Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Ally


Adalaide

Recommended Posts

Adalaide Mentor

I've spent the past few months nagging (lovingly) my husband about the fact that I suspect he also has celiac or at least some sort of gluten intolerance. Over the past few weeks I've ramped up, pointing out every time he gets emergency rampant D that he's just polished off more wheat than I can shake a stick at. Finally, last Friday after finding out about my new diet restrictions (no tyramine, which is crazy insanely hard) I cried in the car on the way home. Mostly I was crying over chocolate, not everything else, but either way I was pretty upset. I was shocked when he told me that because of how difficult this is for me he could try going gluten free with me. He even suggested going tyramine free with me but I think that is a little extreme, especially since I can likely switch to tyramine light once I have my vision back.

So, anyway, he said he's going to eat up all the wheat in the house before switching. I personally think that's nuts but whatever. We paid for food someone may as well eat it and he seems perfectly content to be in unbearable pain a few times a week after eating so meh. We went yesterday to see his endocrinologist. (I tag along which the doctor loves because every time he asks my husband a question the doctor looks at me to see if my husband is being honest. I guess people like to lie to doctors about how awesome they are at glucose testing and carb counting.) Some months ago the doctor had blood drawn to test for celiac, and it came back negative. Yesterday the doctor explained that negative tests don't really mean you don't have it and going gluten free for 4-6 weeks at least can't hurt him any and he should try it. Words can not express how difficult it was not to look smug.

So, in the next week or two I'll have a gluten free buddy. Now to arm myself for the moodiness and misery of his withdrawal. :ph34r:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



alex11602 Collaborator

This just made me smile, not that he is feeling poorly but that you will have a gluten free buddy right at home :) Hopefully he won't really go through withdrawel and it will be an easy transition.

squirmingitch Veteran

When my hubs was going to begin gluten-free I was very worried about "the bear" emerging when withdrawal kicked in. Luckily, VERY luckily, he escaped gluten withdrawal; maybe b/c he was gluten light b/c of me. Anyway, IrishHeart gave me a tip to deal with him if the withdrawal made him bearish. She said load him up with gluten-free carbs. Get lots of Glutino pretzels, bags of the safe Frito Lay junk food & load him up.

I'm delighted he will be trying it & overjoyed the doc actually said neg. tests don't mean you don't have it! YAY for a doc who knows their stuff. Nice when you hear there are a few out there who aren't idiot heads.

GFinDC Veteran

Well, he may even like it. If he likes meat there is plenty of opportunity to eat the dead animals on a gluten-free diet. Dead cow, dead pig, dead chicken etc. Barbecue galore and it's summer (here) and he may like to do a lot of barbecuing.

Don't forget toe check out the gluten-free beers too. Good for those hot summer days, if you can have them anyway.

MitziG Enthusiast

Too funny! I have been after my hubs to be gluten free 100% as well, but he insisted he doesn't have a problem. But, vanity got the best of him so he went on the Primal Diet to lose weight and lo and behold, without grains he feels great, his heartburn is gone and no bloating and constipation! He told me today that maybe my "internet hoakum" isn't all internet hoakum after all!

frieze Community Regular

I've spent the past few months nagging (lovingly) my husband about the fact that I suspect he also has celiac or at least some sort of gluten intolerance. Over the past few weeks I've ramped up, pointing out every time he gets emergency rampant D that he's just polished off more wheat than I can shake a stick at. Finally, last Friday after finding out about my new diet restrictions (no tyramine, which is crazy insanely hard) I cried in the car on the way home. Mostly I was crying over chocolate, not everything else, but either way I was pretty upset. I was shocked when he told me that because of how difficult this is for me he could try going gluten free with me. He even suggested going tyramine free with me but I think that is a little extreme, especially since I can likely switch to tyramine light once I have my vision back.

So, anyway, he said he's going to eat up all the wheat in the house before switching. I personally think that's nuts but whatever. We paid for food someone may as well eat it and he seems perfectly content to be in unbearable pain a few times a week after eating so meh. We went yesterday to see his endocrinologist. (I tag along which the doctor loves because every time he asks my husband a question the doctor looks at me to see if my husband is being honest. I guess people like to lie to doctors about how awesome they are at glucose testing and carb counting.) Some months ago the doctor had blood drawn to test for celiac, and it came back negative. Yesterday the doctor explained that negative tests don't really mean you don't have it and going gluten free for 4-6 weeks at least can't hurt him any and he should try it. Words can not express how difficult it was not to look smug.

So, in the next week or two I'll have a gluten free buddy. Now to arm myself for the moodiness and misery of his withdrawal. :ph34r:

Since I am a tyramine sensitive migraineur, I am VERY interested in the connection between that and your vision! PLEASE share as much as you are comfortable with, TIA.

Adalaide Mentor

Since I am a tyramine sensitive migraineur, I am VERY interested in the connection between that and your vision! PLEASE share as much as you are comfortable with, TIA.

I was diagnosed with pseudotumor cerebri and/or intracranial hypertension, the doctor used the terms interchangeably. Basically, I have all the signs and symptoms of a tumor, only without a tumor. Apparently fat people (women in particular) are awesome at making too much brain fluid which is in some way related to tyramine. When that happens it puts pressure on the backs of your eyes and next thing you know your husband is driving you around. It all makes sense, I realized that in the week before I went blurry I ate probably 2+ pounds of spinach, plus since going gluten free I've just overall significantly increased my tyramine intake without even knowing what it is or that it exists. My 17 year old daughter's response? MOOOOOOM, how can you not eat chocolate and call yourself a woman? <_< Thanks kid.

BTW, I also get occasional migraines although mine are hormone related. For the first time in my life I got 2 non-hormone related migraines with the blurry vision last week. Thankfully I'm on topamax now so that shouldn't happen again.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mom-of-Two Contributor

My hubby went gluten free when I did 4 months ago, it is so much easier to do it together and cook in the same kitchen!

He lost a ton of weight doing a paleo type diet before going gluten free, so he was already pretty familiar with low grains- he then read Wheat Belly and the transition was pretty easy for him.

:)

frieze Community Regular

I was diagnosed with pseudotumor cerebri and/or intracranial hypertension, the doctor used the terms interchangeably. Basically, I have all the signs and symptoms of a tumor, only without a tumor. Apparently fat people (women in particular) are awesome at making too much brain fluid which is in some way related to tyramine. When that happens it puts pressure on the backs of your eyes and next thing you know your husband is driving you around. It all makes sense, I realized that in the week before I went blurry I ate probably 2+ pounds of spinach, plus since going gluten free I've just overall significantly increased my tyramine intake without even knowing what it is or that it exists. My 17 year old daughter's response? MOOOOOOM, how can you not eat chocolate and call yourself a woman? <_< Thanks kid.

BTW, I also get occasional migraines although mine are hormone related. For the first time in my life I got 2 non-hormone related migraines with the blurry vision last week. Thankfully I'm on topamax now so that shouldn't happen again.

thanks, I have a hearing deficit, was thinking it might be related....I don't get a migraine from small amounts of most things on "the list" so eat them just not a lot, or together.....have wondered if this has been the cause of my issue, but so little self discipline when there are no obvious symptoms! wishing you well.

BeccaMeadows Newbie

I really like the more primative diet. Apparently the human digestive system isn't even properly designed to intake so much wheat since we have only been cultivating it since the time of the Egyptians (it's takes thousands to millions of years for evolution to cure this). You're lucky to have a gluten-free buddy who lives with you. It makes cooking so much easier.

Bubba's Mom Enthusiast

I'm so glad your hubby is going to give gluten-free a try! I hope he doesn't get the mood swings, but maybe you can talk about it ahead of time? Have a word or phrase chosen that either of you can use that basically means "gluten is controlling your/my emotions right now, so let's back off"? Let him know if he's seeming moody you'll say the "magic word" and you'll both take a breather or go to separate corners? LOL

I so wish my hubby would go gluten-free. He's very overweight, has type 2 diabetes, has bad reflux even on meds, has very bad arthritis, Hashimoto's, had a nearly fatal heart attack at an early age, and he seems to constantly be complaining about horrible aches and pains. His knees hurt all of the time. I see so many symptoms in him that I think would improve gluten-free but he just refuses! He doesn't watch his diet in regards to his diabetes either. :(

Adalaide Mentor

Isn't it the worst watching someone you love more or less kill themselves? My husband is type 1 and doesn't carb count or correct properly all of the time. When he does, I'm not sure it matters. The doctor agrees that celiac could be causing a lot of his problems with lows and he's already had to be taken to the ER once for it when literally no amount of sugar he could pour into his body would raise his glucose. Of course, when he isn't going low he's always high. I keep telling him that when he has no feet and is mostly blind I'm not pushing his wheelchair to dialysis.

Love the idea of a magic word. I learned long ago that when I don't have anything nice to say, not to say anything at all. I think I may be mildly psychotic at that special time of the month. :lol: I just spend a few days with my mouth shut fuming at all sorts of stupid things no reasonable person would get upset about. Now my new meds are causing violent mood swings, which is not awesome. I'm hoping it'll level out once my body adjusts. We probably both need the magic word if we want to stay happily married over the next few weeks.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    4. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.