Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help With Possible Dairy Intolerance


kaki-clam

Recommended Posts

kaki-clam Enthusiast

After many months of narrowing it down, i think i have dairy issues. Seems like i'm fine if i eat say gluten free bread that has milk in it, but if i were to have ice cream, or lots of cheese i am not.

I have read that you can't test for dairy issues.....does anyone else experience this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Metoo Enthusiast

Thats the way I am. I believe I am lactose intolerant. I can't have raw milk at all. Ice Cream I do eat, but I feel awful for hours later on. I can handle cheese in small amounts, yogurt and things that milk is in (baked goods)...but basically I try to only eat a small amount of these things.

kaki-clam Enthusiast
<br />Thats the way I am.
IrishHeart Veteran

So Delicious Coconut milk, creamer, ice cream and yogurt.

High calcium and tastes great!

Bubba's Mom Enthusiast

The enzyme that breaks down the lactose in dairy products is made on the tips of the villi. If you have any villi damage, lactose will give you trouble.

Some people take a supplement that helps break it down if they feel the need to continue eating it.

Yogurt and some cheeeses have the lactose processed out when they are made, so you could still eat them. If those bother you, you may have a problem with casein..the protein in milk?

If you take away whichever dairy bothers you, you may be able to enjoy it again once you've healed.

I ditto IrishHeart on the SoDelicious coconut milk. I get the vanila flavored milk for my cereal..it's yummy!

For a butter substitute I use Earth Balance soy free spread.

kaki-clam Enthusiast
<br />The enzyme that breaks down the lactose in dairy products is made on the tips of the villi. If you have any villi damage, lactose will give you trouble.<br />Some people take a supplement that helps break it down if they feel the need to continue eating it.<br /><br />Yogurt and some cheeeses have the lactose processed out when they are made, so you could still eat them. If those bother you, you may have a problem with casein..the protein in milk? <br /><br />If you take away whichever dairy bothers you, you may be able to enjoy it again once you've healed.<br /><br />I ditto IrishHeart on the SoDelicious coconut milk. I get the vanila flavored milk for my cereal..it's yummy!<br />For a butter substitute I use Earth Balance soy free spread.<br />
<br /><br /><br />

can you cook with that butter like regular butter? is there a better choice for cooking?

IrishHeart Veteran

<br /><br /><br />

can you cook with that butter like regular butter? is there a better choice for cooking?

Yes, like Bubba's Mom (or BM as I have called her for short on threads, but she probably does not like that :lol: )---

I use the Earth Balance Soy free too.

You can cook with it and use it in baking, too.

Works great. It's a blend of healthy omega oils.

It's not my favorite flavor, to be honest, but until I could tolerate dairy, it was very helpful! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AVR1962 Collaborator

Aged cheeses do not have lactose, the aging process loses the lactose (sugar), say is true for your good yogurts that are all sugar. If cheddar cheese is bothering you I would say it was lactose. If age cheese like parmesian (actual brick) is bothering you I would say it is casein (protein). There's other things in ice cream besides lactose they could be bothering you as well like beans such as guar or bean gum, I cannot eat them. If you cannot eat butter I do not suggest anything that can sit in the fridg and never grow mold as there is too many chemicals. Switch to a nut spread. If you are baking use shortening or oil instead when you can, margarine is really not a healthy food. If you want to try milk that is lactose free be very aware that other ingredients are put in almond, soy, coconut milk....things like carrageenan and the gums. The lactose enzymes do work. I was on them for a year, doing much better now.....still cannot drink the lactose free milk because of the gums. Read labels and let your body tell you the rest.

Bubba's Mom Enthusiast

<br /><br /><br />

can you cook with that butter like regular butter? is there a better choice for cooking?

I haven't tried baking with the Earth Balance. I use it on baked potatoes, veggies, stuff like that.

For baking, or gluten-free Krispy Treats I use coconut oil. The good kind..like Nutiva(organic, pure) It has a lot of health benefits, so I use it quite a bit instead of butter,and for browing meats, etc.

IrishHeart Veteran

I used it the EB in baked goods, bread, muffins, etc. It worked fine.

Skylark Collaborator

can you cook with that butter like regular butter? is there a better choice for cooking?

I asked this question recently on a food intolerance message board I'm on. Almost everybody who is dairy-sensitive, even people who are extremely sensitive, can tolerate ghee. It has a rich butter flavor and it's great for sauteeing. You can find it at Indian food stores or make your own from unsalted butter.

IrishHeart Veteran

I asked this question recently on a food intolerance message board I'm on. Almost everybody who is dairy-sensitive, even people who are extremely sensitive, can tolerate ghee. It has a rich butter flavor and it's great for sauteeing. You can find it at Indian food stores or make your own from unsalted butter.

I used ghee, too without issues. :)

pricklypear1971 Community Regular

I asked this question recently on a food intolerance message board I'm on. Almost everybody who is dairy-sensitive, even people who are extremely sensitive, can tolerate ghee. It has a rich butter flavor and it's great for sauteeing. You can find it at Indian food stores or make your own from unsalted butter.

Ghee is great!

Only caveat is that if you are trying to avoid inflammatory foods, ghee is out because it's an animal fat. But if lactose/casein is your concern then ghee away. I love it.

Skylark Collaborator

Ghee is great!

Only caveat is that if you are trying to avoid inflammatory foods, ghee is out because it's an animal fat. But if lactose/casein is your concern then ghee away. I love it.

I've seen info that the butyric acid and other short-chain fatty acids found in butter and ghee are anti-inflammatory. :) I don't think ghee would be included in the animal fat/inflammation link. It's just good stuff all around!

The long-chain saturated fatty acids, especially stearic acid in grain-fed beef, are definitely an issue for inflammation.

kaki-clam Enthusiast
<br />Ghee is great!<br /><br />Only caveat is that if you are trying to avoid inflammatory foods, ghee is out because it's an animal fat. But if lactose/casein is your concern then ghee away. I love it.<br />
<br /><br /><br />

I am still pretty new to figuring out the dairy intolerance, i will still need to narrow it down as to whether it's lactose or casin, i am pretty sure it's lactose, but not 100%. I am off on vacation next week and on a cruise, so i am not going to go crazy over this til i get back.

i really appreciate all the help. I am going to go dairy free the minute i get home from vacation and see if it helps!

IrishHeart Veteran

I've seen info that the butyric acid and other short-chain fatty acids found in butter and ghee are anti-inflammatory. :) I don't think ghee would be included in the animal fat/inflammation link. It's just good stuff all around!

Yes, I used ghee with the understanding that it is an ANTI-INFLAMMATORY.

"Ayurveda medicine has traditionally used ghee in place of butter for its various healing benefits, according to Yoga Journal online. One benefit of incorporating ghee into the diet is its anti-inflammatory properties. Ghee is thought to naturally lubricate connective tissues in the body, which can help to improve flexibility and provide the body with essential antioxidants. This effect is especially helpful for healing, as the formula can enhance the immune system to reduce inflammation, speed the recovery of wounds and heal blisters"

pricklypear1971 Community Regular

I've seen info that the butyric acid and other short-chain fatty acids found in butter and ghee are anti-inflammatory. :) I don't think ghee would be included in the animal fat/inflammation link. It's just good stuff all around!

The long-chain saturated fatty acids, especially stearic acid in grain-fed beef, are definitely an issue for inflammation.

I'll try to find the link to where I found it...but I swear you hear 20 things all different.

I turned down a share in a milk cow because I'm trying to cut dairy. I wouldn't drink the milk, but I'd sure make ghee and yogurt and butter. And ice cream and cheese...

I think grass-fed milk is better for you than even grain fed organics (at least that's what "they" say)....

Skylark Collaborator

No need to dig up links. I've read 20 things all different too. :lol: It's looking up butyric acid on Pubmed and seeing good things that convinced me ghee/butterfat is a good fat (in moderation of course). I also think there is a lot of wisdom accumulated in the 5,000 years of ayurveda and they hold ghee in very high regard for its healing properties.

I've also read the same thing you have that grass-fed > grain-fed organic > conventional as far as vitamin K2 and and omega-3 fatty acids. The tradeoff of course, is that there can be more pesticide residue in the non-organic, grass-fed milk.

pricklypear1971 Community Regular

No need to dig up links. I've read 20 things all different too. :lol: It's looking up butyric acid on Pubmed and seeing good things that convinced me ghee/butterfat is a good fat (in moderation of course). I also think there is a lot of wisdom accumulated in the 5,000 years of ayurveda and they hold ghee in very high regard for its healing properties.

I've also read the same thing you have that grass-fed > grain-fed organic > conventional as far as vitamin K2 and and omega-3 fatty acids. The tradeoff of course, is that there can be more pesticide residue in the non-organic, grass-fed milk.

Problem is I'm in AZ and grass fed is uh, not likely. I can get raw milk from a farmer (and she's babied beyond belief-one happy Jersey) and she has a pasture, etc but grass is just not here.

Sigh.

Oh well, it's good to know ghee is a "go"! Thanks!!

Juliebove Rising Star

I don't know where you read that you can't test for dairy intolerances. You can. I have been tested. I am intolerant.

IrishHeart Veteran

There is, indeed, a lactose intolerance test.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,156
    • Most Online (within 30 mins)
      7,748

    Shrub
    Newest Member
    Shrub
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.