Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

100 (or More) Things To Do When You Are Glutened


Guest BERNESES

Recommended Posts

Guest BERNESES

I'll start:

1. Take a nap

2. Pet your pets or borrow one

3. Call a friend who will listen to you (spread out the wealth)

4. Watch some comedy ( I LOVE John Stewart's Daily Show- so irreverent)

5. Watch Sex and the City

6. Look in the mirror and tell yourself it will pass.

7. Come to this site and vent.

8. Read a magazine you'd never really read (like the National Enquirer)

9. Draft a letter to a company or place you are really grateful too because they either have gluten-free products or labels that won't fool you (mail it later when you have the energy)

10. Make a list of 10 things you are really grateful for.

Who's up next? Thanks, Beverly


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

11. Have a really good cry

12. Come to this message board :)

13. Look over my old journals to remember how bad I *was* compared to now.

14. Do some yard work

15. Take a hot bath

16. Go to the sauna

17. Take my dog for a walk

18. Sleep...sleep...sleep (oh was that already mentioned?)

19. Read a good magazine (scrapbooking or People)

20. Listen to music

burdee Enthusiast

I can add a few more ideas:

21. Make a pot of really strong herbal peppermint tea and DRINK IT!

22. Do yoga positions which focus on abdominal area.

23. Put on really loose, comfortable, but attractive, clothes.

24. Drink warm water or herbal tea (besides peppermint) continuously.

25. Ask a family member, housemate or spouse to give you a hug.

26. Vent your feelings in an email to an understanding celiac friend.

27. Watch Funniest Animal Videos.

28. Mentally trace the source of your contamination and vow to avoid (or substitute for) that food or cross contamination incident in your own kitchen or restaurant where you were 'glutened'.

29. Take a hot shower and focus the water stream on the painful area.

30. When/if you feel hungry, ask your stomach what would feel really comfortable and easy to digest and then only eat/drink enough to satisfy hunger.

mandigirl1 Enthusiast

31. Put a heating pad on your stomach.

32. Drink camomille tea.

33. Eat bland food like white rice or potato to "push down" the BM.

34. Vent to someone close to you about it.

35. Write down your feelings in a journal.

36. Have a friend or family member tell you jokes to make you laugh.

37. Play with your pet, if you have one.

38. Retrace back to what you ate and promise to eat healthy.

39. Lay in a fetal position on the bed/couch.

40. CRY!!!!!! Let it all out! You'll feel better!

2old4 Rookie

I hope this edited okay, Mandigirl snuck one in on me while I was thinking, ha, ha!

41. Snuggle up on the couch with lots of pillows.

42. Call your Momma.

43. Drink some Coke, burp big!

44. Thank God we have a reaction so we know we're doing damage (some don't have this)

45. Tell yourself, this bloat will go away, I'm not this fat!

46. Remember, last year (or pre-gluten-free) this happened all the time.

47. Watch that cartoon with your child you haven't had time for yet.

48. Remind yourself, I need to take time like this when I'm not sick, to just relax.

49. Watch "National Lampoon's Christmas Vacation" and laugh like hell!

50. And remember, you're not alone...Thanks Beverly

mandigirl1 Enthusiast

Good ideas!!!!!

LOL about posting our blog at the same time!!!

happygirl Collaborator

I don't have a whole ten to add as mine mainly consists of SLEEPING and....

51. Have your darling significant other give you a massage....it is the only thing that helps my muscle/bone pain temporarily. Even for those w/o the pain, hey, you are still getting a massage from your sweetie! :)

52. After you've called your mom, call your grandma! "Older" people can relate to the chronic pain and are so sweet and caring. Plus, you know you'll get an extra mention in her prayers that day, so that always helps!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



burdee Enthusiast

Reading the suggestion about watching "National Lampoon's Christmas Vacation" (I laugh just thinking about that one) reminded me of another funny movie which I saw BEFORE I learned I was celiac, but while I was continually tormented by loud, embarrassing gas. One especially fitting scene from "Hot Shots Part Deux" featured scuba divers who were trying to sneak underwater past a boat where enemy soldiers stood guard. Just when the divers were passing under the boat, the narrator says "And then it happened ..." and a whole bunch of bubbles float up to the surface from one of the divers. The scene makes it look like those were intestinal gas bubbles. You would expect that the enemy would discover the divers from the bubbles. However the next scene depicts all the enemy soldiers keeling over (fainting) and falling off the boat as the bubbles surface. :lol: So that takes care of the enemy and the divers go unnoticed. The first time I saw that scene, I laughed so hard I was literally rolling on the floor. :D I'll have to rent that movie the next time I suffer a contamination episode. ;)

BURDEE

Guest BERNESES

Oh my God! That's awesome- I've got to SEE that! I did threaten to fart my husband out of the bed last night. I haven't been successful yet, but I've come darn close!

Wow! we're up to 50. That's awesome! Thanks everyone.

Kenster61 Enthusiast

53) have some gluten free chicken soup :P .

Guest BERNESES

Oh yeah!

54. Go watch something you enjoy (have someone take you if you're too tired to get there). I went to a horse show this weekend and it cheered me up so much.

burdee Enthusiast

I noticed we got stuck at #54, so I thought I should add a few more to get this topic rolling again ... ;)

55. As mentioned in my post, watch "Hot Shots Part Deux" for celiac humor. :lol:

56. Call a celiac friend who shares your SAME SYMPTOMS and ask her to 'talk you through the pain' (my best celiac friend makes me laugh during waves of dairy cramps).

57. Look through gourmet gluten-free cookbooks (like Karen Robertson's "Cooking Gluten Free") for ideas to cook when your appetite returns. :blink:

Anybody else have any different ideas? I want to print this topic out when we have 100 ideas, because I will facilitate a discussion at my next celiac support group meeting about 'coping with contamination, confusion and consternation'. We only need 43 more ideas ... :lol:

BURDEE

Guest BERNESES

Thanks Burdee! Good thinking.

58. Fart, fart, fart.

59. Call a friend who doesn't have Celiac's and makes you laugh. I talk to my friend Niki who also has an auto-immune disorder, and she refers to it as "Celeriac's" and we joke about how I wish it was a celery intolerance because I HATE celery.

60. Plan something fun for the first day you feel better.

61. Plan your dream vacation. When I want to escape my body, I go online and research all the places I want to travel in this life. last time, I planned my dream vacation to Paris and you know what, I just might do it.

62. Watch a sappy movie. I just watched "Shall we Dance?" with Richard Gere and JLo and I'll admit it, it made me happy.

63. If you're not too ill, do something nice for someone else.

64. If you can, get a pet- a fish, a cat, a dog. It gives you something to focus on besides yourself and fish are wonderful stress reducers.

65. Tell someone who has been supportive of you during this and tell them how much you appreciate their support.

ponita Newbie

66. Watch Meg Ryan in "French Kiss" have her "lactose intolerance" scene on the train with Kevin Kline. While she's eating the cheeses on the bread, I dying, then when she starts have spasms I'm crying but nothing compares to her walk afterwards, I've been there SO many times until I found out I too was Lactose intolerant.

67. Make something with your hands. I string jewelry and it's great for my mental attitude.

68. Read some of the old classics, such as Tom Sawyer or a Nancy Drew story.

What fun!

Melissa

burdee Enthusiast

The idea about getting a pet reminded me of a few more ...

69. Visit a pet store, even if you don't have time or money to have your own. I especially like whistling at the cockateils and dream of having one someday when I have more time and energy. :)

70. If you're feeling well enough to walk around, go to a local zoo. Nobody will notice when you pass gas, because there are so many animal smells already. :lol:

71. Clean out closets, box clothes to donate, transfer summer to winter storage, etc., if you feel too awful to go anywhere, but don't want to sit and stew.

72. Look online for a local celiac support group or consider starting one of your own. I decided to assume leadership of my local group (which was floundering after our previous leader resigned) when I was sick for a whole week, after cross contamination in my own kitchen. :blink:

BURDEE

YankeeDB Contributor

73. Take deep breaths, breathing in through your nose and blowing out gently and slowly through your mouth. Very soothing and eases pain.

74 Take Immodium if you absolutely cannot have any downtime.

75. Read a good book.

76. Listen to your favorite music.

78. Watch the news -- so many have it so much worse.

79. Indulge in your favorite gluten-free treat food.

80. Lie in a comfortable position and moan and groan.

pogirl1786 Apprentice

81.) Watch too many epsiodes of your favorite show on DVD.

82.) Call your friend who let's you know that it's totally okay to feel awful and cry to let it all out.

83.) Remember other times when you've been so sick and someone has done something nice for you to make you feel better.

84.) As has been mentioned many times- sleep!

85.) Put on your favorite hoodie sweatshirt and sweat pants.

86.) Walk slowly and focus on making it through the next minutes, instead of our usual fast-pace of thinking about things weeks in advance.

87.) Watch or listen to something that makes you laugh so hard you cry.

88.) Buy yourself some more sweat pants.

89.) Cuddle with your pets!

90.) Know that even though you feel absolutely horrible right now, and the pain doesn't seem like it will ever pass- that it will get better!

VegasCeliacBuckeye Collaborator

91. Take a hot bath with sweet smelling soaps to cover the deadly-smelling bubbles

92. Jump in a whirpool with a friend and don't tell them about the gluten incident (gee whiz, this whirpool stinks - haha)

93. Exercise, exercise, exercise -- get the bad stuff through the system and get your metabolism going

94. Healthy Dose of Pepto for the bad days...."the one that coats..."

95. Write the company that glutenized you a nasty letter/e-mail :)

96. Take a trip to Whole foods/Wild Oats/Henry's/Trader Joes to pick something out for later.

97. Massage your belly, Massage your belly, Massage your belly

98. Bake homemade gluten free Mac N Cheese

99. Make Homemade Ice Tea -- Yummy!

100. The last one has to be a good one --- Consumate your marriage or relationship -- Hey, its just like pizza -- even when its pretty bad, its still pretty good !! HAHA

burdee Enthusiast

WOW!!! Thanks everybody. Now I can share these 100 suggestions at my support group meeting in October. We really DO know how to get through those contamination episodes and even learn to prevent future ones! :rolleyes:

BURDEE

FaithInScienceToo Contributor

Just wanted to add a reply to this...

Really, just to keep this post fresh, so am moving it back to the top of the list with my reply, since this is such a good one for the newbies to read.

[Also, am emailing this one to myself, for future reference ;-) ]

Thanks for all of the good ideas!

Gina

Guest BERNESES

Yeah!!!!! We did it! Nice work everyone!

Nicolette Rookie

How about...

Start a cross-stitch kit? The things are so damned complicated at times, it'll take your mind off of anything!

Nikki

FaithInScienceToo Contributor

Just moving this one back to the top again, since it is SUCH a good one for newbies to see... (hope that's OK with the site's Admin) -

Actually, maybe we can have a place where the site admins keeps these kinds of threads - the best ones for newbies? So, we don't have to re-generate the info over and over again....?

Just a thought -

Gina

toxemicfrog Rookie

just finished reading the 100....i sleep sleep sleep, watch vids and usually cos im so crook i go on ebay and look at all the pretty gems and dresses....window shopping from home and i can burp from the backside as much as i want cos its only my dog who smells it and she thinks its great anyway...heheheheeh...im sure she thinks it is channel au de canine hehehehehehehe.

great ways to cope though thanks...am just getting over (3 days off work) an accidental glutening from my own kitchen...am learning though.

have a great day :D

Guest BERNESES

i'm so glad we kept this going!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Borky posted a topic in Dermatitis Herpetiformis
      0

      Gluten food test strips

    2. - Wheatwacked replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Going for upper endoscopy today

    3. - Midwesteaglesfan posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Going for upper endoscopy today


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,268
    • Most Online (within 30 mins)
      7,748

    Cookie Monster13
    Newest Member
    Cookie Monster13
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Borky
      I just recently saw something on this.  Has anyone tried test strips?  Which brand is better?  Not sure how they really work and if they really do work.  Thank you, Nancy (aka Borky)
    • Wheatwacked
    • Wheatwacked
      Hello @Midwesteaglesfan and welcome. A result greater than 10 U/mL is considered positive. Some labs use 15 as the cutoff, but 34 is in the positive.  The endoscopy and biopsy is looking for damage to your small intestine.  I don't don't think 5 days is enough to repair the damage. This comment is effectly your answer, regardless of your biopsy results.  The endoscopy has been the Gold Standard diagnostic, and most healthcare providers won't diagnose celiac disease until your intestinal lining Marsh Score reaches stage 3. You don't really want to wait for the damage to get worse, especially since only five days mostly gluten free gave you relief.  Yes, migranes is one of the 200 symptoms that may be caused by Celiac Disease. Malabsorption Syndrome is often comorbid with celiac disease.  The western diet is deficient in many vitamins and minerals.  That's why gluten processed foods are fortified.  Gluten free processed foods are not; Vitamin D deficiency is a virtual given.  40 to 60% of the industrial population is deficient in vitamin D, Damage to the intestinal lining from celiac disease can decrease the number of vitamin D receptors.  So now you get no vitamin D from the sun (skin cancer scare) the major source of vitamin D, plus absorbtion from food is poor because of intestinal damage.   Low iodine intake is getting more of a concern because the major source of iodine used to be bread (dough conditioner with iodine was stopped in the US in the 1970s), dairy (lactose intolerance from eating quick pickles with vinegar instead of fermented pickles which supply lactase excreting lactobacillus to improve Lactose intolerance. Commercial Dairies have wheat, barley and rye added to the cow feed. Some say they are sensitive to milk protein, but it is the gluten added to supplement the cow feed to increase milk production that becomes part of the milk protein causing the problem.  And people use less iodized salt.  In the US intake of iodine dropped 50% from 1970 to 1984. Switch to Grass fed only milk and consider supplementing Liquid Iodine drops to your diet.  The omega 6 to omega 3 ratio of commercial milk is 5:1; Organic milk is 3:1 and grass fed milk is 1:1. The typical western diet is around 14:1, optimum for humans is 1:1.  Wheat flour is 22:1 omega 6:3.  Choose vegetables lower in omega 6, it is inflammatory. Eat fermented foods and switch to Grass fed only milk.  Some say they are sensitive to milk protein, but it is the gluten added to supplement the cow feed to increase milk production that becomes part of the milk protein.   
    • Midwesteaglesfan
      At 41 years old I have been fighting fatigue and joint pain for a couple months.  My family doctor kept saying nothing was wrong but I was insistent that I just didn’t feel right.  Finally after running several blood labs, one came back showing inflammation in my body and I was referred to a rheumatologist.  He was extremely thorough and sat with me and my family for a good hour asking questions and listening. He ordered X-rays of all my joints and more bloodwork.  He suspected some sort of reactive inflammatory arthritis.  My TTG (Tissue Transglutaminase) came back at 34. he told me to try going gluten free and out me on Salfasalzin to help the join inflammation.  Over the next couple days going gluten free and doing a lot of research and talking to people with celiacs,  we found that I should have an upper endoscopy for insurance purposes in the future.  I reached back out to my rheumatologist and expressed this concern and he got back to me stating I was correct and resume regular gluten diet and stop the medication until after that scope.     They were able to schedule me in for 2 days later.  I had been gluten free, or as close to it as I could be for about 5 days.  I know I ate some brats with it but wanted to use them up.  My symptoms had gotten slightly better in those 5 days.  I felt less fatigue and joint pain was slightly better(it had gotten really bad) so for these last 2 days I’ve gone crazy with wheat bread, pasta and such.  I’m hoping those 5 days didn’t screw this endoscopy up.  I can’t imagine after a life of gluten, my intestines healed in 5 days and after eating gluten again for these couple days,  my stomach hurts, joint pain is coming back up so I know the inflammation is there.   Hinesight after this diagnosis, I have had chronic migraines since my late teens.  Has that been a lingering symptom of celiacs all these years?  I’ve never really had the stomach issues, for me it came in heavy these last couple months as the fatigue, just always feeling tired and exhausted.  And the joint pain.     So getting in the car for the 2 hour drive to the hospital for this scope now.     Wish me luck!
    • marlene333
      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.