Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Undiagnosed 20 Month Old On gluten-free Diet - Bowel Issues


Ollie's Mom

Recommended Posts

Ollie's Mom Apprentice

OK so this is about my son's poop. Sorry if tmi but we all know it's a popular subject here...

I self diagnosed and have been gluten-free for about 3 years. Shortly after starting solids, we noticed my LO was having really awful, pale, stinky and grainy BM's. He was also pooping really frequently and got horrible bleeding rashes and sores on his butt. No matter how often we changed him. If we left him without his diaper on, we saw he'd poop every half hour or so.

The daycare he's in has a gluten-free option (food is catered). We signed him up and his poops and rashes got better immediately ( well, within a week or so).

He then transferred from the infant room, where he was fed in a high chair,to the toddler room where the kids sit side by side at the table to eat. Our little guy is a big eater and he'll steal food...

So over the past several months, since he switchedto the toddler room, he has started getting nasty poos again. Not as bad as before he went on the gluten-free diet but still pretty loose and very very foul smelling. He'll have 3 or 4 bm's a day. And sometimes his bum gets quite red.

We've asked the caregivers if it's possible he's grabbing the other kids' food and ingesting gluten. But they get all defensive and swear up and down that's impossible because they are always watching him(hmmmm yeah, right ).

Anyway - I'm looking for advice. If you were me would you suspect gluten is the likely culprit here? His bm's are clearly abnormal ( the caregivers make comments about them all the time). Or would you suspect something else? And if so what should I be on the lookout for?

He loves to eat and is growing like a weed (30 lbs at 20 mos) so this isn't stunting his growth. But he just isn't *right* if you know what i mean.

Any suggestions would be welcome.

Thx


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rosetapper23 Explorer

He may be getting cross-contamination from the toys that other children have touched...or even from the table surface. Also, he may be experiencing additional food sensitivities. You might try eliminating dairy, soy, and oats to see if any of these foods are causing his problems. These are the common trouble foods for people with celiac, but he may have a food sensitivity that is uniquely his.

Ollie's Mom Apprentice

Thanks for the input.

He doesn't eat oats but deffo he has dairy and soy. He never had issues with them before (when in the infant room at daycare) but anything's possible. Things do crop up over time. I'm just not sure if the catering company can accommodate such a restrictive diet. And daycare policy says I can't bring food in for him. Ugh. But I'll investigate what the catering co can do.

He does eat a lot of fruit (bananas, oranges, apples,strwaberries, etc. ) we were afraid those may have been contributing to his poop issues but a few weeks after cutting those way back we're still having the nasty poops.

*le sigh* who knew I'd spend so much time wishing for my son to have "normal" bm's ... lol

Mom2J112903 Newbie

My son has *never* had a normal bm. When he eats gluten, things are BAD, but *all* food causes problems for him.

If your son has a dietary need, either the daycare has to provide safe food or you will bring in what is safe for him. When it comes to a child's health, there should never be any agruments about their diets.

  • 2 weeks later...
Ollie's Mom Apprentice

Well after having him home with us over the long weekend, eating strictly gluten-free foods prepared by me, we were down to two normal looking and smelling bm's today. This has happened over other long weekends. But two day weekends don't seem to be enough time for him to get back to normal.

I guess he must b getting cc'd somehow. Friday he had 5 bm's. And they were huge and stinky.

Don't know how to get the daycare to take this seriously without a diagnosis. My gp won't take me seriously. So there's little hope daycare will.

beebs Enthusiast

Not sure how seriously anyone takes these things without an official diag - or even a diag- I found out yesterday that my son was playing with playdoh at school! WTF!

Mom2J112903 Newbie

Not sure how seriously anyone takes these things without an official diag - or even a diag- I found out yesterday that my son was playing with playdoh at school! WTF!

My son can play with playdough and be just fine. Now if he would eat it, that is a different story.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



clare89 Newbie

my son is just going through all the test at the moment and a very strict gluton, wheat, soya, dairy, eggs free diet and well im having similar problem that the school want even set up a meeting with us about his school dinners till they had letter from gp, gp want write letter as results from test aint back and this diet is just precaution given from consultants from hospital and gp has not recieved notes from this.so i have to take pack lunch in for him but they start moaning as he isnt getting all food groups as most of his lunch is fruit and veg any ideas wat i can give him

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

    2. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

    3. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

    4. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

    5. - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,871
    • Most Online (within 30 mins)
      7,748

    GR82BNTX
    Newest Member
    GR82BNTX
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.