Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Getting Worse?

1desperateladysaved

Recommended Posts

1desperateladysaved Proficient
1desperateladysaved
Posted

Do other people feel like they are getting worse? I cut out gluten a few weeks back and now when I come in contact with it, I can tell my body goes crazy. I don't really think that I was getting worse, so I decided upon the following:

My body had been so overwhelmed that it was constantly reacting to gluten. I felt awful, but there was nothing else, so it was an uncomfortable normal. Now, part of the time I am actually feeling better. My body is well enough to begin to react. I feel it!

Listen to your body. Now just why did I feel glutened after dinner last night?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


josh052980 Enthusiast
josh052980
Posted

Do other people feel like they are getting worse? I cut out gluten a few weeks back and now when I come in contact with it, I can tell my body goes crazy. I don't really think that I was getting worse, so I decided upon the following:

My body had been so overwhelmed that it was constantly reacting to gluten. I felt awful, but there was nothing else, so it was an uncomfortable normal. Now, part of the time I am actually feeling better. My body is well enough to begin to react. I feel it!

Listen to your body. Now just why did I feel glutened after dinner last night?

If you cut out gluten only a few weeks ago, you're still healing. When I went gluten-free, the first few months were hell. I still felt like I was on the stuff. Even now, after over a year, I will still get seemingly random symptoms. The symptoms you get during a reaction may change too, mine have over time. The key is not to get discouraged. Stick with gluten free, keep a food diary to see if you may possibly have other intolerances and sensitivites (most of us do). The most important thing though is to never think of this as a limitation, but as what you have to do to feel yourself!

sa1937 Community Regular
sa1937
Posted

Do other people feel like they are getting worse? I cut out gluten a few weeks back and now when I come in contact with it, I can tell my body goes crazy. I don't really think that I was getting worse, so I decided upon the following:

My body had been so overwhelmed that it was constantly reacting to gluten. I felt awful, but there was nothing else, so it was an uncomfortable normal. Now, part of the time I am actually feeling better. My body is well enough to begin to react. I feel it!

Listen to your body. Now just why did I feel glutened after dinner last night?

When we go gluten-free, I think we become even more sensitive to very tiny amounts of gluten. Our bodies can be pretty wonky at first and it seems like we can react to most anything and everything. Are you lactose intolerant? Many of us have to give up dairy products for awhile.

That said...what did you have for dinner last night?

Sassy Cat Newbie
Sassy Cat
Posted

My daughter was recently diagnosed with Celiac. I have found that cross contamination is usually the culprit when she gets sick now. When she feels bad now, her reactions are much more severe than anything she had before going gluten free. Her doctor thought that it was very possible that her healing body would react much stronger than ever before. I am at the point that if I do not make it she is not eating it. I just can not stand seeing her sick because of a decision that I made. The only food that I can be sure of is what I make myself. The items that were made by family have almost always ended up making her sick - even if it is an item that is naturally gluten free. I will take her out to eat (rarely) but only at a very select few restaurants that actually understand celiac. I have found that people understand what is gluten free much easier than anything dealing with cross contamination. Nobody seems to understand how serious is can be if her food comes in contact with any gluten. Our new family motto is - take food with us everywhere!

1desperateladysaved Proficient
1desperateladysaved
Posted
  • Author

:P Beef brocolli and wild rice. Maybe it was scientific; I had it again as leftovers for today's lunch. I am okay, so perhaps it was just random symptoms.

I avoid dairy, except for an occasional dab of butter. I try to use olive oil or coconut oil instead.

My doctor said that I will drive my family crazy for 6 months! :huh: I take it that the recovery is slow, and after only 30 years of intense fatigue? :blink:

Yesterday, I thought next year would be 2014. Today I was looking for a gluten cooking class. I thought I saw "Gluten T Ball"! When I looked carefully it said Gillman T Ball. Chalk more up for Gluten withdrawl, and I sure hope this will pass.

sa1937 Community Regular
sa1937
Posted

Diana, was regular soy sauce used in the beef and broccoli?

We can drive our families nuts...as well as our friends. laugh.gif

It sure sounds like you are going through withdrawal.

1desperateladysaved Proficient
1desperateladysaved
Posted
  • Author

I used Chinese 5 spice powder to flavor my dish. I used arrowroot starch to thicken it. I have problems with fermentation, so soy sauce has been out for years!It was very simalar to the beef stir fry I read in the recipes yesterday. Yummy :P

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


1desperateladysaved Proficient
1desperateladysaved
Posted
  • Author

My daughter was recently diagnosed with Celiac. I have found that cross contamination is usually the culprit when she gets sick now. When she feels bad now, her reactions are much more severe than anything she had before going gluten free. Her doctor thought that it was very possible that her healing body would react much stronger than ever before. I am at the point that if I do not make it she is not eating it. I just can not stand seeing her sick because of a decision that I made. The only food that I can be sure of is what I make myself. The items that were made by family have almost always ended up making her sick - even if it is an item that is naturally gluten free. I will take her out to eat (rarely) but only at a very select few restaurants that actually understand celiac. I have found that people understand what is gluten free much easier than anything dealing with cross contamination. Nobody seems to understand how serious is can be if her food comes in contact with any gluten. Our new family motto is - take food with us everywhere!

I had a "car oven." It could keep warm one or two servings by plugging into the 9 volt outlet of the car. Mine lasted a year or two. It was 40 dollars.

I have seen advertised a travelbuddy oven. They claim it uses the 9 volt connection of the car and will bake a pie. The cost was around 200 dollars. I sure like the larger capacity and ability to get hotter.

dilettantesteph Collaborator
dilettantesteph
Posted

I have also seemed to get sensitive to lower amounts of gluten as time goes on. I've also had problems with some spices. I also can't tell very well if I'm glutened until the day after I eat the contaminated item. You are new to this and it takes awhile to figure it all out. Keeping a food/symptoms journal is very helpful. Good luck.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      What the College Dining Hall Experience Means for Students with Celiac Disease (+Video)

    2. sc'Que?
      - sc'Que? commented on Celiac.com Sponsor: Review's article in Product Reviews
      1

      Bold Taste, No Alcohol & Crafted to Remove Gluten: Daura Non-Alc Beer Takes Alcohol-Free Beer to the Next Level

      @Daura Damm: Can we get a gluten-free Imperial Oatmeal Stout, please? Please?!?
    3. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet official, the Health Director of...
    4. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac...
    5. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together. Our bodies can make Taurine from meats consumed. Our bodies cannot make Thiamine and must consume thiamine from food. Meat is the best source of B vitamins like Thiamine. Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,548
    • Most Online (within 30 mins)
      7,748
    KandiWoods
    Newest Member
    KandiWoods
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Mari
      My only proof

      By Mari · Posted

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.