Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Curious About What Vitamins Are You Deficient?


roxieb73

Recommended Posts

Kar1972 Newbie

Oh, I forgot Vitamin K. They wouldn't even do a scope on me until I supplemented with Vitamin K.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kar1972 Newbie

Gee, now I remember I was also diagnosed deficient in magnesium before, but based on symptoms. So that's Vitamin D, Vitamin K, and magnesium so far. I've also been low in plain old electrolytes because of days and days of the big D, and had to supplement with loads of Gatorade (an electrolyte sports drink).

nvsmom Community Regular

I had my vits during the second week of my gluten-free diet. I was expecting low levels because of low energy (which I took a bunch of vits for) and everything came back normal, with my B12 a bit too high. My only abnormal test was TSH so the low energy was hypothyroidism. :rolleyes:

jmb002 Newbie

At last check one of my office visits at the beginning of the year my Vitamin D level was 3, with normal being 30 and 12 being severely deficient....YIKES! I haven't had any other huge deficiencies that I know of and was just diagnosed with dermatitis herpetiformis (the skin manifestation of celiac) a couple of days ago.

mushroom Proficient

At last check one of my office visits at the beginning of the year my Vitamin D level was 3, with normal being 30 and 12 being severely deficient....YIKES!

With a level that low I would ask for a DEXA scan to check my bone density since D is critical in bone formation. Then again, maybe you used up all your D making bone :)

GottaSki Mentor

At last check one of my office visits at the beginning of the year my Vitamin D level was 3, with normal being 30 and 12 being severely deficient....YIKES! I haven't had any other huge deficiencies that I know of

Would be a very good idea to get all your nutrients checked - you definitely need to supplement to get your D up and likely are missing other important nutrients. Removing all gluten will eventually allow you to absorb the nutrients your body needs - until then supplementation is important!

My celiac doc recommends these blood tests - both at diagnosis and follow-up appts:

B1, B12, D, K, Iron, Ferritin, Copper and Zinc

Others have posted that you should add:

A and Magnisium.

CMP (Complete Metabolic Panel) can indicate some other deficiencies.

These are in addition to annual CBC (complete blood count) and FULL Celiac Panel. The lab techs often :rolleyes: when they see orders from my celiac doc - much better to test everything in one draw than going back each time a doc thinks of a possible test in relation to symptoms you have.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,893
    • Most Online (within 30 mins)
      7,748

    Sgp
    Newest Member
    Sgp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.