Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Want To Start A New Chapter After Graduation!


Victoria6102

Recommended Posts

Victoria6102 Contributor

I'm graduating from high school tomorrow! Yay! Thankfully my parents bought md gluten free food that looks like what everyone else is eating. Which is what I'm trying to work on.

As some of you may know, I have trouble with people understanding/believing me about celiac at my church. Specifically the teens. I got into yet another argument about it with one of these teens the other week. It was awful. She denied ever doing the things we were taking about her doing, right as the adults came over and it made me look really stupid. My best friend offered to talk to this girl and ask her why she gives me such a hard time about celiac. And do you know what the girl said? "because she expresses it too much" I express it too much? My friend asked what that meant. The reply " because she brings her own food and obviously exaggerates." welll I'm still going to bring my own food. I don't express it unless someone asks me why k have my own food and I tell them because I have celiac. And I don't exaggerate (I'm sure you guys get that line too!:P )but I want to start a new chapter. I've been eating gluten free for a year and a half now and I feel like I'm ready to educate people better than I could before.

I'm going to give it one more try at educating these rude teens about celiac. About why I eat the way I do. About how important it is that I eat this way. My question is....how can I not "express" my celiac as much? Is there a way? I don't talk about unless someone asks me about it. But what can j do different? I'm graduating and want to try one more time over the summer to help these (helpless) teens be more compassionate and understand health problems. Otherwise I will never have another chance as I start college in the fall.

What can I do? My life is SO stressed right now and to have my teen class be understanding would take a lot of stress away. Thanks:)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dani nero Community Regular

Personally I think you should stop caring so much about them and more about yourself. I found out that I'm generally happier and more relaxed when I let go of the need for others to understand and support me. I have hubs who's great, and I don't need anyone who makes life harder or more stressful for me. I'll do what makes me feel well, and others will have to accept it without giving me trouble, because it's how I want to live. They're welcome if they want to be supportive, but I won't sweat over it if they're against anything I do. I think your new chapter should be more about letting go and being "over" their understanding / support. I think you'll be happier if you didn't long for their approval and just live to satisfy your needs Victoria.

That's just what I think anyway.

And congratulations on graduating by the way.

Victoria6102 Contributor

Hmmm I guess that makes a lot of sense!

Thanks:)

sa1937 Community Regular

Congrats on your graduation, Victoria!

I think teens can be so insensitive at times...actually downright cruel at other times. I have two teenage granddaughters even though they are younger than you but I've already heard a few stories.

I guess there are insensitive people of all ages. But I definitely think it'll be easier when you get a bit older. Personally I don't give a rat's behind what people may think of me or my diet. laugh.gif

mamaw Community Regular

congrats & Dani Nero is correct.. Some people just don't care enough to learn , don't waste your time...

Skylark Collaborator

congrats & Dani Nero is correct.. Some people just don't care enough to learn , don't waste your time...

Your compassion is wonderful and you are right to feel sorry for these kids. They are creating bad karma in their lives and it will catch up to them eventually. You can't do much about it right now, but they will eventually get put in a situation where they will need to rely on compassion from others and get a chance to learn. Some will learn, some won't.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,946
    • Most Online (within 30 mins)
      7,748

    Miva
    Newest Member
    Miva
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
    • DebJ14
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.