Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Eating gluten-free And Gaining Weight


dmcook1990

Recommended Posts

dmcook1990 Newbie

Hello,

I was wondering if anyone had advice or tips for someone who is trying to lose weight with celiac disease. I am actually gaining weight instead! Everyone says it seems like i should be losing weight with my lifestyle and what i eat but i cannot drop a pound. I did read somewhere that maybe im storing up everything because of celiac and my malnutrition. I know I'll feel better it I could keep my weight down because I am obese at this weight. If anyone has good resources on what to eat, when to eat it and how much I would love the advice!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Razzle Dazzle Brazell Enthusiast

Hello,

I was wondering if anyone had advice or tips for someone who is trying to lose weight with celiac disease. I am actually gaining weight instead! Everyone says it seems like i should be losing weight with my lifestyle and what i eat but i cannot drop a pound. I did read somewhere that maybe im storing up everything because of celiac and my malnutrition. I know I'll feel better it I could keep my weight down because I am obese at this weight. If anyone has good resources on what to eat, when to eat it and how much I would love the advice!

Hey I hope I can help. Got plenty questions.

How long have you been gluten free?

Has you appetite increased? Mine did and is just now calming down 2 mo.

Are you eating a lot of processed foods? gluten-free flours are more fattening

What in general is your diet like?

Don't feel ashamed. This is a struggle I dealt with for a while but unless you have some other health problem, you should be able to lose weight eventually.

jeanzdyn Apprentice

I have been gluten free since January 1, 2012 and I did not start losing weight until just last week. I know that I was overcompensating at first and eating larger meals. I have gotten to the point where I do not eat unless my stomach growls and that has finally started a nice, slow weight loss in the past week about 3 lbs. came off. I hope it continues as I am in the 'obese' category according to the Mass Body Index on another website. I need to lose 40-50 lbs, but will be happy to lose 15 or 20 lbs, as then I can fit into most of the clothes in my closet.

I was never so ill that I lost weight, although I now believe that I have had celiac disease for many years. I am greatful that I was never that sick and I am sympathetic to any who have been terribly ill. I am told that I have 'mild' celiac disease, and that the villi in my intestines are not badly damaged right now.

Anyway, dmcook1990, what I think is that your body needs some time to adjust to the gluten free diet, and it may take weeks or even months before you start to lose weight. Everybody is different, everyone's body is different, and everyone's body reacts differently in some way to any change in lifestyle.

luvs2eat Collaborator

I've said it many times ... I was diagnosed very quickly (only 2 months of symptoms) so I wasn't experiencing the unexplained weight loss that many do. Then, I began to thoroughly enjoy all the things I COULD eat and chowed down to make up for all the foods I could no longer eat... and gained about 40 pounds! I was eating Pepcid like candy to deal w/ the killer heartburn I was having.

I cut out carbs... not real Atkins, but I gave up bread, rice... the obvious starches. I've never been a gluten-free processed food person so that wasn't difficult to avoid. I ate lean meats and lots of veggies and fruit. Twenty pounds came off and the heartburn disappeared. I still need to lose that other 20!!

justlisa Apprentice

What do you eat, dmcook 1990?

TeknoLen Rookie

OP, you might consider the paleo diet. I dropped a few pounds on it, lost my spare tire. And paleo is gluten-free by default. Wikipedia "Paleolithic diet" is a good overview or read the Paleo Diet book by Loren Cordain if you really want to study it. You will need to be prepared to spend significantly more time in the kitchen.. Good luck!

ClareM Newbie

Hello,

I was wondering if anyone had advice or tips for someone who is trying to lose weight with celiac disease. I am actually gaining weight instead! Everyone says it seems like i should be losing weight with my lifestyle and what i eat but i cannot drop a pound. I did read somewhere that maybe im storing up everything because of celiac and my malnutrition. I know I'll feel better it I could keep my weight down because I am obese at this weight. If anyone has good resources on what to eat, when to eat it and how much I would love the advice!

I was recently diagnosed with Coeliac disease and have the same problem. I am eating a lot more fish and healthy meals and yet i havent lost one pound of weight. I do exercise but its sporadic because my job takes me away from home, but i thought once i had the physical symptoms under control by eliminating Gluten that my weight would drop a little. Any advice would be really appreciated


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 3 weeks later...
Candyapple Newbie

I have been gluten free for a few years now. I too have put on weight since being diagnosed. I went untreated for a long time, actually ended up with osteoporosis. I have never really had an issue with weight before. It sucks that when there are so many things you can't eat any more and you gain weight. Very frustrating. I am wondering if anyone has any diet ideas. I eat very little and try to eat fairly healthy. I also have thyroid disease... thanks :)

kittty Contributor

I lost about six pounds the first week of being gluten free. The I discovered those tempting gluten free snack foods, like cakes, crackers, breads, and Pirate Booty (I'm a total addict to that stuff!). After about a month of eating those I put on all the weight I had lost plus about 8 pounds. Now I've cut all of that processed stuff out, and I'm trying to be more active. In the last month I've lot about 11 pounds.

lovegrov Collaborator

I gained a pile of weight after going gluten-free because suddenly I started absorbing everything I had never absorbed before yet I was still eating like I had eaten for 46 years. This is not unusual at all, particularly if you're eating those high-calorie wheat substitutes. My total cholesterol also went from an unusually low 120 to about 200 (although it is back down to 160).

richard

Candyapple Newbie

I gained a pile of weight after going gluten-free because suddenly I started absorbing everything I had never absorbed before yet I was still eating like I had eaten for 46 years. This is not unusual at all, particularly if you're eating those high-calorie wheat substitutes. My total cholesterol also went from an unusually low 120 to about 200 (although it is back down to 160).

richard

Thanks Richard, I did read somewhere here that if you can't cook it, don't eat it. Guess that's a good rule, although, I can cook a muffin if I have too! :)

cap6 Enthusiast

This sounds so like me. Diagnosed & went gluten-free March 2010, lost a lot of weight but then gained, gained. I have leveled off b ut can't loose any. I don't eat gluten-free snacks, couple of times a month maybe. Mostly veggies, chicken and such. Am I doomed to keep this ring around the belly???

  • 2 weeks later...
Guest

Hi, hope things improve for you. It is easy to eat healthy foods that help you lose weight and retain nutrition going gluten free.

Also keep in mind that both buckwheat and quinoa are very good replacements for cereal and are higher in protein. Thus you cut down on the extra carbs.

You can use quinoa half and half with rice. You can coat or thicken with buckwheat flour. There is plenty of scope to use these.

luvrdeo Apprentice

I too am struggling with this - been gluten free for 2 weeks now, started off with a quick weight loss and have gained it back and then some. I've always eaten healthy as my weight has always been a struggle, but to gain 4 lbs in a week is ridiculous, especially on a low-calorie diet. Is this all just part of it? I've yet to indulge on the gluten-free breads, pastas, cookies and junk, so I know that isn't my problem.

pricklypear1971 Community Regular

In my experience (and everyone is different) I swelled up (water) off and in the first 6 months of gluten-free.

I was dealing with recovering from steroids as well as Hashis - which may or may not have been a part of it...but I did notice a few times bloating up after gluten exposure, which was very difficult for me to determine newly gluten-free. And then there was the DH thing, and the low blood sugar thing, and the eating all the time thing...

The beginning is a mess. I suggest mild exercise - walking, etc. to the level it makes you feel good. Also, you may examine if you are eating a balance of food (sometimes we develop crutches going gluten-free - mine was Junior Mints and Gelato).

My guess is that you will go through 200 more changes in the next 6 months. Hang on!

luvrdeo Apprentice

In my experience (and everyone is different) I swelled up (water) off and in the first 6 months of gluten-free.

I was dealing with recovering from steroids as well as Hashis - which may or may not have been a part of it...but I did notice a few times bloating up after gluten exposure, which was very difficult for me to determine newly gluten-free. And then there was the DH thing, and the low blood sugar thing, and the eating all the time thing...

The beginning is a mess. I suggest mild exercise - walking, etc. to the level it makes you feel good. Also, you may examine if you are eating a balance of food (sometimes we develop crutches going gluten-free - mine was Junior Mints and Gelato).

My guess is that you will go through 200 more changes in the next 6 months. Hang on!

Thanks for the good advice - I too am recovering from steroids after they found colitis - the whole reason celiacs was even tested for! I've been sick for a good 15 years before anyone would actually listen to me that this wasn't ALL stress related. It's just been a rough 2 weeks, and I wasn't sure if this was normal. I keep saying I'll get back to my workout routine but I haven't had the energy. The one thing I know I'm lacking is protein, so I'm trying to get back on track there...and I'm 100% guilty of grabbing a handful of chocolate chips every night, if I didn't I'm afraid I'd binge elsewhere! I just hate this feeling, it's very frustrating as I'm sure everyone has felt at some point. I look forward to the day when I feel normal again :)

pricklypear1971 Community Regular

Thanks for the good advice - I too am recovering from steroids after they found colitis - the whole reason celiacs was even tested for! I've been sick for a good 15 years before anyone would actually listen to me that this wasn't ALL stress related. It's just been a rough 2 weeks, and I wasn't sure if this was normal. I keep saying I'll get back to my workout routine but I haven't had the energy. The one thing I know I'm lacking is protein, so I'm trying to get back on track there...and I'm 100% guilty of grabbing a handful of chocolate chips every night, if I didn't I'm afraid I'd binge elsewhere! I just hate this feeling, it's very frustrating as I'm sure everyone has felt at some point. I look forward to the day when I feel normal again :)

Don't beat yourself up over a handful of chocolate chips. Seriously. Acclimating to the gluten-free diet is harrowing and a crutch is much needed, IMO. The hard part is accepting, at least for a while, that your body is a runaway freight train and you are merely along for the ride. Sure, you can do the obvious right things (and you should) but don't expect to convert to a perfectly gluten-free (no cc or mistakes) and whole foods diet overnight. It takes time for most.

And don't be surprised if you drastically lose that same weight in a week.

Then gain it back.

The first six months are weird.

luvrdeo Apprentice

Don't beat yourself up over a handful of chocolate chips. Seriously. Acclimating to the gluten-free diet is harrowing and a crutch is much needed, IMO. The hard part is accepting, at least for a while, that your body is a runaway freight train and you are merely along for the ride. Sure, you can do the obvious right things (and you should) but don't expect to convert to a perfectly gluten-free (no cc or mistakes) and whole foods diet overnight. It takes time for most.

And don't be surprised if you drastically lose that same weight in a week.

Then gain it back.

The first six months are weird.

Good to know! :) I didn't expect this to be such an ordeal...it's just gluten, right?! I had NO idea what all this entailed before I was diagnosed. I'm thankful for this message board, as most people around me don't understand these "withdrawal" symptoms and why I'm not feeling 100% already. Because mine has gone on sooooo long undiagnosed, I expect it will take some serious time. And the choco-chips...I'd never beat myself up over that! I have a sweet tooth and that's my reward at the end of the day for giving up gluten! :)

  • 2 weeks later...
Coryad Rookie

This is so reassuring. I have been gluten-free for about 4 months and haven't lost a pound either. BUT I am using things like plain potato chips and plain white rice to get me through. I'm going to get more fresh foods in the house so they are available instead of junk. I did notice that a lot of the prepared gluten-free foods are not very healthy as far as fat & calories go, so I've eliminated most of them. Now if I could just keep those Lays out of my pantry ;)

Don't beat yourself up over a handful of chocolate chips. Seriously. Acclimating to the gluten-free diet is harrowing and a crutch is much needed, IMO. The hard part is accepting, at least for a while, that your body is a runaway freight train and you are merely along for the ride. Sure, you can do the obvious right things (and you should) but don't expect to convert to a perfectly gluten-free (no cc or mistakes) and whole foods diet overnight. It takes time for most.

And don't be surprised if you drastically lose that same weight in a week.

Then gain it back.

The first six months are weird.

luvrdeo Apprentice

This is so reassuring. I have been gluten-free for about 4 months and haven't lost a pound either. BUT I am using things like plain potato chips and plain white rice to get me through. I'm going to get more fresh foods in the house so they are available instead of junk. I did notice that a lot of the prepared gluten-free foods are not very healthy as far as fat & calories go, so I've eliminated most of them. Now if I could just keep those Lays out of my pantry ;)

I've cut out most starches to try and help the weight loss. I'm also battling extreme fatigue so that isn't working in my favor! Too bad this wasn't easier haha!! :P I finally stopped buying my tortilla chips that I live on...it's been tough, but I'm hoping it is worth it.

Iguana Newbie

I'm on the diet since 1,5 month and gained 6 kilos in the first 4 weeks. I was shocked. I think its mostly due to all those gluten free cakes I started eating to overcompensate - they contain huge amount of calories and almost no fibres :/

Doctor also said that my body started to absorb more nutritients... I cut the cakes and managed to stop gaining weight... I hope I will manage to loose some too...

Jjphr Newbie

I was diagnosed in October 2010 and gained 20 pounds in about six months. I tried everything and finally found something that worked! Count your calories using my fitness pal and do cardio every day! I have lost 10 pounds and plan to lose the other 10, I just got a little burned out. Exercising every day is a huge commitment!

luvrdeo Apprentice

I was diagnosed in October 2010 and gained 20 pounds in about six months. I tried everything and finally found something that worked! Count your calories using my fitness pal and do cardio every day! I have lost 10 pounds and plan to lose the other 10, I just got a little burned out. Exercising every day is a huge commitment!

I used to be hard core into my fitness, but my energy levels are soooooo low, it's hard to get my house vacuumed these days. I can tell you how many calories are in any food out there, because I've always been THAT into working out and my fitness. For 10+ years I've had a personal trainer, I know enough I could train others at this point. Never in my life have I struggled with weight until now. I swear my metabolism is non-existent. Kudo's to you, exercising every day is a big commitment, one I've always had until these last few months!

parmeisan Newbie

I had heard before that to lose weight, you only had to eat fewer calories than you burned... but I never really believed it was that simple. It is, actually. There's more to being healthy - nutrients, etc - but there are exactly two ways to lose weight:

1. Exercise more

2. Eat fewer calories

Exercising is great, but it only gains you like 200 calories for a lot of time & effort... whereas a tiny, tiny bag of chips is over 300 calories. So controlling diet is actually the easier way, at least at first (exercising helps your metabolism get better, so it's good for the long run).

I am telling you this fresh off of having lost 10 pounds myself (and still going) so I hope you believe me when I say, it's not as hard as you might think: try counting your calories. For one week, even - you only have to keep going if you really want to. For one week, write down everything you eat. There are completely free websites that can help you do this, and they're super easy to use. Most of them have apps so you can do it from your phone. (I use MyFitnessPal, but there are others).

This does several things:

a) Makes you think twice about eating something, since you have to mark it down.

B) Helps you to realize where your problem areas are. (I never knew *just* how many veggies you need to eat to match a cup of rice. Sure, you're not as full from veggies, but subtract just a little rice and add some carrots, and you're golden).

c) Makes you feel less guilty about the "bad" things you eat. There is no cheating - just eat a little less elsewhere. No worries.

d) Gives you more motivation to eat less. Back when I didn't think about it, I'd eat 3 links of sausage without blinking. Now I know that that's 750 calories! No thanks, I'll just eat one, and supplement it with something else. Or butter on popcorn! It just about triples the calorie value! Maybe I'll have just a little less of that...

e) Motivation to exercise. You get free eating later when you do!

Do that for a week, and you'll learn so much that you probably won't need to keep doing it. (Although it gets easier because the app will remember the things you eat a lot or have eaten recently).

Good luck!

parmeisan Newbie

Oops, I guess I'm not the first to say that. Still true.

Also, if you're using MyFitnessPal - note that it lets you enter recipes. It was much easier to put in the mixed cereal I eat every morning once I realized I could do it that way, instead of selecting all the items again or copying over the meal. That way, you can eat more or less of it each day without altering every single ingredient.

PS. I do know how hard it is to find motivation for this sort of thing when you are in gluten withdrawal or just feeling fatigued. If you're not there yet, put in on a shelf in your mind and do it later. There's no hurry. You'll feel better soon.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.