Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Another Step Backward

Birdie19

Recommended Posts

Birdie19 Rookie
Birdie19
Posted

Daycare let my kid eat a donut yesterday. I haven't really explained to my child the reason we are eating different, I have been just trying to replace things in her diet to keep it normal. So yesterday when daycare put bowls on the table with donuts in them my daughter grabbed a bowl as she always had and she starting eating. It was 2 bites but we are back to square one. I am so disappointed. We were 2 weeks in....=(

Should I explain it to my 3.5 year old? Or just keep replacing? How do you have this conversation?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lfrost Explorer
Lfrost
Posted

That is so frustrating. My son also had that happen (his were pretzels) I only found out about it because we were keeping a food diary. The interesting thing is that my son's teacher is celiac and her assistant is gluten intolerant! I thought for sure they would have been on the lookout!

Mom-of-Two Contributor
Mom-of-Two
Posted

The daycare provider is a celiac and gave your kiddo pretzels, oh my gosh! :o

Birdie19 Rookie
Birdie19
Posted
  • Author

Seriously? They both don't eat gluten/wheat and they gave him pretzels? WOW. Weird, I wonder what went through their head.

I am so disappointed to start over, on the upside I found a fantastic gluten-free bakery yesterday and went a little overboard, ok a lot overboard!!!!

lovegrov Collaborator
lovegrov
Posted

Absolutely explain to your child. If she had known, she still might have eaten it, but OTOH, at that age she might have stuck her chin out and said "My mommy says I'll get sick if I eat that."

richard

Lfrost Explorer
Lfrost
Posted

Yeah, I couldn't believe it either! In their defense, it is a Montessori School and the parents bring snack. The teachers set it out and the kids serve themselves. Colton (my son) is 4 and brand new to the diet. My guess is that they caught him eating it and wrote it in his diary. The thing that got me is that they didn't tell me, it was the last day of school and I had to read it in his diary.

MitziG Enthusiast
MitziG
Posted

I would explain it to her now. She isn't going to be able to be vigilant however, so you do need to speak firmly to her teachers. They need to treat it like they would a kid with a deadly peanut allergy, and they need to be reminding her when they put out a snack that she can't eat that snack, but here is the snack Mommy sent for her. But, definitely start telling her that she always needs to ask before she eats anything if it is safe. This is the best time for her to develop the habit, before she starts to resent being "different".

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Birdie19 Rookie
Birdie19
Posted
  • Author

I know this seems ridiculous but what wording do you use? I have been saying it will hurt her tummy but I feel like I have to have a better way of saying it.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Heatherisle
      - Heatherisle replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      22

      Pain in the right side of abdomen

      Hasn’t been given folic acid as GP says vit b and folic acid can’t be given together which I find strange cos any time I did venepunctures B12 and folate were always grouped together? Her folate level was 2.2, just below the normal level
    2. Heatherisle
      - Heatherisle replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      22

      Pain in the right side of abdomen

      Hi Thanks for your input. Don’t know which exact medication she’s on, keep asking but she keeps forgetting!!! I still think her Vitamin D levels might be low cos she had the back pain and tingling last year( around March /April) and levels were low so she had 3 month course then and it helped. She’s coming home next week (as in to ours) for a long weeke...
    3. knitty kitty
      0

      Dairy and Celiac: studies

    4. Scott Adams
      - Scott Adams replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      how long does it take for the genetic blood test for celiac to come back?

      Genetic testing for celiac disease (the HLA-DQ2 and HLA-DQ8 genes) usually takes about 3–10 days to come back, depending on the lab your doctor uses, though some places may take up to two weeks. The test itself doesn’t diagnose celiac disease—it only shows whether you carry the genes that make celiac possible. About 30–40% of people have one of these genes, ...
    5. knitty kitty
      - knitty kitty replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      22

      Pain in the right side of abdomen

      @Heatherisle, You're not a bother at all. What "Vitamin B medication" is she taking? Is it just B12 and folate? All eight B vitamins, Vitamin D and other vitamins and minerals need to be supplemented because the malabsorption of Celiac disease affects all the nutrients. All the B vitamins work together. Just supplementing one or two...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,667
    • Most Online (within 30 mins)
      7,748
    S.Aulman
    Newest Member
    S.Aulman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Heatherisle
      Pain in the right side of abdomen

      By Heatherisle · Posted

      Hasn’t been given folic acid as GP says vit b and folic acid can’t be given together which I find strange cos any time I did venepunctures B12 and folate were always grouped together? Her folate level was 2.2, just below the normal level
    • Heatherisle
      Pain in the right side of abdomen

      By Heatherisle · Posted

      Hi Thanks for your input. Don’t know which exact medication she’s on, keep asking but she keeps forgetting!!! I still think her Vitamin D levels might be low cos she had the back pain and tingling last year( around March /April) and levels were low so she had 3 month course then and it helped. She’s coming home next week (as in to ours) for a long weekend so hopefully some TLC from mum and dad will help!!!    
    • Scott Adams
      how long does it take for the genetic blood test for celiac to come back?

      By Scott Adams · Posted

      Genetic testing for celiac disease (the HLA-DQ2 and HLA-DQ8 genes) usually takes about 3–10 days to come back, depending on the lab your doctor uses, though some places may take up to two weeks. The test itself doesn’t diagnose celiac disease—it only shows whether you carry the genes that make celiac possible. About 30–40% of people have one of these genes, but only a small percentage actually develop celiac disease. However, if the test is negative for both genes, celiac disease becomes extremely unlikely, which is why your doctor mentioned possibly canceling the endoscopy if the result is negative. If it’s positive, it just means celiac remains a possibility and further testing, like a gluten challenge followed by endoscopy, helps confirm it. Since you have an identical twin, it’s definitely useful information to share if the genes are present, because twins share the same genetic risk. It sounds like you found a very thorough GI doctor, which is great, especially since she’s also monitoring nutrients and looking at the whole picture.
    • knitty kitty
      Pain in the right side of abdomen

      By knitty kitty · Posted

      @Heatherisle, You're not a bother at all.   What "Vitamin B medication" is she taking?  Is it just B12 and folate?   All eight B vitamins, Vitamin D and other vitamins and minerals need to be supplemented because the malabsorption of Celiac disease affects all the nutrients.  All the B vitamins work together.  Just supplementing one or two can throw the other B vitamins out of balance causing worsening deficiencies in other B vitamins.  Doctors are undereducated about nutrition.  Heavy sigh. This is worrisome.  These are all symptoms of Gastrointestinal Beriberi caused by Thiamine deficiency.   An Erythrocyte Transketolace Activity Assay needs too be done to check her Thiamine level.  But because this test is so expensive and takes so long for the results to come back, it's much simpler to administer 500 mg Thiamine Hydrochloride several times a day for several days and look for health improvement (WHO recommendation).  Doctors can administer Thiamine Hydrochloride by IV along with a "banana bag" with all the B vitamins in it.  (Riboflavin gives it the yellow color.).  I've experienced vitamin deficiencies which my doctors didn't recognize.  When thiamine and B12 deficiencies started affecting my brain function, my doctors wrote me off as a depressed hypochondriac.  I had Gastrointestinal Beriberi myself.  I took over the counter thiamine hydrochloride at home and had health improvement within an hour.  High doses (500 mg) of Thiamine are needed to "jump start" the body into proper functioning.   Apologies if I was curt.  I get very frustrated because the nutritional deficiencies that occur with Celiac disease are not addressed properly.  All I can do is tell people about what I learned on my Celiac journey.  Have you visited my blog?  Tap on my name, look for pull down menu Activities and go to blog.   I do hope your daughter can get the nutritional support she needs.  I'm very worried.  Please keep us updated!
    • Heatherisle
      Pain in the right side of abdomen

      By Heatherisle · Posted

      Hi  Thank you, will tell her to do that
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.