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Can This Be Celiac?


Big Bob

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Big Bob Newbie

I have been having frequent bowel movements, soft stool, diareaha, and everything in between. I have had excess gas and bloating, belching for years. I was diagnosed with acid reflux 4 yrs ago. I had my gallbladder removed 3 years ago and that's when most of the symptoms started. 2 days after surgery I had dermatitis on my face. I now get itchy bumps, blisters on my arms (mildly, not severe), I get bad pains in my right arm, shoulder(upper and back) Itchy bumps on my skull and back of neck in the hairline. I have had loose stool since the surgery but in the last 3 weeks it has turned into a nightmare going anywhere from 7 to 12 times a day. It stated the morning after I had eaten a meal of french fries doused in malt vinegar, pork bbq sandwitch, and a large wheat ale. I went to the doctor and he said it was a virus,ok then I went back after 10 days and he said it was still a stomach virus but did order blood and stool tests. I haven't gotten the results yet but while doing a google search on my symptoms I came across this thing called celeac sprue. I have researched the symptoms and found that even my leg pains could come from this. I will bring it to my docs attention. So what do YOU think?


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1desperateladysaved Proficient

I have been having frequent bowel movements, soft stool, diareaha, and everything in between. I have had excess gas and bloating, belching for years. I was diagnosed with acid reflux 4 yrs ago. I had my gallbladder removed 3 years ago and that's when most of the symptoms started. 2 days after surgery I had dermatitis on my face. I now get itchy bumps, blisters on my arms (mildly, not severe), I get bad pains in my right arm, shoulder(upper and back) Itchy bumps on my skull and back of neck in the hairline. I have had loose stool since the surgery but in the last 3 weeks it has turned into a nightmare going anywhere from 7 to 12 times a day. It stated the morning after I had eaten a meal of french fries doused in malt vinegar, pork bbq sandwitch, and a large wheat ale. I went to the doctor and he said it was a virus,ok then I went back after 10 days and he said it was still a stomach virus but did order blood and stool tests. I haven't gotten the results yet but while doing a google search on my symptoms I came across this thing called celeac sprue. I have researched the symptoms and found that even my leg pains could come from this. I will bring it to my docs attention. So what do YOU think?

I think you have some of the symptoms for sure. Best wishes on getting well!

Big Bob Newbie

I think you have some of the symptoms for sure. Best wishes on getting well!

Yes I think so too. Thanks for the Well Wishes!

squirmingitch Veteran

I think it's quite likely that you have celiac disease also. At the very least maybe non celiac gluten intolerance.

If you want to get tested then DO NOT stop eating gluten until ALL testing is done including an endoscopy with biopsies.

GFinDC Veteran

Hi BBob,

Sounds like it could be celiac to me. There are quite a few threads on this forum by people who had their gall bladders removed thinking that was the problem. But it wasn't. Having a gall bladder removed does cause it's own set of problems with digestion, and the time to adjust to not having a gall bladder can vary . But several months to a year is what I have read.

The celiac antibody tests are a simple blood draw that they send off to a lb for analysis. If those are positive the doc may want to do an endoscopy but that is optional IMHO.

To get fairly reliable results though you need to keep eating gluten until the tests are completed. Unfortunately the results are not 100% accurate, especially when it comes to negative results. It's best to go ahead and try the gluten-free diet for a several months regardless of what the test results say. You may find your body responds positively in a few weeks. But the gall bladder removal could skew the results. People here have reported diahrea after a gall bladder removal until their systems adjust.

Big Bob Newbie

Hi BBob,

Sounds like it could be celiac to me. There are quite a few threads on this forum by people who had their gall bladders removed thinking that was the problem. But it wasn't. Having a gall bladder removed does cause it's own set of problems with digestion, and the time to adjust to not having a gall bladder can vary . But several months to a year is what I have read.

The celiac antibody tests are a simple blood draw that they send off to a lb for analysis. If those are positive the doc may want to do an endoscopy but that is optional IMHO.

To get fairly reliable results though you need to keep eating gluten until the tests are completed. Unfortunately the results are not 100% accurate, especially when it comes to negative results. It's best to go ahead and try the gluten-free diet for a several months regardless of what the test results say. You may find your body responds positively in a few weeks. But the gall bladder removal could skew the results. People here have reported diahrea after a gall bladder removal until their systems adjust.

Thanks for the input. I have tried to do the gluten free for the past 2 days so I guess I better start eating it again if I'm going to be tested. I would think that my digestive system would be getting better since it will be 3 yrs in Oct. since my surgery but it's getting worse instead.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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