Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Help.


TomC

Recommended Posts

squirmingitch Veteran

Ice pack on your forehead Tom. Sorry you're having the headaches.sad.gif Yes, people report headaches while going through withdrawal. and for what it's worth I had a lot of that shaky feeling a lot of the time. And being able to hear your heart beat --- very annoying.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

I agree with the icepacks. Try to stick it out. Normally it (the heavy withdrawal) does not last too long (although every day can seem too long :rolleyes: )

TomC Rookie

Thanks everyone! You're helping me stay calm!

  • 2 weeks later...
TomC Rookie

Hey guys, I need some advice again.

I went gluten/dairy free about three weeks ago.

Before going gluten free I suffered with digestion problems, hand and joint pain.

After going gluten free, as I wrote in earlier posts, I had weird withdrawal symptoms. Headaches, muscle twitching and shaking at night. All of those symptoms have gone away now on week three. No more headaches, no more shoulder and hand pain.

But now my back is in terrible discomfort. Last week I did a light work out and the next day it seemed to have messed with a nerve on my back. It wasn't so bad but each day of going to work made it worse, until yesterday I couldn't take it no more. Now I can barely do anything.

Does this sound like a withdrawal symptom or more like nerve damage? I'm thinking the gluten attacked my nerves and they are/were super sensitive.

pricklypear1971 Community Regular

All is fair in love, war and gluten.

All I can tell you is that for the first 6 months weird crap is going to happen. I thought I'd wake up one morning with wings sprouting out of my back.

Your body is "rebooting". It will make a few bad starts if you know what I mean??

Start tracking your food - that will help you pinpoint an additional food issue if you have one. And drink water. Lots of it.

You may notice weird stuff, just try to breathe deep and realize most of it will pass.

I don't remember if you had your vitamin levels checked or not, but if you didn't you should- and you may need some supplaments: iron, b's, d, cal/mag, k.

TomC Rookie

Thanks. Six months is a long time. I have a job and only so much sick time left ! But I guess I have no choice but to deal with it.

I have an appointment next week with the doctor. Right now I am supplementing with multivitamins and other supplements. I pretty much eat as healthy as I possibly can...Organic foods, totally gluten free.

pricklypear1971 Community Regular

Everyone makes their way through this. Have you read the fitness board here? there may be some hints in there.

Personally, I notice gluten makes a big difference in stamina and cramps. It's where I feel it first. Perhaps you're just going to have to take it easy for a while.

And alternate hot and cold on the painful area. Mostly cold. What about a good masseuse?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



TomC Rookie

Alright thank you for the all the responses.

I been staying out of the fitness section because it depresses me to read about fitness and nutrition when I feel like I can't even move very well. haha.

A masseuse would be nice right about now.

squirmingitch Veteran

Tom, FWIW, I (hope) have just finished (fingers & toes crossed) going through weird stuff like body parts that out of nowhere swell up, get red, won't move, or you scream when you try to move them. It might last a couple hours or 3 or 4 days. You never know. One day I would drag a leg around then be fine for a week then BOOM! the back of my hand would swell & be as painful as all get out. Weird stuff.

When it happens just go with the flow & try not to panic. Lay down, use a heating pad or an ice pack or a shot or two or three laugh.gif or whatever makes you feel better if anything. Breathe. And keep breathing.

frieze Community Regular

Thanks. Six months is a long time. I have a job and only so much sick time left ! But I guess I have no choice but to deal with it.

I have an appointment next week with the doctor. Right now I am supplementing with multivitamins and other supplements. I pretty much eat as healthy as I possibly can...Organic foods, totally gluten free.

Are your supplements gluten free? and egg free?

TomC Rookie

Are your supplements gluten free? and egg free?

Yes, all of my supplements are gluten free. I barely cut eggs from my diet about a week into being gluten free after noticing I'd have lower back pain the next morning every time I ate some eggs.

MitziG Enthusiast

Ditto the above. When you go off gluten, it is like your body systems kind of go into shock. They don't know how to function properly. It takes time. Just relax, tell yourself weird stuff is gonna happen for a few months.

It is unlikely you have any permanent nerve damage. Get your vit levels checked, rest, relax and ride it out. It gets better. I promise.

TomC Rookie

Hey thanks everyone for the responses. It really helped in keeping me calm in one of the worst times of my life. I struggled for months not knowing what was wrong with me.

Because of the kind of work I do, I am trying to see a chiropractor just to make sure things are in order. I never thought gluten would cause such a wide range of symptoms, from my stomach, hands, shoulders and now my back!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Xravith posted a topic in Introduce Yourself / Share Stuff
      0

      Do Gluten Enzymes actually work?

    2. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      25

      Shingles - Could It Be Related to Gluten/ Celiac

    3. - Adeling commented on Scott Adams's article in Product Labeling Regulations
      2

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

    4. - Sue7171 replied to Ginger38's topic in Related Issues & Disorders
      25

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - sc'Que? commented on Scott Adams's article in Product Labeling Regulations
      2

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,177
    • Most Online (within 30 mins)
      7,748

    Charlene Kearley
    Newest Member
    Charlene Kearley
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Xravith
      Hi everyone, I decided to post this since there's no enough online information. I'm concerned about the enzyme capsules that are said to help digest gluten.  I'm waiting to end my university exams to start the gluten challenge and do the official diagnosis for Celiac Disease. A friend of mine suggested me to buy the "Gluten Digest Now" capsules during the Gluten Challenge to manage my severe side effects. But I'm not sure if it's worth it, if it's celiac disease the intestinal damage will occur regardless.  What about the symptoms? There's someone that knows if it could help to reduce them?  I’m worried people might be using these as a "safety net" without understanding how they work. Has anyone here used them during a challenge? Did they make a difference, or did they just provide a false sense of security?
    • Flash1970
      Try heallix solution. It's at heallix.com It's a silver and fulvic acid solution.  I just put it on a cotton ball and wiped the shingles area. I also took a little internally once a day. I can't remember how many times a day I applied to the area. Probably  3-4 times a day. It was the only thing that stopped the nerve pain. I don't know if the vaseline is good.  The shingles need to dry out and heal.  Wash everything that comes in contact  with them in hot water. Don't use or wear anything twice. 
    • Sue7171
      My husband just had shingles going on 7 weeks now. We had been putting Vaseline on the blisters and lidocaine cream and he was prescribed an antiviral.  Also he still has the nerve pain it was bad and is getting better it is his upper left torso. His dr prescribed gabapentin 300mg 3x a day and he's also taking naproxen 500ng 2x a day and tylenol 1000mg every 6 hrs. Hope this helps  The lidocaine cream is by tylenol and is available in a large tube on Amazon or at Walmart 
    • xxnonamexx
      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.