Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can This Be Celiac?


Big Bob

Recommended Posts

Big Bob Newbie

I have been having frequent bowel movements, soft stool, diareaha, and everything in between. I have had excess gas and bloating, belching for years. I was diagnosed with acid reflux 4 yrs ago. I had my gallbladder removed 3 years ago and that's when most of the symptoms started. 2 days after surgery I had dermatitis on my face. I now get itchy bumps, blisters on my arms (mildly, not severe), I get bad pains in my right arm, shoulder(upper and back) Itchy bumps on my skull and back of neck in the hairline. I have had loose stool since the surgery but in the last 3 weeks it has turned into a nightmare going anywhere from 7 to 12 times a day. It stated the morning after I had eaten a meal of french fries doused in malt vinegar, pork bbq sandwitch, and a large wheat ale. I went to the doctor and he said it was a virus,ok then I went back after 10 days and he said it was still a stomach virus but did order blood and stool tests. I haven't gotten the results yet but while doing a google search on my symptoms I came across this thing called celeac sprue. I have researched the symptoms and found that even my leg pains could come from this. I will bring it to my docs attention. So what do YOU think?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

I have been having frequent bowel movements, soft stool, diareaha, and everything in between. I have had excess gas and bloating, belching for years. I was diagnosed with acid reflux 4 yrs ago. I had my gallbladder removed 3 years ago and that's when most of the symptoms started. 2 days after surgery I had dermatitis on my face. I now get itchy bumps, blisters on my arms (mildly, not severe), I get bad pains in my right arm, shoulder(upper and back) Itchy bumps on my skull and back of neck in the hairline. I have had loose stool since the surgery but in the last 3 weeks it has turned into a nightmare going anywhere from 7 to 12 times a day. It stated the morning after I had eaten a meal of french fries doused in malt vinegar, pork bbq sandwitch, and a large wheat ale. I went to the doctor and he said it was a virus,ok then I went back after 10 days and he said it was still a stomach virus but did order blood and stool tests. I haven't gotten the results yet but while doing a google search on my symptoms I came across this thing called celeac sprue. I have researched the symptoms and found that even my leg pains could come from this. I will bring it to my docs attention. So what do YOU think?

I think you have some of the symptoms for sure. Best wishes on getting well!

Big Bob Newbie

I think you have some of the symptoms for sure. Best wishes on getting well!

Yes I think so too. Thanks for the Well Wishes!

squirmingitch Veteran

I think it's quite likely that you have celiac disease also. At the very least maybe non celiac gluten intolerance.

If you want to get tested then DO NOT stop eating gluten until ALL testing is done including an endoscopy with biopsies.

GFinDC Veteran

Hi BBob,

Sounds like it could be celiac to me. There are quite a few threads on this forum by people who had their gall bladders removed thinking that was the problem. But it wasn't. Having a gall bladder removed does cause it's own set of problems with digestion, and the time to adjust to not having a gall bladder can vary . But several months to a year is what I have read.

The celiac antibody tests are a simple blood draw that they send off to a lb for analysis. If those are positive the doc may want to do an endoscopy but that is optional IMHO.

To get fairly reliable results though you need to keep eating gluten until the tests are completed. Unfortunately the results are not 100% accurate, especially when it comes to negative results. It's best to go ahead and try the gluten-free diet for a several months regardless of what the test results say. You may find your body responds positively in a few weeks. But the gall bladder removal could skew the results. People here have reported diahrea after a gall bladder removal until their systems adjust.

Big Bob Newbie

Hi BBob,

Sounds like it could be celiac to me. There are quite a few threads on this forum by people who had their gall bladders removed thinking that was the problem. But it wasn't. Having a gall bladder removed does cause it's own set of problems with digestion, and the time to adjust to not having a gall bladder can vary . But several months to a year is what I have read.

The celiac antibody tests are a simple blood draw that they send off to a lb for analysis. If those are positive the doc may want to do an endoscopy but that is optional IMHO.

To get fairly reliable results though you need to keep eating gluten until the tests are completed. Unfortunately the results are not 100% accurate, especially when it comes to negative results. It's best to go ahead and try the gluten-free diet for a several months regardless of what the test results say. You may find your body responds positively in a few weeks. But the gall bladder removal could skew the results. People here have reported diahrea after a gall bladder removal until their systems adjust.

Thanks for the input. I have tried to do the gluten free for the past 2 days so I guess I better start eating it again if I'm going to be tested. I would think that my digestive system would be getting better since it will be 3 yrs in Oct. since my surgery but it's getting worse instead.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Oh my goodness medication causing pain !!!!

    2. - Colleen H replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

    3. - Juliane replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

    4. - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,842
    • Most Online (within 30 mins)
      7,748

    Julia Duffee
    Newest Member
    Julia Duffee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      I think I found a huge culprit for severe reactions to create worsening of my c symptoms. Do people with celiac have sensitivity and /or have opposite reaction to certain medications Where can I find a list ?  I'm new here I'm.wondering why I am getting worse when I take certain medicine...the burning feet.  Rebound muscle pain so intense  How many people get opposite effects or have a horrible attack after these meds
    • Colleen H
      Does anyone know if that includes scrambled eggs and healthy smart butter (,gluten free) I add a very tiny amount of margarine less than a teaspoon.  I did no't have any bread    It just seems like no matter what I eat my stomach and nerves over fire and here comes a host of horrible symptoms. My lower abdomen feels horrible, my right leg thigh muscle.. very odd. Jaw pain. Burning feet , joint pain , you name it  The anxiety just creeps up into brain fog. I don't think I could explain this to anyone who is unfamiliar.  Also,  I most likely will not remember posting this until I check it.  This is highly unusual for me because I have an excellent memory.  One weekend before I knew anything about celiac I lost an entire weekend from severe brain fog, confusion, pain, etc.  I honestly thought I was losing my mind. When I think back I recall eating a lot of PBJ sandwiches and turkey sandwiches.  Once again did not know about gluten.  I was just too sick to cook. Do people fast during attacks ?? It seems horrible to keep going through this. I hope I'm not causing my own problems... I wonder if I should fast because I'm not eating gluten .  Chicken ,  scrambled eggs no milk , canned carrots,  gluten free low sugar low fat Greek yogurt which I already posted about 😞 Any suggestions I am open... I am bedridden when this happens to me.  Thank you Celiac community. 🙏🏻❤️      
    • Juliane
      Yeah, that sounds super familiar. When inflammation levels are high — especially at the start of changing your diet — the body often develops a fructose and lactose intolerance. Unfortunately, the only thing that really helps is cutting out anything that isn’t lactose-free or that contains sugar. So basically, stick to meat, veggies, fish…
    • RMJ
      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.