Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

100 (or More) Things To Do When You Are Glutened

Guest BERNESES

By Guest BERNESES
in Coping with Celiac Disease

Recommended Posts

Guest BERNESES
Guest BERNESES
Posted

I'll start:

1. Take a nap

2. Pet your pets or borrow one

3. Call a friend who will listen to you (spread out the wealth)

4. Watch some comedy ( I LOVE John Stewart's Daily Show- so irreverent)

5. Watch Sex and the City

6. Look in the mirror and tell yourself it will pass.

7. Come to this site and vent.

8. Read a magazine you'd never really read (like the National Enquirer)

9. Draft a letter to a company or place you are really grateful too because they either have gluten-free products or labels that won't fool you (mail it later when you have the energy)

10. Make a list of 10 things you are really grateful for.

Who's up next? Thanks, Beverly

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rachel--24 Collaborator
Rachel--24
Posted

11. Have a really good cry

12. Come to this message board :)

13. Look over my old journals to remember how bad I *was* compared to now.

14. Do some yard work

15. Take a hot bath

16. Go to the sauna

17. Take my dog for a walk

18. Sleep...sleep...sleep (oh was that already mentioned?)

19. Read a good magazine (scrapbooking or People)

20. Listen to music

burdee Enthusiast
burdee
Posted

I can add a few more ideas:

21. Make a pot of really strong herbal peppermint tea and DRINK IT!

22. Do yoga positions which focus on abdominal area.

23. Put on really loose, comfortable, but attractive, clothes.

24. Drink warm water or herbal tea (besides peppermint) continuously.

25. Ask a family member, housemate or spouse to give you a hug.

26. Vent your feelings in an email to an understanding celiac friend.

27. Watch Funniest Animal Videos.

28. Mentally trace the source of your contamination and vow to avoid (or substitute for) that food or cross contamination incident in your own kitchen or restaurant where you were 'glutened'.

29. Take a hot shower and focus the water stream on the painful area.

30. When/if you feel hungry, ask your stomach what would feel really comfortable and easy to digest and then only eat/drink enough to satisfy hunger.

mandigirl1 Enthusiast
mandigirl1
Posted

31. Put a heating pad on your stomach.

32. Drink camomille tea.

33. Eat bland food like white rice or potato to "push down" the BM.

34. Vent to someone close to you about it.

35. Write down your feelings in a journal.

36. Have a friend or family member tell you jokes to make you laugh.

37. Play with your pet, if you have one.

38. Retrace back to what you ate and promise to eat healthy.

39. Lay in a fetal position on the bed/couch.

40. CRY!!!!!! Let it all out! You'll feel better!

2old4 Rookie
2old4
Posted

I hope this edited okay, Mandigirl snuck one in on me while I was thinking, ha, ha!

41. Snuggle up on the couch with lots of pillows.

42. Call your Momma.

43. Drink some Coke, burp big!

44. Thank God we have a reaction so we know we're doing damage (some don't have this)

45. Tell yourself, this bloat will go away, I'm not this fat!

46. Remember, last year (or pre-gluten-free) this happened all the time.

47. Watch that cartoon with your child you haven't had time for yet.

48. Remind yourself, I need to take time like this when I'm not sick, to just relax.

49. Watch "National Lampoon's Christmas Vacation" and laugh like hell!

50. And remember, you're not alone...Thanks Beverly

mandigirl1 Enthusiast
mandigirl1
Posted

Good ideas!!!!!

LOL about posting our blog at the same time!!!

happygirl Collaborator
happygirl
Posted

I don't have a whole ten to add as mine mainly consists of SLEEPING and....

51. Have your darling significant other give you a massage....it is the only thing that helps my muscle/bone pain temporarily. Even for those w/o the pain, hey, you are still getting a massage from your sweetie! :)

52. After you've called your mom, call your grandma! "Older" people can relate to the chronic pain and are so sweet and caring. Plus, you know you'll get an extra mention in her prayers that day, so that always helps!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


burdee Enthusiast
burdee
Posted

Reading the suggestion about watching "National Lampoon's Christmas Vacation" (I laugh just thinking about that one) reminded me of another funny movie which I saw BEFORE I learned I was celiac, but while I was continually tormented by loud, embarrassing gas. One especially fitting scene from "Hot Shots Part Deux" featured scuba divers who were trying to sneak underwater past a boat where enemy soldiers stood guard. Just when the divers were passing under the boat, the narrator says "And then it happened ..." and a whole bunch of bubbles float up to the surface from one of the divers. The scene makes it look like those were intestinal gas bubbles. You would expect that the enemy would discover the divers from the bubbles. However the next scene depicts all the enemy soldiers keeling over (fainting) and falling off the boat as the bubbles surface. :lol: So that takes care of the enemy and the divers go unnoticed. The first time I saw that scene, I laughed so hard I was literally rolling on the floor. :D I'll have to rent that movie the next time I suffer a contamination episode. ;)

BURDEE

Guest BERNESES
Guest BERNESES
Posted

Oh my God! That's awesome- I've got to SEE that! I did threaten to fart my husband out of the bed last night. I haven't been successful yet, but I've come darn close!

Wow! we're up to 50. That's awesome! Thanks everyone.

Kenster61 Enthusiast
Kenster61
Posted

53) have some gluten free chicken soup :P .

Guest BERNESES
Guest BERNESES
Posted

Oh yeah!

54. Go watch something you enjoy (have someone take you if you're too tired to get there). I went to a horse show this weekend and it cheered me up so much.

burdee Enthusiast
burdee
Posted

I noticed we got stuck at #54, so I thought I should add a few more to get this topic rolling again ... ;)

55. As mentioned in my post, watch "Hot Shots Part Deux" for celiac humor. :lol:

56. Call a celiac friend who shares your SAME SYMPTOMS and ask her to 'talk you through the pain' (my best celiac friend makes me laugh during waves of dairy cramps).

57. Look through gourmet gluten-free cookbooks (like Karen Robertson's "Cooking Gluten Free") for ideas to cook when your appetite returns. :blink:

Anybody else have any different ideas? I want to print this topic out when we have 100 ideas, because I will facilitate a discussion at my next celiac support group meeting about 'coping with contamination, confusion and consternation'. We only need 43 more ideas ... :lol:

BURDEE

Guest BERNESES
Guest BERNESES
Posted

Thanks Burdee! Good thinking.

58. Fart, fart, fart.

59. Call a friend who doesn't have Celiac's and makes you laugh. I talk to my friend Niki who also has an auto-immune disorder, and she refers to it as "Celeriac's" and we joke about how I wish it was a celery intolerance because I HATE celery.

60. Plan something fun for the first day you feel better.

61. Plan your dream vacation. When I want to escape my body, I go online and research all the places I want to travel in this life. last time, I planned my dream vacation to Paris and you know what, I just might do it.

62. Watch a sappy movie. I just watched "Shall we Dance?" with Richard Gere and JLo and I'll admit it, it made me happy.

63. If you're not too ill, do something nice for someone else.

64. If you can, get a pet- a fish, a cat, a dog. It gives you something to focus on besides yourself and fish are wonderful stress reducers.

65. Tell someone who has been supportive of you during this and tell them how much you appreciate their support.

ponita Newbie
ponita
Posted

66. Watch Meg Ryan in "French Kiss" have her "lactose intolerance" scene on the train with Kevin Kline. While she's eating the cheeses on the bread, I dying, then when she starts have spasms I'm crying but nothing compares to her walk afterwards, I've been there SO many times until I found out I too was Lactose intolerant.

67. Make something with your hands. I string jewelry and it's great for my mental attitude.

68. Read some of the old classics, such as Tom Sawyer or a Nancy Drew story.

What fun!

Melissa

burdee Enthusiast
burdee
Posted

The idea about getting a pet reminded me of a few more ...

69. Visit a pet store, even if you don't have time or money to have your own. I especially like whistling at the cockateils and dream of having one someday when I have more time and energy. :)

70. If you're feeling well enough to walk around, go to a local zoo. Nobody will notice when you pass gas, because there are so many animal smells already. :lol:

71. Clean out closets, box clothes to donate, transfer summer to winter storage, etc., if you feel too awful to go anywhere, but don't want to sit and stew.

72. Look online for a local celiac support group or consider starting one of your own. I decided to assume leadership of my local group (which was floundering after our previous leader resigned) when I was sick for a whole week, after cross contamination in my own kitchen. :blink:

BURDEE

YankeeDB Contributor
YankeeDB
Posted

73. Take deep breaths, breathing in through your nose and blowing out gently and slowly through your mouth. Very soothing and eases pain.

74 Take Immodium if you absolutely cannot have any downtime.

75. Read a good book.

76. Listen to your favorite music.

78. Watch the news -- so many have it so much worse.

79. Indulge in your favorite gluten-free treat food.

80. Lie in a comfortable position and moan and groan.

pogirl1786 Apprentice
pogirl1786
Posted

81.) Watch too many epsiodes of your favorite show on DVD.

82.) Call your friend who let's you know that it's totally okay to feel awful and cry to let it all out.

83.) Remember other times when you've been so sick and someone has done something nice for you to make you feel better.

84.) As has been mentioned many times- sleep!

85.) Put on your favorite hoodie sweatshirt and sweat pants.

86.) Walk slowly and focus on making it through the next minutes, instead of our usual fast-pace of thinking about things weeks in advance.

87.) Watch or listen to something that makes you laugh so hard you cry.

88.) Buy yourself some more sweat pants.

89.) Cuddle with your pets!

90.) Know that even though you feel absolutely horrible right now, and the pain doesn't seem like it will ever pass- that it will get better!

VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted

91. Take a hot bath with sweet smelling soaps to cover the deadly-smelling bubbles

92. Jump in a whirpool with a friend and don't tell them about the gluten incident (gee whiz, this whirpool stinks - haha)

93. Exercise, exercise, exercise -- get the bad stuff through the system and get your metabolism going

94. Healthy Dose of Pepto for the bad days...."the one that coats..."

95. Write the company that glutenized you a nasty letter/e-mail :)

96. Take a trip to Whole foods/Wild Oats/Henry's/Trader Joes to pick something out for later.

97. Massage your belly, Massage your belly, Massage your belly

98. Bake homemade gluten free Mac N Cheese

99. Make Homemade Ice Tea -- Yummy!

100. The last one has to be a good one --- Consumate your marriage or relationship -- Hey, its just like pizza -- even when its pretty bad, its still pretty good !! HAHA

burdee Enthusiast
burdee
Posted

WOW!!! Thanks everybody. Now I can share these 100 suggestions at my support group meeting in October. We really DO know how to get through those contamination episodes and even learn to prevent future ones! :rolleyes:

BURDEE

FaithInScienceToo Contributor
FaithInScienceToo
Posted

Just wanted to add a reply to this...

Really, just to keep this post fresh, so am moving it back to the top of the list with my reply, since this is such a good one for the newbies to read.

[Also, am emailing this one to myself, for future reference ;-) ]

Thanks for all of the good ideas!

Gina

Guest BERNESES
Guest BERNESES
Posted

Yeah!!!!! We did it! Nice work everyone!

Nicolette Rookie
Nicolette
Posted

How about...

Start a cross-stitch kit? The things are so damned complicated at times, it'll take your mind off of anything!

Nikki

FaithInScienceToo Contributor
FaithInScienceToo
Posted

Just moving this one back to the top again, since it is SUCH a good one for newbies to see... (hope that's OK with the site's Admin) -

Actually, maybe we can have a place where the site admins keeps these kinds of threads - the best ones for newbies? So, we don't have to re-generate the info over and over again....?

Just a thought -

Gina

toxemicfrog Rookie
toxemicfrog
Posted

just finished reading the 100....i sleep sleep sleep, watch vids and usually cos im so crook i go on ebay and look at all the pretty gems and dresses....window shopping from home and i can burp from the backside as much as i want cos its only my dog who smells it and she thinks its great anyway...heheheheeh...im sure she thinks it is channel au de canine hehehehehehehe.

great ways to cope though thanks...am just getting over (3 days off work) an accidental glutening from my own kitchen...am learning though.

have a great day :D

Guest BERNESES
Guest BERNESES
Posted

i'm so glad we kept this going!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,857
    • Most Online (within 30 mins)
      7,748
    LowellFrancis
    Newest Member
    LowellFrancis
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Ibuprofen

      By Rogol72 · Posted

      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
      Celiac and dermatitis herpetiformis has taken Me from Me

      By trents · Posted

      Is this man the father of your children?
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.