Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Symptoms - Don't Think It's Celiac But Maybe Intolerance?


auuudriana

Recommended Posts

auuudriana Newbie

Hey, everyone. New here.

Just wondering if anyone will tell me what they think of my symptoms. I don't think I have Celiac but possibly just gluten intolerance or sensitivity.

For the past two months I have been extremely nauseated (never puking), which is one of the reasons I'm curious.

I went to the doctor today finally to discuss the nausea and she thinks it's because of too much acid in my stomach, but she ordered a Celiac blood test just in case because I asked her too. She also ordered a CBC, and two other tests (can't remember which ones) - I assume because of what my mother has (see more in the bottom of the post).

  • Nausea - constant
  • Fatigue
  • get dizzy sometimes - oftentimes when I stand up I get huge head rushes to the point where I'm seeing black and fall over
  • Increased gas (kinda smelly LOL)
  • constantly want cake and chocolate(don't know if this would be a real symptom because I have lost a good 25 pounds since January and have restricted my dessert intake)
  • constant headaches
  • sometimes get short of breath for no reason
  • once in a while (maybe every two weeks) I get a weird tingling/heated sensation in my legs
  • heartburn (have had for at least a few years)
  • suffer from anxiety and depression
  • very irritable all the time
  • joint pain (I have Reflex Neurovascular/Sympathetic Dystrophy)
  • have trouble falling asleep
  • get UTIs and Conjunctivitis quite a lot
  • have been having more constipation than usual (used to get constipated a lot as a child but it stopped when I entered my teen years)

My family has a history of heart disease, depression (grandmother was suicidal), and cancer. My mother's parents were born in Sicily and she has Thrombocytopenia (giant platelets), which I believe may have some relation to Celiac but I'm not certain. She also has a thyroid problem (I tested for it a year ago but it came back negative as well as anemia). I have also been misdiagnosed for Rheumatoid Arthritis if that helps, but that was changed to the RND.

What do you think? I don't think I have the major Celiac symptoms but the ones I do have have to mean something, right?

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

You could possibly have celiac disease. Most everything you listed can be a symptom of celiac.

mommida Enthusiast

It could be Celiac, so you need to continue eating gluten for testing.

Feeling faint upon standing could be POTS.

Continue with your testing and remember there is growing evidence that a gluten free diet can be very helpful in many auto-immune diseases.

:) Remember to get all copies of your test results. :)

auuudriana Newbie

Thanks, guys. I'm still waiting for the test results but I will definitely post them when I get my hands on them.

auuudriana Newbie

Got my lab results today...or rather, I was told them. I apparently have no sensitivity to gluten, but I do have Hepatitis A and that's why I've been feeling nauseated for so long.

I requested a copy of all my results and out of the four that I had done, the one she did not give me a copy of was my Celiac Panel...guess I'll have to go back later and get it.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,197
    • Most Online (within 30 mins)
      7,748

    Seeeye
    Newest Member
    Seeeye
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…                 
    • Ginger38
      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • Kris2093u4
      Geography makes a difference.  I'm in the West and Trader Joe's gluten-free bread tastes great and is a better price than most gluten-free breads sold elsewhere in my area.  
    • JForman
      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
    • Fayeb23
      I’ve recently had bloods test due to fatigue. Iron was found to be low Serum ferritin level 4 ug/L so doctor sent for Coeliac test. Results have come back TTG ABS NUMERICAL > 250.0 U/mL is this a high reading? Am not waiting a Gastroenterology referral but this could take 10 weeks! This is all total new to me, didn’t think for a second I would have coeliac disease. Been advised not to change diet until seen by specialist 
×
×
  • Create New...