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100 (or More) Things To Do When You Are Glutened

Guest BERNESES

By Guest BERNESES
in Coping with Celiac Disease

Recommended Posts

LLCoolJD Newbie
LLCoolJD
Posted

I'll throw in mine:

1) Pop an Immodium

2) Make sure nothing antisocial happens during class

3) Temporarily change diet to 'Berlin-defense mode', eating mainly meat, rice, potatoes, etc.

4) Eat a lot, to keep up weight and hopefully get gluten out of my system ASAP

5) Go to the gym anyway

6) Check this forum

7) Maybe get a little militant, agitated, self-pitying, etc. until symptoms pass.

I don't really have any "comfort" techniques. I just plug along.

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Guest BERNESES
Guest BERNESES
Posted

We're up to 108! Woo-hoo!

101. Window shopping from home- Go on ebay and look at all the pretty gems and dresses (I LOVE THIS!). I look at kate Spade purses and dream vacations. God the Internet is great!

102) Pop an Immodium

103) Make sure nothing antisocial happens during class

104) Temporarily change diet to 'Berlin-defense mode', eating mainly meat, rice, potatoes, etc.

105) Eat a lot, to keep up weight and hopefully get gluten out of my system ASAP

106) Go to the gym anyway

107) Check this forum

108) Maybe get a little militant, agitated, self-pitying, etc. until symptoms pass.

LL CoolJD- I HAVE to ask about the anti-social thing happening in class because that is TOO funny. I'm a teacher and a grad student and mostly my students and classmates cheer me up but occasionally there's this one person in my class I just want to slug! Not one of my students but this guy who has been in my grade classes for a year and a half now. I'd LOVE to hear what happens to you!

NepalFreak Newbie
NepalFreak
Posted

109. Get on with life, it's too short to be lying around having a pity party. (Sometimes easier said then done)

Having not had symptoms since I was 3 or 4, I'm 22 now, I forget what most of them are! From the looks of this list, I'm not looking forward to being glutened, which I'm afraid happens more often then I think.

Wow, that was one long run on sentence. Anyway, glad to be here and pick up some good advice from fellow celiac disease folks.

cornbread Explorer
cornbread
Posted

109) Take 30mg of NADH.

I don't get gastric problems (except a little pot belly), so my healing process concentrates on lifting the fatigue and psychiatric effects of gluten/casein. After that has passed I try and sort out the annoying acne flair up that accompanied my glutening:

110) Sit in a nice hot bath with a face mask on.

And to build my strength back up:

111) Get as much sleep as possible.

112) Be EXTRA careful for a week (ie: eat every meal at home, don't try any new foods) until I'm 100% better.

FaithInScienceToo Contributor
FaithInScienceToo
Posted

109-112 is now actually 110-113 ;-)

I love the 'no pity parties' one AND the 'eat at home for a week' thing...but, if you cannot do that - take your own SAFE food with you when you need to during that week! (I guess that was obvious?) :-)

What is NADH, BTW?

114 anyone?

Oh...I have one....how about, look up some good jokes on the Net and then call a friend to tell a really great one to?..It takes the focus off yourself, brings joy to someone else, too...and any laughter you may get out of it may help expell the gas faster ;-)

OK....115, anyone?

Gina

toxemicfrog Rookie
toxemicfrog
Posted

115. Have my studly gorgeous hunk of a man rub my head...puts me to sleep every time....ahhhhhhhhhhhhh bliss. :D

116.again from my gorgeous man....cuddles, cuddles and more cuddles.

117. Raspberry or fennel tea....very soothing for the belly.

118. I go out and smell my roses...always a plesant experience.

119. Meditate (if i can relax enough...go back to 115..hehehe)

120. Read a great book

whooooo hoooooo 120 great ideas for feeling better :D (hope i did not doulble up on any ;) )

have a great day :)

cornbread Explorer
cornbread
Posted
109-112 is now actually 110-113 ;-)

Oops. :)

What is NADH, BTW?

I posted about it here the other day: Open Original Shared Link . Great (natural) stuff for wiping out brain fog, fatigue and the grouchies. :) I urge anyone who gets major brain fog to try this stuff, it has absolutely changed my life.

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artmeg55 Newbie
artmeg55
Posted

73. Force fluids, and then force more fluids. My new favorite is Twining's lemon and ginger tea. Its' caffeine free too so it won't keep you awake. The lemon is perky and the ginger's good for the stomach.

Meg

debmidge Rising Star
debmidge
Posted

Sometimes when glutened by husband takes out his photo albums, old and new and flips through them while on couch.

Or, he'll put on an old funny movie like Young Frankenstein or a Don Knotts one and get his mind off of his tummy.

Yesterday he was a trooper.. we had to go to mall to get a size larger autumn weight pants for him (he gained 7 lbs since Jan - he's now 134 at 5' 10"!! and his 32 inch pants are tight in waist). He went from 32 waist to 33! He was feeling tummy achy in mall while shopping, but he wanted to continue shopping so we went from Sears to Macy's to Lord and Taylor and he tried on as many 33s as he could find (it's a difficult size to find). (34s are too big in behind and legs as he's so thin).

  • 1 month later...
bknutson Apprentice
bknutson
Posted

Is there such a thing as having celiac disease really bad or not so bad. or if you have it, you have it, plain and simple like aids or something?? Does anyone know. If anyone has any lists of gluten free products like soaps lotions etc would you email them or put them on here. I am so overwhelmed with all this. bknutson@wirelessbeehive.com

thankyou so much for you support on here. I am so thankfull I finially found this

Guest BERNESES
Guest BERNESES
Posted

Welcome bknutson- you've come to a great place. As far as having Celiac's bad versus not so bad I guess that the answer is kind of complicated. Have you been diagnosed? If you have definitely been diagnosed, then no matter what, like AIDS, you have it. And to prevent any further damage, you have to remove all the gluten from your diet.

BUT with that said, there are varying degrees depending on how much damage you have. If you've had it for a long time and a lot of damage has been done, you may feel very sick and it may take longer for the gluten free diet to heal you. If you don't have Celiac's but are gluten intolerant, there are varying degrees at which a person will have a reaction to gluten. For example, some people with Celiac's can ingest gluten and have no symptoms at all (BUT they are still damaging their bodies) whereas others like me get very, very sick from very small amounts.

I'm in a doctoral program in Education, and I'll tell you, learning about this disease has been harder than my coursework! But this board is the BEST place you can be.

Did you get the emails I sent you? Beverly

darkangel Rookie
darkangel
Posted

Not sure what number we're on now, but here are my suggestions:

- Read the Mitford Years books by Jan Karon. Even at my sickest, I found these books so comforting and laugh-out-loud funny in spots.

- Create a comfy bed. There's nothing more soothing than curling up on a soft bed with lots of pillows when you feel bad. I have soft T-shirt sheets for spring and summer; cozy flannel for fall and winter. Add electric blanket, home-made afghans... whatever says comfort to you.

- Gentle exercise. Take a walk, if the weather's nice. Do some yoga or stretching. Helps keep things moving.

- Drink plenty of fluids and eat your safest foods. Lots of fluids will help flush out toxins. Safe foods reassure you won't eat something to make the problem worse.

-Spoon with your significant other. Nothing more comforting to me... and if your S.O. has warm hands, they can help relieve abdominal cramping.

gabby Enthusiast
gabby
Posted

I pull out my collection of Erma Bombeck books and re-read them again and again, laughing and crying the whole way.

Matilda Enthusiast
Matilda
Posted

..

  • 3 years later...
Arlek Apprentice
Arlek
Posted

This is kind of off topic, but …

59. Call a friend who doesn't have Celiac's and makes you laugh. I talk to my friend Niki who also has an auto-immune disorder, and she refers to it as "Celeriac's" and we joke about how I wish it was a celery intolerance because I HATE celery.

I think I might actually have a celery intolerance (at least with the seeds), although that's in addition to gluten issues, I fear. I think I'll go find out (although maybe that's not such a great idea). I don't have anywhere I have to be for the rest of the day, though.

All I know is something in a gluten-free (also dairy-free, nut-free, egg-free, soy-free and all that) concoction I made caused me to be nauseous and later gave me really bad diarrhea without warning (no gas or anything beforehand)—diarrhea seems to be quite rare for me (and I don't seem to get it from eating gluten), unless I drink bad milk or something. I thought it was the bean flour at first (since it was the first time I had used bean flour), but now I'm not so sure, after having read up on celery issues (I used celery salt in the dish, probably the first time I've used it much, which salt is made from the seeds—the strongest reactions come from the seeds, they say). I only began to suspect the celery salt when I had some plain celery today, by itself, and I sensed some mild nausea (very mild, but I still noticed it—perhaps it's just way stronger in the seeds). Plus, the celery smelled different than usual—kind of like stringent, bad citrus. I don't think the celery actually was different, though—I think I was just more sensitive to something about it this time. Plus, I think I can often smell things that don't agree with me, strangely enough (this includes personal care products, food and such; the citrus smell was like the citrus smell in shampoo that doesn't agree with me, after it started not agreeing with me that is; it didn't smell like that before).

I actually hope it's the celery (as long as it doesn't get worse). I love to use beans, but I don't have occasion to use celery much. Of course, it's possible it was both the celery and the beans together (and I don't hope for that). I know I had a hard time getting myself to beans as a child (at least if they didn't have much meat with them). Beans don't normally give me diarrhea, though (they just perhaps give me a certain feeling related to energy, as if I wasn't metabolizing them properly, if I ate large amounts of them, but that may not have been the beans, I suppose)—I just figured maybe in flour form beans might affect me differently (seeing as the particles are probably separated much more than in something like mashed refried beans—and I did grind them with a WonderMill, which pretty much obliterates the beans).

mysecretcurse Contributor
mysecretcurse
Posted

1) Make healthy gluten free food. Whenever I get glutened, I always tell myself (with each safe meal, I'll heal a little bit more.. and in like.. 90 meals it'll be like it never happened.

2)watch a movie to get my mind off it

3)throw myself into my work and stay there for as long as I can (I'm a writer)

4)Smoke a bowl and relax under the stars. I really believe in medical marijuana and it has helped me a lot with glutenings in the past. Plus I just like it. :P And looking at the stars always reminds me that the universe is big and I am a spiritual being, only borrowing this body from mother earth, and that one day I will be free of it's limits. :)

txplowgirl Enthusiast
txplowgirl
Posted

Get on the internet and do family history research. I can do this all day and forget where i am, who i am and what's wrong with me. :P yep, I'm addicted to genealogy :D Vicky

109-112 is now actually 110-113 ;-)

I love the 'no pity parties' one AND the 'eat at home for a week' thing...but, if you cannot do that - take your own SAFE food with you when you need to during that week! (I guess that was obvious?) :-)

What is NADH, BTW?

114 anyone?

Oh...I have one....how about, look up some good jokes on the Net and then call a friend to tell a really great one to?..It takes the focus off yourself, brings joy to someone else, too...and any laughter you may get out of it may help expell the gas faster ;-)

OK....115, anyone?

Gina

Lisa16 Collaborator
Lisa16
Posted

Fabulous topic!

-take a bunch of slippery elm, papain enzyme, bromeliad, glutenzyme, vitamins and teas

-eat whole cloves to control spastic burping, GAS-EX FOR SPASTIC OTHER EMISIONS

-look at garden books or house decorating books and dream of future plans

-paint or draw a picture of your pain

-take a long, hot bath with bath bombs or bubbles or salts

-give yourself a mani-pedi, facial and hair treatment

-have a movie marathon (hit the local video rental store)-- thank god for the pause button!

-bake yourself a gluten-free cake or brownies and eat some

-feed the squirrels whatever got you and watch them fight over it. Laugh maniacally.

-spoon with the person you love

-call it a day, even if it's only 6 am

stillclueless Newbie
stillclueless
Posted

Apparently this list started four years ago and I just found it tonight. It's fabulous. Thanks to everyone for validating my choices. It really, really helps to know I'm not alone. May God bless.

  • 1 year later...
healinginprogress Enthusiast
healinginprogress
Posted

Apparently this list started four years ago and I just found it tonight. It's fabulous. Thanks to everyone for validating my choices. It really, really helps to know I'm not alone. May God bless.

This is definitely a good thread to go through...I'm glutened right now and very very frustrated because I don't know what is glutening me :( But this list itself lifted my spirits a bit. I'm bookmarking it and going to spoon with my honey.

dbhickma Rookie
dbhickma
Posted

73. Sleep in a separate room so you don't feel guilty about "gassing" anyone.

74. Catch up on seasons of shows you missed or always wanted to watch.

75. Take naps in the darkest, coldest room in the house.

76. Wear the most comfortable clothes you own. You're going for comfort not speed!

77. Make a HUGE pot of REAL chicken stock and white rice.

78. Just slow down and relax. Spend time with family. Life can get so crazy we forget to some times. Sad we have to get sick to be able to justify JUST SITTING.

79. Snuggle under a thick blanket and eat smoothies : )

80. Let your loved one's take care of you. You always take care of them and they in turn like taking care of you.

compucajun Rookie
compucajun
Posted

73. Hang out with your grandchildren - or borrow some kids. They think it is funny if you fart

Terri O Rookie
Terri O
Posted

73--take a walk

74--horseback riding is GOOD

75--if you are feeling well enough, clean the barn with LOUD music!

76--sit and talk to chickens. They always listen!

77--have a glass of Sherry!

78--do some crosstitch or scrapbooking

79--teach the parrot some new words

80--mix up some gluten-free flours and think about what you can make when you feel better

81--got to Borders or B&N and look at the cookbooks--then sit down and have a cuppa and read a book! (then buy it too)

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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