Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Donating Blood


Kimbalou

Recommended Posts

kareng Grand Master

The thought of undigested food particles , large enough you can tell they are bread or lettuce in the blood, seems incredible. They would clog up your small blood vessels causing small parts of your body to die. The strokes this would cause in your brain alone, should have you unable to post here with in days. If the holes in the intestines were so large as to let food chunks go thru, I would think you would have peritonitis, too. Either way, I don't give your chances of living as more than 2 weeks.

I have seen info about leaky gut, but that is not about holes so large that recognizable food can pass through. Do you have some reputable info about this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

The thought of undigested food particles , large enough you can tell they are bread or lettuce in the blood, seems incredible. They would clog up your small blood vessels causing small parts of your body to die. The strokes this would cause in your brain alone, should have you unable to post here with in days. If the holes in the intestines were so large as to let food chunks go thru, I would think you would have peritonitis, too.

AAAND there is ............! yeah, what she said!!

thanks, K!

Skylark Collaborator

Sounds like blood from a donor that ate Gluten could set off DH, in one that has DH...

This sort of speculation isn't terribly useful. If you are in a position to be needing whole blood, hypothetical traces of gluten peptides would be the least of your worries.

IrishHeart Veteran

This sort of speculation isn't terribly useful. If you are in a position to be needing whole blood, hypothetical traces of gluten peptides would be the least of your worries.

Thank you, Sky.

Ninja Contributor

The thought of undigested food particles , large enough you can tell they are bread or lettuce in the blood, seems incredible. They would clog up your small blood vessels causing small parts of your body to die. The strokes this would cause in your brain alone, should have you unable to post here with in days. If the holes in the intestines were so large as to let food chunks go thru, I would think you would have peritonitis, too. Either way, I don't give your chances of living as more than 2 weeks.

I have seen info about leaky gut, but that is not about holes so large that recognizable food can pass through. Do you have some reputable info about this?

Thank you! This is what I was attempting to say but couldn't nearly get it out as clearly as you have. :)

kareng Grand Master

This sort of speculation isn't terribly useful. If you are in a position to be needing whole blood, hypothetical traces of gluten peptides would be the least of your worries.

Thanks! I intended to say that but forgot!

I still would like to see some reputable source of the info when a person makes these " unusual" statements.

Oscar Apprentice

Gluten, or any food for that matter, does not necessarily get digested and metabolized before entering the blood stream. That is only what is supposed to happen. I have been shown partially digested fragments of food in my blood, under a microscope. That's from a leaky gut, with a lot of damage. People can have a leaky gut from other things, like a medication, I've been told. I've also been told, by a doctor addressing a local Gluten Intolerance Group meeting, that people don't fully digest wheat, barley, rye or oats, because some of the proteins are just too large and complex. It only takes a small fraction of a gluten molecule to cause a celiac reaction. There are multiple short chain peptides of gliadin, sequences of only 4 or 5 amino acids that can cause a reaction. There are multiple instances of each of these several peptides in one gliadin molecule. Partial digestion can make these peptides more available for our immune system to react to.:unsure:

Joe, you have a lot to say, in many topics here. But you never cite a source for your assertions. How do we know you are not just making things up? As I understand the rules here, you can express an opinion (noted as such), or can cite a valid source to justify a proven fact. You do neither. Perhaps you are still under the influence of gluten. Who knows? I don't. :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

Good gravy, folks. Undigested food particles in your bloodstream? Passing celiac along in a blood transfusion? Things are getting mighty weird here.

richard

JNBunnie1 Community Regular

Joe, you have a lot to say, in many topics here. But you never cite a source for your assertions. How do we know you are not just making things up? As I understand the rules here, you can express an opinion (noted as such), or can cite a valid source to justify a proven fact. You do neither. Perhaps you are still under the influence of gluten. Who knows? I don't. :unsure:

HEY!! HEY!! You're supposed to be having fun when you show up here!!! Quick, let's get back to the vampires topic!

Gemini Experienced
Gluten, or any food for that matter, does not necessarily get digested and metabolized before entering the blood stream. That is only what is supposed to happen. I have been shown partially digested fragments of food in my blood, under a microscope. That's from a leaky gut, with a lot of damage.

Joe....I am sorry you were taken so badly by whatever physician claims to have shown you this. This is complete and utter hogwash.

My sister works for a major hospital in Boston and has for close to 40 years. She has worked in the transplant unit and in most of the labs in the hospital so she has experience in these matters. She's a blood expert, or as close to one as it gets. Celiacs and those with multiple autoimmune issues are often refused blood donating because they are either anemic or they have too many autoimmune problems. I guess once you trip for more than 1 AI disease, they do not like to take your blood. That made sense to me because anyone with multiples (like myself), is usually putting a lot of effort into staying healthy and losing a pint of blood might affect that. It weakens you for a few days. You need to be robust to donate blood. I have never donated and never will be able to because I often don't make the weight requirement and I have 4 AI diseases.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,557
    • Most Online (within 30 mins)
      7,748

    Ortega
    Newest Member
    Ortega
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
    • knitty kitty
      Hi, @Ginger38, I've had shingles in the past.  I understand how miserable you're feeling.   Not only do i have the chickenpox virus lurking about, I also have the cold sore virus that occasionally flares with a huge cold sore on my lip when stressed or exposed to gluten.  The virus lives dormant in the nerves on the left side of my face.  It causes Bell's Palsy (resulting in drooling).  The cold sore virus is also in my eye.  My eye swells up and my vision is diminished permanently whenever I have a flare, so it's of the utmost importance to keep flares away and treat them immediately if they do happen so I don't lose any more vision.   I take the amino acid supplement L-Lysine.  Lysine messes with the replication of viruses, which helps the body fight them off.   I haven't had an outbreak for several years until this year when exceptionally stressed and contaminated, it flared up again. Lysine has been shown to be beneficial in suppression of viruses like the cold sore virus (a herpetic virus), the chickenpox virus (also a herpetic virus), as well as the HIV virus, and even the Covid virus.   I also take additional Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) because Thiamine has antiviral properties as well.   For pain, a combination of Thiamine (like TTFD or Benfotiamine or Thiamine Hydrochloride), with B12 Cobalamine, and Pyridoxine B6 have been shown to have analgesic properties which relieve pain and neuropathy.    The combination of Thiamine B1, Pyridoxine B6 and Cobalamine B12 really does work to relieve pain.  I take it for back pain from crushed vertebrae in my back.  This combination also works on other pain and neuropathy.   I usually buy a supplement that combines all three and also Riboflavin B2 called EXPLUS online.  However, it's made in Japan and the price with the tariffs added makes it really expensive now.  But the combination of Thiamine B1, Pyridoxine B6 and B12 Cobalamine (and Riboflavin B2) still work even if taken separately.   I can't take Tylenol or ibuprofen because of stomach upsets.  But I can take the vitamin combination without side effects.  However, you can take the three vitamins at the same time as other pain relievers for added benefit.  The vitamins help other pain relievers work better. I hope you will try it.  Hopeful you'll feel better quickly. Interesting Reading: Thiamine, cobalamin, locally injected alone or combination for herpetic itching: a single-center randomized controlled trial https://pubmed.ncbi.nlm.nih.gov/23887347/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ Analgesic and analgesia-potentiating action of B vitamins https://pubmed.ncbi.nlm.nih.gov/12799982/ A Narrative Review of Alternative Symptomatic Treatments for Herpes Simplex Virus https://pmc.ncbi.nlm.nih.gov/articles/PMC10301284/
    • Mari
      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.