Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Edema? Anyone Else?


Emilem

Recommended Posts

Emilem Apprentice

I just found out recently that I have Celiac disease. I have been on a gluten-free diet for a month now. One of my major complaints has been edema. I feel so swollen ALL OVER my body. My abdomen, legs, feet, hands, face. It varies from day to day, but drinking fluid seems to aggravate it further. My kidneys, electrolytes, etc have all been checked out and are fine. I read some posts on here about people retaining up to 30 lbs of fluid, is this possible? I FEEL as if I am carrying around that much water, it tires me, and most importantly it is uncomfortable :(

Have any of you dealt with this as a symptom of your celiac? If so, how long did it take to go away?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Victoria6102 Contributor

I feel bloated a lot in my face and abdomen, sometimes my hands. When I did a no-sugar challenge for a week, within the first two days I lost 5 pounds of water weight. Maybe you could try eliminating sugar completely for a few days?

IrishHeart Veteran

Swollen, yes! I felt like I was a stuffed sausage --on fire. My skin felt like it was too TIGHT.

It goes away. I am not sure exactly when I realized I was not feeling like a Macy's Day float anymore. A few months maybe?

Everyone heals at different rates.

Hang in there. :)

Emilem Apprentice

WOW those symptoms sound so similar to mine!

It is so uncomfortable :(

how much fluid weight were you retaining? did it all go away eventually?

did you have to cut out anything else like caffeine/sugar to notice a difference?

sorry for all the questions, its just so nice to have someone to relate to!

Swollen, yes! I felt like I was a stuffed sausage --on fire. My skin felt like it was too TIGHT.

It goes away. I am not sure exactly when I realized I was not feeling like a Macy's Day float anymore. A few months maybe?

Everyone heals at different rates.

Hang in there. :)

IrishHeart Veteran

Long before I became very ill from celiac, I was ...shall I say it? okay...I was chubby. :lol: I topped off at 215. At 5'4", that is NOT good. I always felt swollen, had sore joints, you name it. No diet worked. I tried hard to lose that puffy body.

Then, I became very ill, dropped a whopping 90 lbs. without trying...my ribs were showing, I looked emaciated, but I still had edema.

Get Dxed, go gluten-free.

Still have edema.... hmm....what's going on?

Nothing, it's just inflammation and...then, I noticed GRADUALLY ....no swollen fingers, face, knees, feet, or ankles....

When do I see it come back? accidental glutening :blink:

and sometimes --and this is just me!!--if I have too many carbs, too much shellfish or foods high in MSG, salicylates and preservatives. Which is why I avoid them.

Those are not true allergies in me (I was tested) --

they are just foods that are too much for my gut to process right now--and they give me what "feels like" an allergic response.

Everyone is different and no one can say for sure when your symptoms will resolve.

frieze Community Regular

hmm, I would wonder about protein malabsorbtion? maybe some pancreatic enzymes; and definetly low carb.

IrishHeart Veteran

Agree! and yes, I use enzymes, too!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

I had this bookmarked from Glutenfreeworks...and maybe it will be of some help?

Edema

Emilem Apprentice

thank you! very helpful!

I had this bookmarked from Glutenfreeworks...and maybe it will be of some help?

Edema

IrishHeart Veteran

okay, hon--best wishes! :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,532
    • Most Online (within 30 mins)
      7,748

    Steve Hall
    Newest Member
    Steve Hall
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
    • Scatterbrain
      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
    • Jmartes71
      Yarrow Pom works really well with the skin issues I found out.I had to stop so my doterra because dealing with medical celiac circus. I had shingles in Feb 2023. Prayers for healing 
    • cristiana
      More great tips, and a good excuse to shop at M&S and also buy more iced buns!   I wish we had an ASDA near us, as the few times we've been to one their gluten-free pasta range seemed very reasonably priced compared to other shops.  Thanks so much, @Russ H.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.