Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Overwhelmed


BabsV

Recommended Posts

BabsV Enthusiast

So, after 24+ hours of travel time my DD and I made it back to the good ole U S of A! I'm having wicked jetlag issues but am luckily at my mother's place so I don't have to actually do anything unless I choose to.

I just have to squee a bit about all the wondeful shopping options that I've found in the stores...meat that doesn't contain gluten -- why yes, I've probably eaten way too much ham in the last 10 days but boy does it taste good to me! I'm going to try bacon this week -- the first bacon I've had in about a year! Shops that have sweet potats AND yams (can't remember the last time I saw a yam...) and they don't cost $8 per lb?!?! Labels. IN ENGLISH! With allergens clearly marked?!?! And some 'main stream' items now have gluten free labels?!?! (Don't worry, I'm still closely reading all labels...) I feel like I've died and gone to food shopping heaven.

I'm having to pace myself with introducing different foods since my diet was so limited for months. I want to just go crazy and try EVERYTHING but I know that will make me miserable...

It is just so nice to be able to go grocery shopping and feel like I can trust the food quality. And yes, this honeymoon period will undoubtedly wear off but for right now I just wanted to share the joy!

:D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Adalaide Mentor

This is a great reminder about just how good we have it here. I'm happy for you that you're having such a great time. Since I had to recently give up ham and bacon you can just say you're eating my share so you feel less guilty. :D

Darn210 Enthusiast

OK . . . just bring me up to speed so I don't have to go looking in your posting history. Where were you? . . . and is this just a visit or are you back for awhile/good?

Enjoy yourself!!

IrishHeart Veteran

Welcome Home, Babs!! :)

When is your Dr. Fasano visit??

BabsV Enthusiast

OK . . . just bring me up to speed so I don't have to go looking in your posting history. Where were you? . . . and is this just a visit or are you back for awhile/good?

Enjoy yourself!!

I was in Krakow, Poland. Wheat and barley are huge diet staples and gluten is everywhere in Poland, e.g bacon, it is in bacon?!?!

We're back for what looks like at least 2 years this time around. Then, who knows...I plan to enjoy every single second!!!!

BabsV Enthusiast

Welcome Home, Babs!! :)

When is your Dr. Fasano visit??

I'm off to the Center for Celiac Research on July 31st. Spoke with them today to update my phone number and confirm time/date/etc. They are just so friendly and helpful.

Also had 3 enormous vials of blood drawn today at my mother's doctor -- I'll be able to take all the results to MD with me so that they won't have to waste time doing the tests! My mom's doc, a GP, knew more about Celiac than any doctor I ever spoke to in Poland, and was willing to run everything and anything I asked for. She was concerned they'd never wanted to check thyroid or iron or vitamin levels or really anything after my diagnosis. Nice to have someone agree with me that that should have been done!

IrishHeart Veteran

My mom's doc, a GP, knew more about Celiac than any doctor I ever spoke to in Poland, and was willing to run everything and anything I asked for. She was concerned they'd never wanted to check thyroid or iron or vitamin levels or really anything after my diagnosis. Nice to have someone agree with me that that should have been done!

I think we all worried you were not getting sufficient care post- DX from what you were telling us. So glad you are home and can investigate what's going on.

Hey, how's the pain level? any better?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BabsV Enthusiast

I think we all worried you were not getting sufficient care post- DX from what you were telling us. So glad you are home and can investigate what's going on.

Hey, how's the pain level? any better?

Hahahaha. After my visit to the doctor yesterday I think I can safely say I basically was having no real care post-DX!

Pain still present. The amitriptyline allows me to function for the most part. Having more to do helps since I don't have as much time to focus on it. Stress levels have definitely gone down...I still think it might be related to continued exposure to gluten from food in Poland plus perhaps another intolerance. Maybe? We shall see what the experts have to say. The doctor I saw yesterday was also surprised they hadn't done a gallbladder function test to rule that out as a possible problem. And when I mentioned they couldn't do a bone density test because the machine was always 'being serviced' (for 8 flippin' months?!?!) she was speechless. Ah, third world medical care...I am NOT going to miss it!

IrishHeart Veteran

I think you will start to progress now that you are home, IMHO.

:)

I'd like to see you off the Amitriptyline. again, IMHO

It causes long term issues you do not need.

(I know: a rheumy made me take it to help me sleep. I used it for 6 months and I gained about 50 lbs. and it made me sluggish in the head)

Be careful when tapering off, okay. Go slowly. It's not pretty.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      45

      Severe severe mouth pain

    2. - Lkg5 replied to Charlie1946's topic in Related Issues & Disorders
      45

      Severe severe mouth pain

    3. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      45

      Severe severe mouth pain

    4. - Aretaeus Cappadocia posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,098
    • Most Online (within 30 mins)
      7,748

    BothySmithy
    Newest Member
    BothySmithy
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Charlie1946,  Sorry I sidetracked your thread a bit.  Apologies. Proton pump inhibitors, like Omeprazole, change the pH in our gastrointestinal systems which allows opportunistic microbes to move in and take over.  Have you been checked for SIBO?  There's a significant link between length of Omeprazole use and SIBO.  I had SIBO, thrush (Candida) and lichen planus and other problems while I was on Omeprazole.  I had to stop taking it.  It was a horrible time, so I understand how painful and frustrating it is.   You change your microbiome (the bacteria and microbes living inside you) by changing what you eat.  They eat what you eat.  Change the menu and you get different customers.   I changed my diet.  I cut out dairy because I was reacting to the casein and lactose.  I cut out all processed foods and most carbohydrates. I ate meat and veggies mostly, some fruit like apples and mandarin oranges.  By cutting out all the excess carbohydrates, lactose, and empty carbs in processed gluten-free foods, the opportunistic microbes get starved out.  SIBO bacteria send chemical messages to our brains demanding more carbs, so be prepared for carb cravings, but don't let the microbiome control you!   The skin and digestive system is continuous.  The health of our outside skin reflects the health of our gastrointestinal system.  Essential B vitamins, like Thiamine B 1 and especially Niacin B 3, are needed to repair intestinal damage and keep bad bacteria in check.  Niacin helps improve not only the intestinal tract, but also the skin.  Sebaceous Hyperplasia is linked to being low in Niacin B 3.  Lichen Planus is treated with Niacinamide, a form of Niacin B 3.   Vitamins are chemical compounds that our bodies cannot make.  We must get them from our food.  If our food isn't digested well (low stomach acid from Omeprazole causes poor digestion), then vitamins aren't released well.  Plus there's a layer of SIBO bacteria absorbing our vitamins first between the food we've eaten and our inflamed and damaged villi that may have difficulty absorbing the vitamins.  So, taking vitamin supplements is a way to boost absorption of essential nutrients that will allow the body to fight off the microbes, repair and heal.   Doctors are taught in medical learning institutions funded by pharmaceutical companies.  The importance of nutrition is downplayed and called old fashioned.  Doctors are taught we have plenty to eat, so no one gets nutritional deficiency diseases anymore.  But we do, as people with Celiac disease, with impaired absorption.  Nutritional needs need to be addressed first with us.  Vitamins cannot be patented because they are natural substances.  But pharmaceutical drugs can be.  There's more money to be made selling pharmaceutical drugs than vitamins.   Makes me wonder how much illness could be prevented if people were screened for Celiac disease much earlier in life, instead of after they've been ill and medicated for years.   Talk to your doctor and dietician about supplementing essential vitamins and minerals.   Interesting Reading: The Duration of Proton Pump Inhibitor Therapy and the Risk of Small Intestinal Bacterial Overgrowth: A Systematic Review and Meta-Analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC12250812/#:~:text=The long-term use of,overgrowth dynamics is less clear. Lichenoid drug eruption with proton pump inhibitors https://pmc.ncbi.nlm.nih.gov/articles/PMC27275/ Nicotinamide: A Multifaceted Molecule in Skin Health and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC11857428/
    • Lkg5
      My sebaceous hyperplasia and thrush disappeared when I stopped all dairy.
    • Charlie1946
      @knitty kitty Thank you so much for all that information! I will be sure to check it out and ask my doctor.  I am just at a loss, I am on my 2nd round of miracle mouthwash and I brush and scrape my tongue and (sorry this is gross) it's still coated in the middle 
    • Aretaeus Cappadocia
      Traditional brown rice vinegars are made by fermenting brown rice and water with koji (Kōji 麹). The gluten risk comes from the method of preparing the koji: rice, wheat or barley may be used. Regardless of the starting grain, "koji" typically will be listed as an ingredient, and that term alone does not indicate gluten status. I called Eden Foods regarding their product "Organic Brown Rice Vinegar" (product of Japan) to ask how their product is made. They gave me a clear answer that they >do< use rice and they >do not< use wheat or barley in preparing their koji. FWIW, the product itself does not contain any labeling about gluten, gluten risk, or gluten safety. Based on Eden's statement, I am going to trust that this product is gluten safe and use it.
    • Scott Adams
      Your post nails the practical reality of living well with a celiac diagnosis. The shift from feeling restricted to discovering a new world of cooking—whether through a supportive partner making gluten-free spanakopita and gravy, or learning to cook for yourself—is exactly how many people find their footing. It turns a medical necessity into a chance to build kitchen skills, eat more whole foods, and actually enjoy the process. Your point that the basics—knife skills, food safety, and experimenting with spices—are all you really need is solid, helpful advice. It’s a good reminder that the diagnosis, while a pain, doesn’t have to stop you from eating well or having fun with food.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.