Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Going In To Be Tested Today

Mnicole1981

Recommended Posts

Mnicole1981 Enthusiast
Mnicole1981
Posted

I have been pretty sick for two months now. It just got really bad in last two weeks. I have gone to two different ERs where I was told that I had a relative constipation in my ascending colon and that is what was causing the nonstop burning sensation in my upper abdomen. I was put on a Miralax cleanse for a week, to be followed up with stool softener. Bloodwork was fine, no issues with gallbladder. I was told to follow a high fiber diet which I already had in place. Anyway, I did what the ER doc suggested, and still felt crappy. So I was eating oatmeal, Raisin Bran, and Cream of Wheat and I still felt horrible.

I ended up in another ER just this week where they couldn't find the exact problem. They states I could have gastritis or an ulcer. I am scheduled for a endoscopy next week, but I am getting blood tested for Celiac today. Last year I was told I was anemic and advised to take iron pills three timea a day. Shortly after that, I began to get rashes all over my abdomen, arms, and back of my knees. It wasn't until my mom suggested it yesterday that I even considered Celiac disease. I was lactose intolerant as a newborn and more recently found out I was. I also havw an aunt with MS and a cousin with Crohns disease.

Anyway, my question is this. Should I eat something with gluten for breakfast this morning before I go in for the bloodwork to assure a positive test? I had oatmeal two nights ago before not realizing it might be my problem. Would the gluten from that show up in my bloodwork? I would hate to have to eat something with gluten to end up in the ER again. Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

Do not stop consuming gluten, even though it makes you feel lousy, hon. Sorry, but it is the presence of Tissue transglutaminase antibodies that are measured by blood work. Do not change your diet just yet.

You mention an endoscopy. That will NOT diagnose Celiac.

You need to have a biopsy done while the doctor is down there.

They take several samples of the small intestine so they can see if the villi, which line the gut, are blunted or flat.

Here are the tests explained:

Open Original Shared Link

Finally, tests have their faults and some of us are seronegative, meaning our lab tests were negative, but we have Celiac nonetheless.

Good luck! Hope you get some answers.

Cara in Boston Enthusiast
Cara in Boston
Posted

You need to be eating a sufficient amount of gluten DAILY in the week/months leading up to your tests. Being gluten free, or even gluten "light" for even a short time, can change the results of the tests. Oatmeal probably wouldn't be sufficient as it is naturally gluten free and only off limits to celiacs due to cross contamination with wheat.

Cara

Mnicole1981 Enthusiast
Mnicole1981
Posted
  • Author

I have also had Raisin Bran, some whole wheat tortillas, Sunchips, deli thins a lot since this has all started. Again not knowing it could be the cause.

IrishHeart Veteran
IrishHeart
Posted

Eat up. :) Until your testing is over. You want it to as accurate as possible.

Mnicole1981 Enthusiast
Mnicole1981
Posted
  • Author

Thanks! I will! As miserable as it will make me, but if you want accuracy, you have to do what you gotta to get answers. I just wish I had realized this before it got to this point. I really thought it was IBS.

IrishHeart Veteran
IrishHeart
Posted

Many of us heard that one. "IBS" :rolleyes:

You know what we call it on here?

Doctors use it when they do not know what else to say

It stands for

I

Be

Stumped

:lol:

Have your tests run and come back and tell us what happened.

best wishes!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted
laugh.giflaugh.giflaugh.gif I like to think of the initials IBS as indicating the doctors ---- Imbecilic B&$$ S%$&ters.ohmy.gif
Mnicole1981 Enthusiast
Mnicole1981
Posted
  • Author

I am waiting to see the doctor right now. For those of you who lost weight, how rapid was your weight loss? I was 172 last Thursday, now I am about 163-164. I am hungry but I was scared to eat. Last night I had scrambled Eggbeaters and applesauce and my heartburn wasn't that awful. This morning I had Rice Chex. It seems to be the only thing that doesn't make me feel all that bad. Any other food suggestions until my EGD?

IrishHeart Veteran
IrishHeart
Posted

I lost 90 lbs. Not sure how long it took. I was very sick.

But not everyone loses weight!

You have to eat, hon and you have to keep consuming gluten, sorry.

When is the biopsy??

Mnicole1981 Enthusiast
Mnicole1981
Posted
  • Author

Next Thursday and now I have colonoscopy scheduled at the same time. I may try some scrambled eggs and toast.

IrishHeart Veteran
IrishHeart
Posted

Next Thursday and now I have colonoscopy scheduled at the same time. I may try some scrambled eggs and toast.

Make sure they take many samples in that biopsy from various places.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. marlene333
      - marlene333 replied to Grace Good's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Bee balm lipbalm not gluten free

      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    2. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

      jmartes, Thank you for sharing more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is...
    3. Scott Adams
      - Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    4. catsrlife
      - catsrlife replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady...
    5. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,260
    • Most Online (within 30 mins)
      7,748
    sbr
    Newest Member
    sbr
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • marlene333
      Bee balm lipbalm not gluten free

      By marlene333 · Posted

      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    • Mari
      Related issues

      By Mari · Posted

      jmartes, Thank you for sharing  more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some  medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is not a killer disease, it is a disabling disease as  you have found out. You have time to find some ways to help you recover. Stay on your gluten-free diet and be more careful in avoiding cross contamination . KnittyKitty  and others here can give you advice about avoiding some foods that can give you the gluten auto immune reaction and advice about vitamins and supplement that help celiacs. You may need to take higher doses of Vit. B12  and D3.  About 20 years before a Dr. suggested I might have Celiac disease I had health problems that all other Dr said they could not identify or treat. I was very opposed to alternative providers and treatments. So many people were getting help from a local healer I decided to try that out. It was a little helpful but then, because I had a good education in medical laboraties she gave me a book  to read and what did I think. With great skeptism I started reading and before I was half way through it I began using the methods outlined in the book. Using those herbs and supplements I went from hardly able to work to being able to work almost fulltime. I still use that program. But because I had undiagnosed celiac disease by 10 years later some  of my problems returned and I started to loose weight.    So how does a person find a program that will benefit them? Among the programs you can find online there are many that are snake oil scams and some that will be beneficial. by asking around, as I did. Is there an ND in your area? Do they reccomend that person? If you would like to read about the program I use go to www.drclark.net   
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    • catsrlife
      Patiently Waiting to See Results

      By catsrlife · Posted

      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady didn't even know what she was talking about and said "they never turn out as celiac, they usually just say it's dermatitis so here's your meds," just like my regular quack. I'm trying to change insurance companies at the moment and that has been a battle because of red tape, wrong turns, and workers having wrong phone numbers. What a joke! The allergy blood days say I have a wheat allergy of .31. Hopefully it's just that and until I find a decent doctor and dermatologist, I'll just lay off the wheat anyway, since it gives me asthma, high blood sugar, and joint pain. So frustrated at this point. The rash on my back of arms/elbows is mostly gone. Both calves and chest have started up. smh. It comes and goes. It fades faster now, though, although my forearms still produce one or two bumps on each side. The itching has calmed down a lot except for the bump area. I have dry skin to begin with so anything affecting it just makes it crazy. i'm never going to eat wheat again. I don't care if they need it to produce results or if it is just an intolerance, allergy, or celiac. It gives me hell.
    • Jmartes71
      Related issues

      By Jmartes71 · Posted

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.