Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cannot Cope Anymore, Physically Or Mentally.


charlotte-hall

Recommended Posts

charlotte-hall Apprentice

6 months of feeling ill, every single day. Nausea, tiredness, swollen throat, stomach pain, generally feeling rubbish. Missing loads of school and exams..

It's starting to effect me a lot now, I just feel like there's is no point in life anymore..just getting up to feel ill.

After 4 months gluten free still have a TTG level of 229 (normal is under 10)

No hope left anymore, starting to get depressed, and scared..I have massive emetophobia so feeling nauseous 24/7 is not a good thing at all!

Went to A&E, hospital said they couldnt do anything so got sent home..

Just really cannot cope.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dani nero Community Regular

You haven't mentioned much about your lifestyle.. like what do you usually eat, what precautions have you taken to make sure you're completely gluten-free.

The way you're feeling now is directly related to your health situation, believe me! Depression and feelings of hopelessness are caused by whatever is making you feel ill. We'll need more details to be able to find out what is making you feel ill though :-)

cahill Collaborator

6 months of feeling ill, every single day. Nausea, tiredness, swollen throat, stomach pain, generally feeling rubbish. Missing loads of school and exams..

It's starting to effect me a lot now, I just feel like there's is no point in life anymore..just getting up to feel ill.

After 4 months gluten free still have a TTG level of 229 (normal is under 10)

No hope left anymore, starting to get depressed, and scared..I have massive emetophobia so feeling nauseous 24/7 is not a good thing at all!

Went to A&E, hospital said they couldnt do anything so got sent home..

Just really cannot cope.

You are 14 years old,, are your parents gluten free??

charlotte-hall Apprentice

I'm 15, but no my house isn't gluten free

charlotte-hall Apprentice

I usually eat toast on a morning, with butter from my own butter, no cross contamination there, and with my own toaster. Gluten free bread obviously. Then usually at school, a sandwhich, yet again with gluten-free bread and my own butter and usually cheese or chicken. Then for tea..meat and vegetables, keeping it simple.

Maggie Mermaid Apprentice

I usually eat toast on a morning, with butter from my own butter, no cross contamination there, and with my own toaster. Gluten free bread obviously. Then usually at school, a sandwhich, yet again with gluten-free bread and my own butter and usually cheese or chicken. Then for tea..meat and vegetables, keeping it simple.

How about giving up any type of bread-like product for a weekend and see how you feel? For breakfast, you could have eggs or fruit with yogurt.

Sounds like some hidden cross-contamination somewhere. Maybe toothpaste, mouthwash, or lip balm/lipstick products are not 100% gluten-free?

kareng Grand Master

I'm Curious.... what do your parents say about this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



charlotte-hall Apprentice

I'm Curious.... what do your parents say about this?

Just struggling what to do, there seems to be no answer

kareng Grand Master

Just struggling what to do, there seems to be no answer

I meant, are they OK with the gluten-free thing? Do they keep any gluten in one place, away from your foods? Use separate colanders for your gluten-free pasta or fruit? No one in the house thinks its stupid and puts flour in your food? Have they checked any medications you take for gluten? No oats?

I'm trying to think of the things that have happened to others.

charlotte-hall Apprentice

I have oats cut out totally, I have seperate pans and my own cutlery etc. And no, they all realise the seriousness so I dont think someone doing it on purpose would be the case

MitziG Enthusiast

I am so sorry you are going through that. My daughter is 13 and has similar issues, and like you, major phobia of vomiting, which unfortunately, she does a lot. I would reccomend an elimination diet for now. Stick with very bland things- rice, chicken, fruit and veggies. Avoid dairy 100%. This can allow your gut to heal, and then you can try adding back one thing at a time. I promise you, this can get better!

As for the nausea, get some Braggs apple cider vinegar. Put a teaspoon in a glass of water and drink when your stomach hurts. It gives almost instant relief and really helps when my daughter is throwing up.

I know it is hard not to be discouraged, but it really will get better. Hang in there!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748

    ZENken
    Newest Member
    ZENken
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.