Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weirdest Skin Thing Happened Today


GlutenFreeAustinite

Recommended Posts

GlutenFreeAustinite Contributor

So today, I noticed what felt like sharp muscle pain in my left armpit. I have a history of shoulder problems, so I did some exercises, tried to loosen the muscle, etc. No luck. Midway through the day, I check to see if there's anything there, and sure enough, there are three, red, painful bumps in a nearly straight vertical line. They are extremely painful and seem to cause the muscle beneath to swell. Ibuprofen helps a ton. It almost looks like one or two more are forming but I can't really tell.

I called the doctor and have an appointment tomorrow morning. The nurse thought that it sounded like shingles, but I have no fever, no other signs of bumps, and none of the rash-type stuff. Does anyone know if this could be gluten? I've been eating gluten for roughly 2 months in order to get tested.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rosetapper23 Explorer

Hmmm....it might be shingles, or it might be Dermatitis Herpetiformis (DH). Both are "herpeslike" in their presentation in that the tissue around and underneath the lesions is also affected. If it's shingles, you'll know soon enough, and if it's DH, good luck finding a doctor who is able to biopsy it correctly. I think, in this case, only time will tell...

GlutenFreeAustinite Contributor

I admittedly thought of DH, but I thought that mainly itched, and if it was painful, it was secondary to the itch. This just hurts like hell.

squirmingitch Veteran

Though a hallmark of dh IS intense itching you have to realize dh takes many forms & presentations AND it is also known to be in some cases very painful, can be a strong burning sensation in addition to or apart from the itching. This may be a pre form of dh. OR it could be shingles. As rosetapper said, if it's herpes, you'll know soon enough.

And finally, with celiac disease comes a whole host of skin problems which can present.

GlutenFreeAustinite Contributor

Just got home from the doctor. He doesn't think it's shingles, but instead diagnosed me with folliculitis, essentially a bacterial infection of the skin follicles. :( He deliberated for a while on DH, but didn't think it was given its appearance (looks like a mosquito bite, honestly) but really was unsure. Luckily, I see my dermatologist in a week and maybe she'll have answers. He put me on another antibiotic, because the one I was taking should have prevented it, but obviously didn't. This sucks.

EDIT: I should also mention that there are now five of the bumps, not three. :(

squirmingitch Veteran

Hmmmm.... we with dh get what we call "bites" which are like insect bites in looks & they are much milder than the blisters in duration ect.... It's interesting that the antibody didn't prevent it. Hmmmmm..... dh anyone?

GlutenFreeAustinite Contributor

Hmmmm.... we with dh get what we call "bites" which are like insect bites in looks & they are much milder than the blisters in duration ect.... It's interesting that the antibody didn't prevent it. Hmmmmm..... dh anyone?

Hmm, interesting. Is DH usually symmetrical in nature or can it be just in one place on one side? And the antibiotic didn't prevent me from getting impetigo last week, so I'm not really sure.

They still hurt, though the skin around them itches. Still wicked painful to touch.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

DH can be symmetrical OR it can present as singles or multiples on one side. I think a lot of it depends on the "stage" an individual is at in their "dh-ness". Way back in the very beginning when I had no clue my dh would present as a single blister on one hand or one leg --- like that. It might be followed in a couple/3 days by one on the other leg or hand OR it might not. That was years ago. Then when I had the big mother of all breakouts it was ALL symmetrical. Now that I'm gluten-free 6.5 months they show up either symmetrically or not, either blisters or bites or both. There is so much that is not known or documented yet about dh. There are so many ways it presents that is not shown in photos.

GlutenFreeAustinite Contributor

I don't know what they are. I'm hoping my dermatologist has more answers. They do feel itchy, and are sort of looking more like tiny ant bites (red tip).

squirmingitch Veteran

I know. It's hard to know. For a couple/3 yrs. I would get bumps in my armpits that were like ant bites & they were painful --- I think the location is a big factor in the pain there. I thought they were maybe bites b/c we had a lot of mosquitoes where we lived & they did itch a lot but the predominant factor was pain in that location. Then somewhere along the line I realized they weren't bites but still didn't know what they were. I just attributed them to some kind of passing irritant --- maybe razor rash in a small way. I knew no doc was going to take it seriously! NOW I know what they were & I still get them but thankfully not horribly in my pits. We have 1 member who got dh in THE worst way in her pits. She SUFFERED big time!

See what the derm says & hope the derm is really, really good!

squirmingitch Veteran

Austinite, how long did the doc say you were to eat gluten & how much per day?

Here's a thought....you just might have luck getting the derm to biopsy for dh.

GlutenFreeAustinite Contributor

Ugh, the neverending battles. I'm starting to think it is DH, though of course I'm not sure.

The doctor said at first one month, but I stayed on it two, and he agreed it was ultimately best. I think he said 1-2 slices of bread a day, but I've probably eaten more than that per day.

eatmeat4good Enthusiast

Dh hurts like hell, burns, stings, can be linear, symmetrical, or mosquito bite like in appearance. Can be itchy or not.

I was diagnosed with impetigo many times....guess what? It wasn't.

It just doesn't make sense. Impetigo is easily treated by antibiotics.

I bet you have DH.

It doesn't have to itch. It can just hurt like the devil. It can flare and subside...you can have large swollen bumps to pinpoint blisters and they can be red or flesh-colored. They can be hive-like in appearance.

I think you have the beginnings of DH.

Read the pinned article at the top of the DH section and you get some idea of the appearances.

Does it hurt worse at night?

Since you are eating gluten....butter a slice of bread and put iodized salt on it and eat it.

You should know loudly within 3 hours or so.

Try to get the dermatologist to biopsy you since you are eating gluten.

Oh wow. I'm hoping it's not, but I'm betting it is DH.

squirmingitch Veteran

Could you take a photo of it & post it for us?

GlutenFreeAustinite Contributor

@EatMeat4Good...thanks, I'll try the iodized salt/bread thing. I'd actually rather it be DH than what I've been diagnosed with, as it would mean I already know the cure...gluten-free life. :P But still, not pleasant. The impetigo actually cleared up but now I have what's tentatively being called folliculitis in my armpit.

@squirming itch: Open Original Shared Link

I've never used flickr before, so if it doesn't work, let me know.

Also:

EDIT: sorry my armpit is so gross! I can't shave right now.

GlutenFreeAustinite Contributor
also
rosetapper23 Explorer

It's really hard to determine what you have from the photos. If it's folliculitis, it doesn't seem red enough to me. Usually that's caused by staph--what antibiotic was prescribed? Only certain antibiotics work against staph (usually Keflex or Erethromycin). Also, unless you pressed your armpit against something that contaminated it, folliculitis usually occurs when the immune system has been compromised, since staph is usually present to some degree on our bodies at all times. If it clears up with the antibiotic, though, then that's probably what you have.

squirmingitch Veteran

It's awfully hard to get those babies to show up on pixels like they look in real life isn't it? But knowing that & knowing how mine look I would say there's a darn good chance it's dh. Now, if the derm does a biopsy --- OUCH! And ouch for a while too b/c that's a bad place to have a biopsy done but perhaps it will save you a lot of pain in the long run.

On the subject of impetigo ---- when I was a kid all the moms used gentian violet for it & it works real well. Only thing is, it will stain anything it gets on but then with today's stain removers...... also straight rubbing alcohol might remove it

Open Original Shared Link

Open Original Shared Link

http://www.(Company Name Removed - They Spammed This Forum and are Banned)/Humco-Gentian-Violet-1-liquid/dp/B000QTG3ME

I might add that if you have dh then Tylenol can make it flare like rip b/c of the salicylate content. just something for you to remember down the line.

GlutenFreeAustinite Contributor

@rosetapper: I know, and I'm sorry. I didn't have a ton of time, and I was challenged to get them to show up as, you're right, they aren't very red. His thought process was that they were so recently developed, they hadn't had a chance to really swell up and turn red. I was prescribed clindamyacin, but I'm also on doxycycline. Not sure on the first one, but I know doxycycline is used to treat staph. My immune system has been funky for a number of years...I got staph two years ago after a week-long backpacking trip. Hygiene wasn't so great all around, but I was the only one to get an infection. I felt, honestly, that my doctor was making an educated guess. He did say folliculitis can be caused by clogged pores, and that is somewhat likely. But I don't know.

@squirmingitch: YES it is terribly difficult. And I'd dread that biopsy too...had one on my leg and it hurt really bad, I can't imagine on my arm. :( I did actually get the impetigo to clear up with the doxycycline so seemingly no worries there. If it clears up, yay, if not I'm pretty sure I know what it is.

GlutenFreeAustinite Contributor

I'm almost finished with the third day of 1200 milligrams of clindamycin, and absolutely no change. I know it could turn at any point, but I feel like I should be having some sort of relief. The burning is just as bad, and the bumps are still there.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    2. - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

    3. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    5. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,696
    • Most Online (within 30 mins)
      7,748

    Knotalota
    Newest Member
    Knotalota
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.