 years it was nearly daily. I'm surprised I still have ANY friends! :o Sometimes they'd jokingly say "Isn't it someone else's turn today." He-He...I guess I tortured them. Then when I started to feel better I was out and about and all of a sudden no-one could reach me. They were like "What the heck?...Before we couldn't get rid of you...now you're so busy we cant even *find* you."

I remembered a couple other things I do to feel better....I go to the gym and sit in the sauna and the steam room...which is relaxing and a good way to detox. If I'm feeling like things are hopeless (sometimes I forget that the reactions are temporary) I'll start reading positive info. on this board or elsewhere..that always lifts my spirits. I also watch Sex and the City...funny how many of us turn to that show for comfort. I just finally watched the final episode this week. I didn't get hooked on it till after it stopped airing so I had to wait for the DVD's. Anyway, it was the ending I had hoped for. :D

Guest BERNESES

Let's turn this into a list. I'll start a new thread. I was thinking about it yesterday when I picked up my pack of "52 Silly Thyings to do When You Are Blue Card" and threw out all the ones that had to do with food. :P Beverly

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    2. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    5. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    Jane02
    Newest Member
    Jane02
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.