Is Gluten From A Pill Enough?

[NoDayButToday]

Hello!

New here.

Don't know too much about celiac, but do have Lyme and other health issues...

My gut (no pun intended) tells me to get tested for celiac.

I have been tested for the gene - positive. Also, I have tested positive for antibodies to gluten & dairy via DianosTechs stool testing (not sure if this is considered reliable).

Anyway, I would like to be tested, as I have I have been gluten-free for six mos and am not feeling better. I recently discovered that one of my supplements that I've also been taking for these six months contains defatted wheat germ (the only time my gut felt better was when I had to stop my supplements for the stool testing - go figure!)

So, my question is, if I have been consuming no gluten but these pills for the past six months, is that enough before I do the blood testing? Please say yes!

Thanks!

[Lisa]

Hello!

New here.

Don't know too much about celiac, but do have Lyme and other health issues...

My gut (no pun intended) tells me to get tested for celiac.

I have been tested for the gene - positive. Also, I have tested positive for antibodies to gluten & dairy via DianosTechs stool testing (not sure if this is considered reliable).

Anyway, I would like to be tested, as I have I have been gluten-free for six mos and am not feeling better. I recently discovered that one of my supplements that I've also been taking for these six months contains defatted wheat germ (the only time my gut felt better was when I had to stop my supplements for the stool testing - go figure!)

So, my question is, if I have been consuming no gluten but these pills for the past six months, is that enough before I do the blood testing? Please say yes!

Thanks!

Not too sure. Not sure anyone knows that answer, but here are the tests:

The following are the celiac specific blood tests:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

Hello and welcome!

[NoDayButToday]

Thanks for the welcome & info!

I think i'm just going to try for it, since I've met my deductible and I have been consuming some gluten (even though not too much).

If it's negative, then i can decide if I want to try it again w/more gluten. If positive, voila!

[kareng]

Thanks for the welcome & info!

I think i'm just going to try for it, since I've met my deductible and I have been consuming some gluten (even though not too much).

If it's negative, then i can decide if I want to try it again w/more gluten. If positive, voila!

Your insurance might not pay for the same test twice in a few months time. Especially if the first test is negative.

[IrishHeart]

Anyway, I would like to be tested, as I have I have been gluten-free for six mos and am not feeling better.

So, my question is, if I have been consuming no gluten but these pills for the past six months, is that enough before I do the blood testing? Please say yes!

Probably not. I would gluten up before the test. IMHO

[NoDayButToday]

Your insurance might not pay for the same test twice in a few months time. Especially if the first test is negative.

Hmmm that's a good point. This is a tough one. I feel like i want to take advantage of the fact that I've inadvertently been eating gluten, since i plan on going totally gluten-free asap.

[NoDayButToday]

Called my dr. yesterday(whom I love, and who has Celiac himself). He told me to come in and get tested right away, so I did (through Prometheus).

From what I've read, most people think that's not enough gluten. I guess if it's positive it'll be clear, and if it's negative, I'll have to re-evaluate.

At this point, I don't think I'm up for a gluten challenge, so will probably drop the search for diagnosis if it comes back neg.

I will most def. remain gluten free. So, I guess it's not crucial to get the dx. But, I'd really like to know for sure!

[NoDayButToday]

Whelp, y'all were right - it wasn't enough ! Got the results back today - just said negative serology...

I know I'm positive genetically, via stool tests for antibodies to gliadin & casein, and feel very sensitive to gluten.

I could not handle the gluten challenge - too many other health issues to contend with.

Is it a good bet to assume celiac and be really careful? As mentioned above, I have Lyme, hypothyroid, adrenal issues...

[GottaSki]

Negative blood work does not mean that you do not have Celiac Disease. If you have the genes, the symptoms along with improved symptoms while gluten free - you have your answer -- stay gluten free.

[NoDayButToday]

That's what I'm confused about...if you have the genes and symptoms, is that pretty much celiac? Or, can you have the genes and symptoms, but have it be non-celiac gluten intolerance?

My gut says celiac, but I guess I'll never know...? Do doctors ever make clinical diagnoses of celiac?

[nora-n]

Lyme patients need to be gluten free anyway, so I guess you need to be glutenfree anyway.

Yes, wheat germ from a pill could be too much gluten for you. But in Europe where some countries have wheat starch, the recommendation si to consume no more than 50 mg gluten a day from wheat starch. Some tolerate way less.