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When Someone Asks, "how Can I Get That [Celiac]?"

Finally-45

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Victoria6102 Contributor
Victoria6102
Posted

I've been both overweight and underweight. I must say, I liked being skinny and fitting into cute clothes, and being able to eat as much as I want without gaining weight. I hate being overweight and not fitting into very much, wishing I was back in the skinny body. No matter how hard I try, I can't lose weight. In my opinion, it was way better to be underweight than overweight. Lots of people who are overweight are trying to be as skinny as you but can't. Don't get mad at them! Sure, maybe they don't understand celiac but did you understand it before you went gluten free? I sure didn't!:P us chubby people have it hard too!:( :'(

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dani nero Community Regular
dani nero
Posted

Face it guys and gals.. Those who are fatter want to get thinner, and those thinner want to get fatter! Those who are neither thin nor fat probably don't like their bodies either haha :-)

I would say "let's all just be happy about our looks and be thankful of what we have", but then I would be a hypocrite!

Jestgar Rising Star
Jestgar
Posted

Face it guys and gals.. Those who are fatter want to get thinner, and those thinner want to get fatter! Those who are neither thin nor fat probably don't like their bodies either haha :-)

I would say "let's all just be happy about our looks and be thankful of what we have", but then I would be a hypocrite!

Yep. And if they do like their bodies, then they have issues with their hair

or nose

or something else

....

cougie23 Explorer
cougie23
Posted

Take some Biotin for the floppy girls. ;)

My girls seemed to think after feeding two kids they were headed south for retirement. Started taking Biotin for hair/ nail growth and they perked back up. :D :D

:lol::lol::lol: Yay!!!...Biotin shall be the shovel to shore up my LANDSLIDE...LOL!!! :P THANKYOU....My nails and hair have been suffering as well and I had NO idea what to do :blink: ...seriously...THANKYOU for this advice!!! :lol:

( and when you gain a few and your kids are hiting thier teens and twenties....THATS A LOT OF SLIDEN goin on...LOL!!!)Time to PUSH those girls backup the hill!...I'm exagerating...its not THAT bad! will be soon ...definatly no time like the present for previntitive measures though!)Anymore secrets of YOUTH you ladies want to share? LOL :P

IrishHeart Veteran
IrishHeart
Posted

Yep. And if they do like their bodies, then they have issues with their hair

or nose

or something else

....

Yep. It's what keeps plastic surgeons in Jaguars and beach front vacation homes.

It is a rare one who is "comfy" in her own skin,

realizing she is beautiful, just as she is.

Marilyn R Community Regular
Marilyn R
Posted

What do you say to comments like that? Once someone said that I have good will power. I replied, "No, I have a constant reminder of the painful consequences of going off the diet. It's not like I feel satisfied from eating...[gluten]...almost immediately I feel sick to my stomach...." That seemed to be a good reply.

GlutenFreeAustinite Contributor
GlutenFreeAustinite
Posted

I was always normal weight as a kid, and even as a teenager. I lost weight (20 lbs) when I was 15, but that was totally intentional. At the time, i did the South Beach Diet, which is pretty much a gluten-free diet in the first stages, which is where I lost most of the weight. I kept it off because I started swimming 5x a week, after I added bread/wheat again, but I started getting sick. I never went to "walking skeleton" stage, thankfully.

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notme Experienced
notme
Posted

Take some Biotin for the floppy girls. ;)

My girls seemed to think after feeding two kids they were headed south for retirement. Started taking Biotin for hair/ nail growth and they perked back up. :D :D

:) thanx ! i will take all the help i can get :D

since i have been recovering, i have started a "mini" (and i do mean MINI) itty bitty (i don't even think you could call it a workout..) set of exercises just to improve my muscle tone. it is working surprisingly well. i start with 'boob ups' - take a scrunchy or anything elastic and hold it in both hands out in front of you with elbows level with your shoulders. then i just stretch and hold for 10 10 second reps. you will know you're doing it right when you feel the muscles under your boobs tightening up. i have noticed perkiness improvement :) <husband too lolz ;)

as i have been re-gaining healthy weight, it needs to be managed! i never had to do this when i was younger. doing sit-ups on the bed holding my legs straight out and trying to hold with abdominal muscles. i didn't think it was doing me any good until i stopped doing them. i do as many as i can of those. and i do leg lifts (10 per side) - now - i know some of us are easily fatigued and even this will be tiring to some. but if it helps to tone a little and makes some happy endorphins, that works for me. it takes like 5 minutes and if i skip a day, i feel 'floppy' my 28 year old daughter can't do the sit-ups hahahaaa so it is definitely making a difference and they are getting easier.

i still smoke cigarettes and i am hoping to quit and replace them with exercise endorphins..... just........ not today...... :)

IH, you might not be up to this yet - i am 21 months into recovery since dx.

oh, and for all the people who love to comment on how wonderful it is that i can stay so skinny: i had an upper respiratory infection last week and lost 4 lbs in 5 days. i posted it on my fb and everybody was "horrified" - WAY TO PAY ATTENTION, FRIENDS AND FAMILY.... your concern is a little late ;)

squirmingitch Veteran
squirmingitch
Posted

I'm one of those that Irish mentioned. Oh, I would like to gain a few pounds but if it doesn't happen --- cest la vie! Other people have always had more problems with my weight (or lack of) than I. I am happy with my hair including the color --- well the grey coming in is getting a little weary. I've always liked my nose. I'm happy with my legs -- even though they're short --- they are a great shape. I like my eyes & my chin. And even though some things are changing with aging, such as my disappearing cheekbones; that's aging pure & simple. I live in my own skin & I'm content. I'm darned lucky!!!!!! I am who I am & what's inside me is far more important than what the outside looks like. I'm getting wrinkled & varicose veins & when you look at me you can read the story of my life. I have dh & I wear shots & short sleeves & I have scars. Another chapter in the story of my life.

I look at other people & I look into their eyes; into their faces as we speak. I honestly couldn't tell you what they were wearing b/c I'm not examining them for flaws or for comparison purposes. I'm looking inside them where what they are wearing inside their body is the important part.

And after all these years & all this living I still am shocked to the core when people put so much emphasis on what the outside of people look like.

IrishHeart Veteran
IrishHeart
Posted

i still smoke cigarettes and i am hoping to quit and replace them with exercise endorphins..... just........ not today...... :)

IH, you might not be up to this yet - i am 21 months into recovery since dx.

Your story is encouraging :) Good for you!

You can do anything! (even quit smoking) ;)

and yes, thanks, I am slowly getting there, too. I can walk 20 minutes without gasping for breath and I do 10 bicep curls & 10 tricep curls with 2 lbs. weights. Not bad for a girl who could not open a jar or use a wire whisk for a while there!

Stay strong and happy ta-tas lifting.

I'm going to do those too. :lol:

cougie23 Explorer
cougie23
Posted

I'm 43, have 4 kids, and wear a size 2 (0 at Gap). Lost about 15 pounds after going gluten free and figuring out my multiple food intolerances. I'd love to add a few pounds, but I honestly struggle to keep my weight where it is. Sometimes I wish I could post on FB "So excited! Gained a pound back! Only took a week this time instead of 2!" or "So frustrated. Took a trip and lost 2 pounds" but I know that wouldn't be well received...

When I tell people I have to work hard to maintain my weight, I hear "That must be a good problem to have!" I am SO tired of hearing this! If it's someone I think I'll end up friending, I tell them more. Then I tell them how bad I feel when I drop under a certain weight and how it isn't fun to have to force eat more corn pasta with olive oil or potatoes (no dairy) or peanut butter. I tell them what I can't eat and how hard it is to eat out. After all that I usually hear "Wow! That must be hard."

One friend I hadn't seen in 20 years asked how I stayed so slim at the beginning of our conversation. I said "autoimmune disease." LOL! Not sure i'd do that with a stranger.

Can you eat HONEY?...If you can...google "health benifits of honey"...wonderful antioxident...great for healing the intestinal track...and its FATTENING! LOL!

Dates have great HEALING properties as well! AND will help you gain!...google dates!

They TASTE great as well! there is so many ways to put honey and /or dates into your food...or just srtait!

mix'em with stuff!yummy way to get healthy...AND gain a little cusion! :P

(and personally...at this point I WOULD make the AUTOIMUNE disease comment to a stranger...it would serve them right for saying something! Thats just rude of them...how would they like it!LOL! :blink::rolleyes::D

Example:

1)chopped dates and honey in your veggtable stirfry

2)chopped dates in your salad (fruit or regular veggie type salad)

Chopp your raw chicken up and cook it in a pan with chopped dates(maybe some mushrooms, a little garlic or some onion....celantro...Whatever sounds good,have fun with it) and a little honey...

I use it when I cook as flavoing....for my veggies,stirfry,meat :P (insted of bbq sauce or OTHER sauses that I can't have now!)

I use it on my chicken with a little Trader Joes parmesian(gluten-free) in the broiler after I'm done cooking it fora carmelized bbq effect!REAL YUMMY...and ITS HEALTHY!

I even carmelize apples dates and bannanas(bananas and dates atthe last minute) with cinnimon and HONEY...when my tummy hurts and I can't eat anything ELSE! :unsure::blink::lol:

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    • cristiana
      Feel like I’m starting over

      By cristiana · Posted

      Hi @Scatterbrain Thank you for your reply.   Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct.   Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two, following my diagnosis - I pinned everything on coeliac disease, but it turns out I wasn't always right!  Dizziness, lightheaded - I was eventually diagnosed with cervical dizziness (worth googling, could be your issue too, also if you have neck pain?)  A few months after diagnosis I put my neck out slightly carrying my seven-year-old above my head, and never assigned any relevance to it as the pain at the time was severe but so short-lived that I'd forgotten the connection. Jaw pain - stress. Tinnitus - I think stress, but perhaps exacerbated by iron/vitamin deficiencies. Painful ribs and sacroiliac joints - no idea, bloating made the pain worse. It got really bad but then got better. Irregular heart rate - could be a coincidence but my sister (not a coeliac) and I both developed this temporarily after our second Astra Zeneca covid jabs.   Subsequent Pfizer jabs didn't affect us. Brain fog - a big thing for people with certain autoimmune issues but in my case I think possibly worse when my iron or B12 are low, but I have no proof of this. Insomnia - stress, menopause. So basically, it isn't always gluten.  It might be worth having your vitamins and mineral levels checked, and if you have deficiencies speak to your Dr about how better to address them?    
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
    • Wheatwacked
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      By Wheatwacked · Posted

      Your goal is not to be a good puppet, there is no gain in that. You might want to restart the ones that helped.  It sounds more like you are suffering from malnutrition.  Gluten free foods are not fortified with things like Thiamine (B1), vitamin D, Iodine, B1,2,3,5,6 and 12 as non-gluten free products are required to be. There is a Catch-22 here.  Malnutrition can cause SIBO, and SIBO can worsen malnutrition. Another possibility is side effects from any medication that are taking.  I was on Metformin 3 months before it turned me into a zombi.  I had crippling side effects from most of the BP meds tried on me, and Losartan has many of the side effects on me from my pre gluten free days. Because you have been gluten free, you can test and talk until you are blue in the face but all of your tests will be negative.  Without gluten, you will not create the antigen against gluten, no antigens to gluten, so no small intestine damage from the antigens.  You will need to do a gluten challange to test positive if you need an official diagnosis, and even then, no guaranty: 10 g of gluten per day for 6 weeks! Then a full panel of Celiac tests and biopsy. At a minimum consider vitamin D, Liquid Iodine (unless you have dermatitis herpetiformis and iodine exasperates the rash), and Liquid Geritol. Push for vitamin D testing and a consult with a nutritionist experienced with Celiack Disease.  Most blood tests don't indicate nutritional deficiencies.  Your thyroid tests can be perfect, yet not indicate iodine deficiency for example.  Thiamine   test fine, but not pick up on beriberi.  Vegans are often B12 deficient because meat, fish, poultry, eggs, and dairy are the primary souces of B12. Here is what I take daily.  10,000 IU vitamin D3 750 mg g a b a [   ] 200 mg CoQ10 [   ] 100 mg DHEA [   ] 250 mg thiamine B1 [   ] 100 mg of B2 [   ] 500 mg B5 pantothenic acid [   ] 100 mg B6 [   ] 1000 micrograms B12 n [   ] 500 mg vitamin c [   ] 500 mg taurine [   ] 200 mg selenium   
    • NanceK
      My only proof

      By NanceK · Posted

      Hi…Just a note that if you have an allergy to sulfa it’s best not to take Benfotiamine. I bought a bottle and tried one without looking into it first and didn’t feel well.  I checked with my pharmacist and he said not to take it with a known sulfa allergy. I was really bummed because I thought it would help my energy level, but I was thankful I was given this info before taking more of it. 
    • Wheatwacked
      Feel like I’m starting over

      By Wheatwacked · Posted

      Hello @Scatterbrain, Are you getting enough vitamins and minerals.  Gluten free food is not fortified so you may be starting to run low on B vitamins and vitamin D.   By the way you should get your mom checked for celiac disease.  You got it from your mom or dad.  Some studies show that following a gluten-free diet can stabilize or improve symptoms of dementia.  I know that for the 63 years I was eating gluten I got dumber and dumber until I started GFD and vitamin replenishment and it began to reverse.  Thiamine can get used up in a week or two.  Symptoms can come and go with daily diet.  Symptoms of beriberi due to Thiamine deficiency.   Difficulty walking. Loss of feeling (sensation) in hands and feet. Loss of muscle function or paralysis of the lower legs. Mental confusion. Pain. Speech difficulties. Strange eye movements (nystagmus) Tingling. Any change in medications? Last March I had corotid artery surgery (90 % blockage), and I started taking Losartan for blood pressure, added to the Clonidine I was taking already.  I was not recovering well and many of my pre gluten free symptoms were back  I was getting worse.  At first I thought it was caused a reaction to the anesthesia from the surgery, but that should have improved after two weeks.  Doctor thought I was just being a wimp. After three months I talked to my doctor about a break from the Losartan to see if it was causing it. It had not made any difference in my bp.  Except for clonindine, all of the previous bp meds tried had not worked to lower bp and had crippling side effects. One, I could not stand up straight; one wobbly knees, another spayed feet.  Inguinal hernia from the Lisinopril cough.  Had I contiued on those, I was destined for a wheelchair or walker. She said the symptoms were not from Losartan so I continued taking it.  Two weeks later I did not have the strength in hips and thighs to get up from sitting on the floor (Help, I can't get up😨).  I stopped AMA (not recommended).  Without the Losartan, a) bp did not change, after the 72 hour withdrawal from Losartanon, on clonidine only and b) symptoms started going away.  Improvement started in 72 hours.  After six weeks they were gone and I am getting better.  
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