Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Heartburn After Eating Gluten Free Foods...


lesliev523

Recommended Posts

lesliev523 Rookie

Since going gluten-free, I feel SO much better. But I have had two terrible heartburn experiences. I mean this was not mild heartburn, this was chest on fire MAKE IT GO AWAY hearburn! Both times were after I ate food labeled as "gluten free".

The first time was after trying a gluten-free pizza on special gluten-free crust.

This last time was after having a handful of gluten-free pretzels by Glutino. They were really good too.... but but worth the after burn.

What could be causing this? Any thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFreeMO Proficient

This happens to me when I get glutened by cross contamination. It happens a day or so before the intestinal issues start. Either that or there is something else in the food that doesn't agree with you such as soy or corn etc.

Mnicole1981 Enthusiast

That happened to me two weekends ago. I could not figure out what caused it.

ravenwoodglass Mentor

Was that a take out pizza? Not all places that do gluten free pizza have pizza that is really gluten free due to all the cross contamination issues.

The Glutino pretzels would have gotten me because of the soy but I don't know if that is the case for you.

Pepto Bismal liquid usually puts the burn out really quick for me.

lesliev523 Rookie

Was that a take out pizza? Not all places that do gluten free pizza have pizza that is really gluten free due to all the cross contamination issues.

The Glutino pretzels would have gotten me because of the soy but I don't know if that is the case for you.

Pepto Bismal liquid usually puts the burn out really quick for me.

It definitely could be cross contamination, because I am having issues keeping my kitchen area gluten free. I have two teenage boys that cook for themselves, and they aren't always the cleanest...

Thanks for the info!

Mom23boys Contributor

Some of the gluten-free flours will do that to me. I have to be picky. I have to watch soy (which I know is in the pretzels) and bean flours.

Personally, I wouldn't automatically blame gluten for any problems. I was sicker with the gluten-free products than I ever have been with gluten (same for the others in our house). We have to be very careful which sub we choose which is another reason why I just make my own.

bisja Apprentice

Since going gluten-free, I feel SO much better. But I have had two terrible heartburn experiences. I mean this was not mild heartburn, this was chest on fire MAKE IT GO AWAY hearburn! Both times were after I ate food labeled as "gluten free".

The first time was after trying a gluten-free pizza on special gluten-free crust.

This last time was after having a handful of gluten-free pretzels by Glutino. They were really good too.... but but worth the after burn.

What could be causing this? Any thoughts?

I get sick off of many gluten free products, I am very sensitive though, but I get that horrible heartburn too. Nothing seems to work to get rid of it for me till the whole experience runs its course. I am at the point of knowing I just need to make from scratch all my food.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFreeMO Proficient

I get sick off of many gluten free products, I am very sensitive though, but I get that horrible heartburn too. Nothing seems to work to get rid of it for me till the whole experience runs its course. I am at the point of knowing I just need to make from scratch all my food.

Exact same for me!

lesliev523 Rookie

I am so glad that I am not the only one! I guess I will just have to stay away from gluten-free substitute food. And when it makes me as sick to my stomach as I was the last two time I tried it, I don't think it will be that hard.

Thank you!

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,194
    • Most Online (within 30 mins)
      7,748

    Eliana123
    Newest Member
    Eliana123
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.