Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Outrageous Things Doctors Have Told Me


1desperateladysaved

Recommended Posts

1desperateladysaved Proficient

*My dentist noticed the enamel off of my teeth by 1990.

*A dentist, in alarm, said you have allergies big time. 199-.

*My Obstetritian told me she thought I had 5% of my bone mass left at age about 25.

All of the above were given without advice or information about what to do. It was totally mysterious and I shrugged it off.

My chiropractor told me that my metabolism was more out of balance than people that had had chemotherapy. 1993.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Razzle Dazzle Brazell Enthusiast

*My dentist noticed the enamel off of my teeth by 1990.

*A dentist, in alarm, said you have allergies big time. 199-.

*My Obstetritian told me she thought I had 5% of my bone mass left at age about 25.

All of the above were given without advice or information about what to do. It was totally mysterious and I shrugged it off.

My chiropractor told me that my metabolism was more out of balance than people that had had chemotherapy. 1993.

Wow! I think doctors are either too busy or do not want to admit they are less than Gods and dont know everything.

I also have had enamel deficiency since I was middle school. I am now almost twenty-two. I had hyperlordosis that was completely ignored for years and no one even mentioned as well as a degenerated disc at the base of my spine that no one mentioned despite a gazillion xrays. I found out recently on out of pocket trip to a chiropractor.

dilettantesteph Collaborator

I also had enamel problems since forever. A local dentist spoke to our celiac support group recently. They are trying to educate dentists so that they will point their patients with certain celiac indicators such as enamel problems towards testing for celiac disease.

slee11211 Apprentice

Doctor told me that 9 mos of what seemed like food sickness was IBS, that I'd have it for life, and to go join a support group.

After birth of my son, I went from a size 10 to a size -2 in about 6 months...then in another 6 month back up to a size 12!

Another doctor told me that I just had chronic reflux, put me on higher and higher doses of meds, finally put me under to take a look and didn't see a thing related to celiac.

At that time, I had chronic urticaria all over my body for 3 yrs....constant sinus infections, caught every single cold etc that came my way via my son (young), depression (not diagnosed PPD, just "anxiety")

Went to an allergist through all this, came up allergic to soooo much, and he said "you seem to be allergic to something called gluten", "what's that?", "oh, it's just this sticky part in a wheat product, nothing to be concerned about" (and he completely brushed it off, so it didn't sound so important to me)..."oh, and you're also completely allergic to milk. and eggs", "so what are the hives from?", "it would appear that you're allergic to cats, it's definitely from that", "FOR THREE YEARS??", "yes"....I got up to leave, and he says this as I'm half way out the door, "Oh! You should also know that your Vit D levels are almost non-existent! Bye!"

All this info goes back to my INSANELY POPULAR NYC Doctor, who people wait for months to see, who is written about extensively in New York Mag.....and he does't come up with a THING. Nothing.

Yes, it's incredibly frustrating that a mere few months later, and a naturopathic CELIAC doc does the right blood test and what do you know...raging Celiac and thyroid issues.

Razzle Dazzle Brazell Enthusiast

Doctor told me that 9 mos of what seemed like food sickness was IBS, that I'd have it for life, and to go join a support group.

After birth of my son, I went from a size 10 to a size -2 in about 6 months...then in another 6 month back up to a size 12!

Another doctor told me that I just had chronic reflux, put me on higher and higher doses of meds, finally put me under to take a look and didn't see a thing related to celiac.

At that time, I had chronic urticaria all over my body for 3 yrs....constant sinus infections, caught every single cold etc that came my way via my son (young), depression (not diagnosed PPD, just "anxiety")

Went to an allergist through all this, came up allergic to soooo much, and he said "you seem to be allergic to something called gluten", "what's that?", "oh, it's just this sticky part in a wheat product, nothing to be concerned about" (and he completely brushed it off, so it didn't sound so important to me)..."oh, and you're also completely allergic to milk. and eggs", "so what are the hives from?", "it would appear that you're allergic to cats, it's definitely from that", "FOR THREE YEARS??", "yes"....I got up to leave, and he says this as I'm half way out the door, "Oh! You should also know that your Vit D levels are almost non-existent! Bye!"

All this info goes back to my INSANELY POPULAR NYC Doctor, who people wait for months to see, who is written about extensively in New York Mag.....and he does't come up with a THING. Nothing.

Yes, it's incredibly frustrating that a mere few months later, and a naturopathic CELIAC doc does the right blood test and what do you know...raging Celiac and thyroid issues.

That is insane! It is ironic that medical doctor is the highest regarded profession and yet many of them dont pay any attention to what they are doing with people. It is like ordering soup and getting a bowl full of broth, a bowl of carrots, a bowl of uncooked chicken, a bowl of spices... It just makes no sense to me. We got each other though on this forum and we have to be our own advocates. I hope you and the OP get well.

Razzle Dazzle Brazell Enthusiast

I also had enamel problems since forever. A local dentist spoke to our celiac support group recently. They are trying to educate dentists so that they will point their patients with certain celiac indicators such as enamel problems towards testing for celiac disease.

That is very good. I wish my dentist would have thought, "This is odd; this girl is only ten and has enamel deficiency."He just mentioned it to me after my complaining of my teeth staying stained even though i dont drink tea or coffee.

catsmeow Contributor

I have a severe wheat allergy.

I had one allergy doctor refuse to do food allergy testing on me, and told me that I have Vasomoto allergies (allergies without a cause), and I would be sick for the rest of my life, no medications would help, and he could do nothing for me, and there was nothing I could do about it. :blink:

Another doctor told me that my anaphylactic reactions were menopausal symptoms....LMAO. Wheat induced menopause....OMGosh!!! I'm not even in menopause. Someone quick, write a case study about me, I'm a medical anomaly!!! :P

Finally, another doctor tested me for food allergies and said, you have a severe wheat allergy and must be gluten free for life and carry an epi-pen. :)

Thank you for this thread, I needed some humor today....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient
Thank you for this thread, I needed some humor today....

Your welcome, It is best to take things with some humor. It is better than crying about it. :lol:

catsmeow Contributor

Thank you for this thread, I needed some humor today....

Your welcome, It is best to take things with some humor. It is better than crying about it. :lol:

You are right, I like humor better. I've cried plenty!!! :D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - sc'Que? commented on Scott Adams's article in Product Labeling Regulations
      1

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

    2. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

    3. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    4. - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,169
    • Most Online (within 30 mins)
      7,748

    Annette Hill
    Newest Member
    Annette Hill
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.