Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Variety Of Symptoms. Can Anyone Relate?

RNEN80

Recommended Posts

RNEN80 Newbie
RNEN80
Posted

Hi everyone. I am new to the community and to going gluten free. I have not been diagnosed, but as a nurse, I find the weird symptoms over the years leading me to my own diagnoses. Symptoms include fatigue, throat congestion, eye twitching, alternating constipation/diarrhea, cluster headaches ( behind one eye), bloating, gas, nausea, joint and muscle pain and adult acne, easy bruising and panic attack and anxiety. I feel like I am going insane somedays when the anxiety and digestion gets too bad. I have had these for years, and some are getting worse. I went gluten free about 3 days ago and have already felt a difference digestion wise. Any feedback about your experience would be great. I feel so lost. Thank you.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tom Contributor
tom
Posted

Hi RNEN80,

Believe me, MANY here can relate to those symptoms!

...I feel so lost.

...

I bet there are loads of threads on this forum that can make you feel less lost in a hurry.

I think you're in the right place.

Good luck :)

~**caselynn**~ Enthusiast
~**caselynn**~
Posted

Hi everyone. I am new to the community and to going gluten free. I have not been diagnosed, but as a nurse, I find the weird symptoms over the years leading me to my own diagnoses. Symptoms include fatigue, throat congestion, eye twitching, alternating constipation/diarrhea, cluster headaches ( behind one eye), bloating, gas, nausea, joint and muscle pain and adult acne, easy bruising and panic attack and anxiety. I feel like I am going insane somedays when the anxiety and digestion gets too bad. I have had these for years, and some are getting worse. I went gluten free about 3 days ago and have already felt a difference digestion wise. Any feedback about your experience would be great. I feel so lost. Thank you.

Welcome!! I can relate to a lot of those symptoms, and to the medical worker aspect as well. I am a CT tech and found myself, the same as you, noticing the odd sequence of events. I'm very thankful for my GI doc who knew just what to do with me! I was a mess, lost is a good way to describe it. I wasn't sure of where to start, or how for that matter, luckily I came across this site. There's lots of great threads to check out and people to bounce questions off. I've been diagnosed and gluten-free for over a year now, and I feel so much better, it's awesome! Good luck to you!! :)

RNEN80 Newbie
RNEN80
Posted
  • Author

Thank you for your reply's! I have done a little researching on others symptoms and find myself relating to almost 95% of them. I always thought it was just because as someone in health care, you are more in tuned to symptoms and could have been overreacting. However, I don' t think I am. Too many weird symptoms; too long; too similar to celiacs. I am looking into the blood tests and or biopsy if necessary. In the mean time, going to stick to gluten free. Thank you again. I feel less lost.

bdw062590 Newbie
bdw062590
Posted

Our symptoms sound the same! You are not alone!

beachbirdie Contributor
beachbirdie
Posted

Thank you for your reply's! I have done a little researching on others symptoms and find myself relating to almost 95% of them. I always thought it was just because as someone in health care, you are more in tuned to symptoms and could have been overreacting. However, I don' t think I am. Too many weird symptoms; too long; too similar to celiacs. I am looking into the blood tests and or biopsy if necessary. In the mean time, going to stick to gluten free. Thank you again. I feel less lost.

If you are planning to seek testing, you must be eating gluten. Even a short time (a couple of weeks) gluten free can skew your blood tests. It's already too easy to get false negatives, you don't want to sabotage yourself! :)

Of course, the gluten-free trial can tell you a lot too. You may find you don't want to do testing if the diet has awesome results for you.

Welcome to the forum!

Lumi Newbie
Lumi
Posted

Hey just started a post that sounds the exact same, I feel lost too, just looking for some guidance, starting my diet today, hopefully we both start feeling better :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Ello's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Small Bowel Resection 12 inches

      Welcome to the celic.com community @Ello! You say you had a blood test for celiac disease after eating gluten for 2 weeks. Were you gluten free before that? Had you ever been officially diagnosed with celiac disease previously? You say the result of the blood test was 1.5. Can you provide the name of the test and the reference range for negative...
    2. Ello
      - Ello posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Small Bowel Resection 12 inches

      Surgery was in April 2023 due adhesions wrapped around my small bowel which caused blockage and had to be removed. Adhesions were so badly entangled that Surgeon could not cut out them, so the resection was performed. July 2025 started having severe yellow diarrhea and sometimes constipation. Just had another episode and was tested for celiac. Blood test...
    3. Scott Adams
      - Scott Adams replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Disaccharide deficient, confusing biopsy results, no blood test

      If your tTg-IgA was 28 and positive is at 3, you are nearly 10x over the positive marker, so the most likely explanation by far would be celiac disease. I also do not understand why your doctor would not want to run the blood test, which is the normal first step in the diagnosis process.
    4. miguel54b
      - miguel54b commented on Scott Adams's article in Ataxia, Nerve Disease, Neuropathy, Brain Damage and Celiac Disease
      1

      Could Gluten and Alzheimer’s Be Linked? New Research Uncovers Surprising Protein Parallels (+Video)

      It should be common sense of their need to cooperate in the research, when I was at my worst of my gluten sickness I though I was developing Alzheimer’s because I was displaying 10 signs of Alzheimer’s; the brain fog that people get from eating gluten it is an obvious indication that it affects memory and the brain.
    5. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      30

      My journey is it gluten or fiber?

      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,827
    • Most Online (within 30 mins)
      7,748
    ABC reno
    Newest Member
    ABC reno
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Welcome to the celic.com community @Ello! You say you had a blood test for celiac disease after eating gluten for 2 weeks. Were you gluten free before that? Had you ever been officially diagnosed with celiac disease previously? You say the result of the blood test was 1.5. Can you provide the name of the test and the reference range for negative vs. positive for the test? I ask because different labs used different reference ranges so scores without a reference range aren't very helpful.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      Surgery was in April 2023 due adhesions wrapped around my small bowel which caused blockage and had to be removed. Adhesions were so badly entangled that Surgeon could not cut out them, so the resection was performed. July 2025 started having severe yellow diarrhea and sometimes constipation. Just had another episode and was tested for celiac. Blood test stated 1.5 after eating gluten for 2 weeks. Lipase level was 120. Having an CT scan to check the pancreas. I have never had any issues eating gluten and now I am so fearful that I might have celiac. Has anyone had a small bowel resection? I am 65 years old. UGGH! I am still feeling bloating etc. 
    • Scott Adams
      Disaccharide deficient, confusing biopsy results, no blood test

      By Scott Adams · Posted

      If your tTg-IgA was 28 and positive is at 3, you are nearly 10x over the positive marker, so the most likely explanation by far would be celiac disease. I also do not understand why your doctor would not want to run the blood test, which is the normal first step in the diagnosis process.
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.