Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feel Abnormal


KMMO320

Recommended Posts

KMMO320 Contributor

I have only been recently been tested for celiac disease, but one of the signs my dr took as me having celiac disease was my startling weight GAIN! I gained 36 pounds in less than 3 months. After checking my thyroid (I do have Hypothyroidism) and seeing that being good, she checked my vitamin levels and saw I was deficient in everything. She then sent me to a GI, who I see next week.

I have gained a massive amount of weight in such a short time, and I am already overweight to begin with. Most people here say they were losing weight fast befoer diagnosed...I feel abnormal.

Now I am going to be struggling double to lose this weight. :(

Just ranting.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

Rant away. This is the place.

I think there are just as many overweight celiacs as there are underweight celiacs. some gain weight, some lose weight & some CAN'T gain weight & some CAN'T lose weight pre diagnosis. I think a lot depends too on the stage you're at with the celiac disease. Maybe. This stuff is weird & there's no one size fits all. But I can say you are NOT abnormal.

Now breathe.biggrin.gif

faithforlife Apprentice

Im in same boat. I've totally gained on gluten-free diet and don't feel energetic or satisfied from eating. I'm looking out for a diet that will work for me.

sandsurfgirl Collaborator

I had unexplained weight gain no matter how hard I exercised before diagnosis. Still struggling to lose it 2 1/2 years later.

KMMO320 Contributor

I had unexplained weight gain no matter how hard I exercised before diagnosis. Still struggling to lose it 2 1/2 years later.

Thanks everyone.

I have always been a good 40-50 pounds over weight. Last year, I worked for the Post Office (temp) and walked between 8-9 hours a day, up and down stairs, carrying a 30lb bag, etc. I quickly lost 28 pounds in a few months. I left in Dec and by March, I had gained all 28, plus 5 more. In 3 months.

My Dr agreed that I shouldnt have gained that much..granted the amount of exercise changed, but my diet did not. I ate a little less since I wasn't using so much energy, if anything, but I didnt just sit around eating chips and stuff.

I do have a thyroid issue but my levels have been great.

So frustrating. I honestly thought food allergies happened to other people, not me :(

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wends replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Inconclusive results

    2. - nanny marley replied to nanny marley's topic in Related Issues & Disorders
      7

      Manitol and mri

    3. - nanny marley replied to nanny marley's topic in Related Issues & Disorders
      7

      Manitol and mri

    4. - Scott Adams replied to nanny marley's topic in Related Issues & Disorders
      7

      Manitol and mri

    5. - nanny marley replied to nanny marley's topic in Related Issues & Disorders
      7

      Manitol and mri


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,790
    • Most Online (within 30 mins)
      7,748

    Lori Jean
    Newest Member
    Lori Jean
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wends
      https://onlinelibrary.wiley.com/doi/10.1111/joim.70025 Very recent (September 2025) Finland study may be of interest. Borderline negative and low positive ant-TTG, with negative and positive EMA tests in patients diagnosed with Celiac Disease.
    • nanny marley
      Thanks for the list too makes me realise why I still get symptoms after cutting gluten , all that reading has just made sense to why I'm still struggling , thankyou Scott Adams very insightful , I've been baking to and there is xanthum gum in the flour , I understand now why I still have issues with that too, and ive had to cut dairy also , i had a terrible flare few months ago and my throat also was very irritable and I had sinuses issues all makes sence 👍
    • nanny marley
      Thankyou yes I read up on it beforehand , because or my trapped nerve when I have a bowel flare up it's impossible to keep still  which I will have to do for the MRI ,and it's so painful , and I know if this is what I'm thinking it to be it will cause me terrible issues , sometimes I get to the point where I just want to diagnose myself and act accordingly, because I've been at this year's , and I clearly have all the symptoms , it's so frustrating when you have all this going in and still feel no further ahead 😳
    • Scott Adams
      It looks like "mannite" is another name for "mannitol": https://en.wikipedia.org/wiki/Mannitol You are correct that it can trigger IBS-like symptoms, as we recently did an article on this: I'm not sure if there is a way around this, as it is likely needed for the test. Perhaps contact your doctor to see if there might be an alternative?
    • nanny marley
      Oral drink: You will be given a solution of mannitol mixed with water to drink over a period of about 30-60 minutes this is what it says it is ,?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.