Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Las Vegas Celiac Support Group Active Again!

jendenise

By jendenise
in Introduce Yourself / Share Stuff

Recommended Posts

jendenise Rookie
jendenise
Posted

Hey all, just wanted to post that the Las Vegas Celiac Support Group is active again after almost a year of being inactive. I took over our group effective 9/11/2005 and am looking forward to helping our group grow and share lots of information. If anyone has any suggestions, ideas, helpful hints, etc... I would appreciate them whether from other group leaders or from those in a group or anyone else! If you know anyone in LV who has celiac disease please pass the info on! Thanks Jenn in LV B)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Bette Explorer
Bette
Posted

:) Hey fellow Las Vegan!!! I am fairly new to all this but please give a shout out when you plan on having a meeting or get together.

bboophsd@earthlink.net

Bette

  • 3 weeks later...
jendenise Rookie
jendenise
Posted
  • Author

Hello, we are planning a meeting at Water To Go in Summerlin for the 16 or 17 of October. Please join the LV Celiac Disease Support Group for up to date info. The link is Open Original Shared Link Hope to see you sign up! Jennifer H

jenvan Collaborator
jenvan
Posted

hey if you vegas gals have any good restaurants (besides the obvious ones) near the strip pass them along...i'll be out there next month for a vaca at the bellagio. :)

VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted

I'll be there...

I have the skinny on some decent restaurants that cater to the gluten-free Folk.....even in Summerlin!

See you there.

mouse Enthusiast
mouse
Posted

We are going to Las Vegas for Christmas. Any info on restaurants that are helpful to gluten-free would be great. We are staying at the Mirage, but my usual staple - Kokomos will be closed. I already started a list of recommendations from Broncobux. Armetta

blkwidow Newbie
blkwidow
Posted

My mother lives in Henderson NV and I visit often from Michigan. It would be great to know which restaurants to visit while I am there. If someone can post it, or email with that information, I would be forever grateful.

I just have been dx with celiac disease and I am so overwhelmed!!!

Thanks

Sally

swolter2@aol.com

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jendenise Rookie
jendenise
Posted
  • Author

Although neither of you reside in Vegas, you should check out our local group and sign up. You can then get info on local restaurnats that have gluten-free selections. Also, since your mom lives in Henderson maybe she could come to a support group meeting some time. I think she would enjoy it. The link to the website is: Open Original Shared Link

just click the join in tab and I will approve you. Make sure you set your settings to get all the messages from the day in the daily digest so that you aren't overwhelmed by emails!! Jenn in LV

blkwidow Newbie
blkwidow
Posted
Although neither of you reside in Vegas, you should check out our local group and sign up. You can then get info on local restaurnats that have gluten-free selections. Also, since your mom lives in Henderson maybe she could come to a support group meeting some time. I think she would enjoy it. The link to the website is: Open Original Shared Link

just click the join in tab and I will approve you. Make sure you set your settings to get all the messages from the day in the daily digest so that you aren't overwhelmed by emails!! Jenn in LV

<{POST_SNAPBACK}>

Thanks so much. I just joined the support group. I am waiting for approval. Look forward to hearing from you.

sally

jendenise Rookie
jendenise
Posted
  • Author

You've been approved. Thanks for joining. Please let your mom know there is a celiac disease meeting at Water to Go on Rampart and Lake Mead tomorrow (15 of October) at 2:00. You can find the address on the support site. I hope she is able to make it we have some great samples of gluten-free food available, there will be a speaker discussing a gluten-free related topic, and we will also have some gluten-free baking mixes being given away. Oh yeah, and all members will get a 15% discount on gluten-free purchases (including gluten-free vitamins). Hope to see her there! Jenn

  • 9 months later...
DBRIDGEVEGAS Rookie
DBRIDGEVEGAS
Posted

Hi... I just applied for membership. I have not been diagnosed as a celiac, but have been fighting symptoms consistent with celiac disease for a few years. My brother was just diagnosed with celiac disease and SS (Sjogren's). When I look back on the last few years, it is so clear that I am a celiac. I have been gluten-free for a few months and feel great. It is amazing how clear headed I feel. Hopefully I will be approved so I can meet other people that understand celiac and how frustrating it can be. Thanks :)

Dustin

Henderson, NV

dbsrv@yahoo.com

tiredofdoctors Enthusiast
tiredofdoctors
Posted

Okay, going to be in Vegas from the 24 - 27 (Broncobux, can't wait to meet you . . . Armetta says you're great!) Anyone else interested in meeting, just PM either me or Armetta!!!

  • 3 years later...
Canusa Newbie
Canusa
Posted
Hey all, just wanted to post that the Las Vegas Celiac Support Group is active again after almost a year of being inactive. I took over our group effective 9/11/2005 and am looking forward to helping our group grow and share lots of information. If anyone has any suggestions, ideas, helpful hints, etc... I would appreciate them whether from other group leaders or from those in a group or anyone else! If you know anyone in LV who has celiac disease please pass the info on! Thanks Jenn in LV B)

Hello I was diagnosed 6 weeks ago and feel totally lost. I'm afraid to eat anywhere but home and even there I managed to make mistakes. Does anyone have any recipes for real food? I'm getting tired of eating plain meat and canned veggies.

Gina

Las Vegas

Canusa Newbie
Canusa
Posted
I'll be there...

I have the skinny on some decent restaurants that cater to the gluten-free Folk.....even in Summerlin!

See you there.

Where ? Help !! I live in the Centennial area.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Blood Test for Celiac wheat type matters?

      no argument. Never take the pills sold for Nuclear events, except in a nuclear event when instructed to by authorities. Some of these go up to 130 milligrams per pill. 5000 times the strength of the dietary supplement. 130 times the safe upper limit. 130 mg = 130,000 mcg. Dietary supplements like Lugol's Solution and Liquid Iodine are 50 micrograms...
    2. trents
      - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative...
    3. JudyLou
      - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankle...
    4. marzian
      - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

      This is very exciting news. The research lends itself to preventing the immune system in other autoimmune disorders from getting out of sorts. As someone with a compendium of autoimmune disorders I feel a bit of hope.
    5. Jmartes71
      - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week, in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,142
    • Most Online (within 30 mins)
      7,748
    Mark Conway
    Newest Member
    Mark Conway
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Wheatwacked
      Blood Test for Celiac wheat type matters?

      By Wheatwacked · Posted

      no argument. Never take the pills sold for Nuclear events, except in a nuclear event when instructed to by authorities.  Some of these go up to 130 milligrams per pill. 5000 times the strength of the dietary supplement.  130 times the safe upper limit.  130 mg = 130,000 mcg. Dietary supplements like Lugol's Solution and Liquid Iodine are 50 micrograms per drop.  It takes 20 drops to reach the safe upper limit. In the US the Safe upper limit is 1100 mcg.  In Europe 600 mcg and in Japan 3000 mcg ( 3 mg).
    • trents
      Seeking advice on potential gluten challenge

      By trents · Posted

      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Medications

      By Jmartes71 · Posted

      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      Blood Test for Celiac wheat type matters?

      By Scott Adams · Posted

      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.