Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Nervous About What To Say When Ordering


AGH2010

Recommended Posts

AGH2010 Apprentice

Hi everyone!

I was wondering if those of you with experience might be willing to share whatever little canned speech you give before ordering at restaurants. I've read about people using restaurant cards but can't figure out how you'd use one without it being awkward.

I'm a fairly shy person generally and would appreciate any advice on the practicalities of asking servers/managers to avoid cc. Also, I heard second-hand that you can ask for restaurants to grill meat on a piece of aluminum. Has anyone else requested that?

I don't have celiac myself (that I know of, will be tested soon) but my 2 year old has been diagnosed so I'm going to have to learn for her sake. I plan on making her food at home for the most part but am asking fit the occasional restaurant visit.

Thanks in advance!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



~**caselynn**~ Enthusiast

When I first started out I was a bit meek about the whole asking thing, to the point that my best friend spoke up during me ordering and said" She has Celiac disease so don't you dare let any gluten touch her food, write it in big letters so they can read it!!"(how embarrassing, I wanted to crawl under the table, now I could care less!) haha I remember that day like it was yesterday! She was a bit forceful so after the waiter left I told her she was a bit over the top. Her response, and I quote " It's your health we're playing with here". She's right! So now I speak up as soon as we sit down and ask for a gluten-free menu, and when I order I be sure to ask them to make sure nothing touches that it does need to be gluten free. I'm also an avid googler before I'll eat anywhere. I have to check out there menu and reviews by others. I use Find Me Gluten Free iPhone app, it will list restaurants with gluten free options in the area of the zip code you enter, that gives me a general idea of what to google and some options, also people leave reviews on there so it gives a general idea. Lol it's a starting point for me anyway! There's def a learning curve but it won't take you long to catch on! Good luck! ?

Skylark Collaborator

I usually look for restaurants that have gluten-free options. Just ask for the gluten-free menu. If you're really nervous you can ask what precautions they take to prevent cross-contamination of gluten-free food with wheat. I generally don't bother, though if they have fried foods listed as gluten-free I ask whether the fryer has been shared with wheat breaded foods. You'd be surprised how many places are unaware that frying oil CC is a big issue for celiac disease.

On the rare occasions I'm stuck eating in a restaurant that isn't gluten-aware, I say I have a wheat allergy. They can usually tell me what foods are safe, but sometimes the only things you can be sure of are salad and a baked potato.

You have to accept that sometimes your daughter will get glutened eating out. Do your best, but be aware there is always risk when someone else prepares food.

love2travel Mentor

I always call ahead and ask to speak with the chef or manager. Then they are prepared. Finer restaurants notify their staff as well but whenever we eat out (which is rare) we are assertive but quiet about it. I dislike attention drawn to myself. These restaurants also have many naturally gluten-free items on their menu and rarely have deep fryers. They sometimes even have house-made gluten-free bread during bread service or rice crackers to serve with things like steak tartare.

If I am unsatisfied with what I am told over the phone, I do not eat there. When in a foreign country things get a bit tricky and I do use restaurant cards. This no longer embarasses me. It used to, but this celiac thing has forced me to develop a stronger spine! :P When I go to restaurants I always must take along my lumbar support due to severe back pain. So, not only must I explain the celiac thing I must have my support so I must seem very sickly! That thing has been with me on many flights and in many situations. Every time I go out to eat I must walk around and do stretches in the bathroom. It is difficult when you have more than celiac to deal with when eating out! :(

AGH2010 Apprentice

Thank you, all, for your helpful responses. I'm sure I'll get a thicker skin soon enough. :)

love2travel Mentor

Thank you, all, for your helpful responses. I'm sure I'll get a thicker skin soon enough. :)

My skin was thin as toilet paper and my spine as firm as a wet gluten-y noodle. It will happen naturally. You can still be nice and kind yet firm enough to get your point across without the need to justify. :)

bartfull Rising Star

Love2travel said: "Finer restaurants notify their staff as well but whenever we eat out (which is rare) we are assertive but quiet about it."

I can understand why you eat out only rarely. With the way you cook, I bet your family says, "Aw, do we HAVE to eat out?" :lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



love2travel Mentor

Love2travel said: "Finer restaurants notify their staff as well but whenever we eat out (which is rare) we are assertive but quiet about it."

I can understand why you eat out only rarely. With the way you cook, I bet your family says, "Aw, do we HAVE to eat out?" :lol:

Thanks for the sweet words, bartfull! :) When my family comes over they do not want to eat out and have their special requests. They expect three fabulous meals a day! :lol: The only times my husband and I eat out is when we travel somewhere; otherwise we do not. We just do not want to - there is no need. Cooking makes my heart sing! :D Heck, I treat ingredients like children! :lol:

AGH2010 Apprentice

My skin was thin as toilet paper and my spine as firm as a wet gluten-y noodle. It will happen naturally. You can still be nice and kind yet firm enough to get your point across without the need to justify. :)

Ha! Love it. I will keep the image in mind to give me strength when I'm ordering. :)

love2travel Mentor

Ha! Love it. I will keep the image in mind to give me strength when I'm ordering. :)

Me, too. I'll picture toilet paper covering my arms and legs and my spine wiggling around in there. :lol:

june27 Apprentice

I have been struggling with this as well. I have been gluten-free for 5 months, and didn't even think about eating out until I was 2 months into this new way of eating. Now, I don't eat out more than once a week (we used to eat out 2-3 times a week)

I am still trying to figure out how to order as well, but here are a few things that I have learned...

1. I typically try to go placed with gluten-free menu, or online reviews that they can handle gluten-free. There is still a chance of cross-contamination with gluten-free menu, but it makes it easier starting out. (I think I got some CC last week, so I am rethinking thisi plan...)

2. Do your research beforehand. If you want to go to a new place and you are not sure if they are familiar with gluten-free, send them an e-mail. I have done this twice, and both times ended up talking to someone at the restaurant to get the details (one restaurant had a chef call me). This takes some of the pressure off when you are at the restaurant because you have already prepped them.

3. You can also get triumph dining cards (there are probably other places that offer them as well). A friend of mine gave me a set as a gift after my diagnosis. I have not used them yet, but after potential CC last week, I plan to start taking advantage of them. What I like about them is that you can provide all of the information to your server (who can take them to the chef - avoiding the 'telephone game' problem). I also suspect that servers will not question the issue if it is written on a laminated card, and not just what I am telling them.

I believe this is just another hurdle in the learning curve of celiac...sigh...

Good luck!

LauraB0927 Apprentice

This may sound silly, but I find that the more comfortable and casual (but firm) that I seem about asking the questions, the easier it is and the better of a reaction I get. I also use the phone apps "Gluten Free Registry" and "Find Me Gluten Free" to see what restaurants are in my area that can do gluten free - they also have customers review their experiences so you know if there were any issues with cross contamination or uninformed staff.

cap6 Enthusiast

We travel a lot and I use the "Find Me Gluten Free" app on my phone also. A great help!

heathenly Apprentice

I just discovered the Find Me Gluten Free app, and I think it's a good starting place. I had my first "special ordering" opportunity at Chipotle (first time I've been to a restaurant since going gluten free), and found that I kind of sucked at it, even though I'd been mentally rehearsing it. I didn't start out with the spiel because as I walked up, the server put on fresh gloves, but after handling my food she went on to handle a tortilla and then went back to my food... I had to jump in and say something and she kind of gave me a look. My fault for not being clear from the beginning. So, just learned THAT trick...

But I think I'll be sticking with "wheat allergy," because I have noticed how few people know what gluten is or where it comes from.

pianoland Rookie

Fast food - "Hi, I eat gluten free." If they give me a blank look... "which means I have a severe allergy to wheat. Do you mind asking whoever handles my order will change their gloves and be sure that no bread or wheat products touch my food?"

Sit down, with gluten free menu - "I eat gluten free, does the kitchen prepare (what I want to order) on a separate surface?" If they can tell me exactly what they do to keep things separate, then I ok it. If they can't tell me, I ask them if they can ask a manager my question.

Sit down, without a gluten free menu - Call first!! They usually can put someone on the phone who knows what can be made gluten free. When the waiter comes, tell them "I called ahead and was told (what I want to order) can be made gluten free." Usually they like to double check and can come back and assure you about the preparation, too.

You will get better at having this conversation... I've found that restaurants are very accommodating. It's better to speak up about your needs than get sick.

june27 Apprentice

pianoland - thanks for this bit of info. i am going to start using this approach!

AGH2010 Apprentice

Thank you! Just what I was looking for!

Fast food - "Hi, I eat gluten free." If they give me a blank look... "which means I have a severe allergy to wheat. Do you mind asking whoever handles my order will change their gloves and be sure that no bread or wheat products touch my food?"

Sit down, with gluten free menu - "I eat gluten free, does the kitchen prepare (what I want to order) on a separate surface?" If they can tell me exactly what they do to keep things separate, then I ok it. If they can't tell me, I ask them if they can ask a manager my question.

Sit down, without a gluten free menu - Call first!! They usually can put someone on the phone who knows what can be made gluten free. When the waiter comes, tell them "I called ahead and was told (what I want to order) can be made gluten free." Usually they like to double check and can come back and assure you about the preparation, too.

You will get better at having this conversation... I've found that restaurants are very accommodating. It's better to speak up about your needs than get sick.

AGH2010 Apprentice

I just discovered the Find Me Gluten Free app, and I think it's a good starting place. I had my first "special ordering" opportunity at Chipotle (first time I've been to a restaurant since going gluten free), and found that I kind of sucked at it, even though I'd been mentally rehearsing it. I didn't start out with the spiel because as I walked up, the server put on fresh gloves, but after handling my food she went on to handle a tortilla and then went back to my food... I had to jump in and say something and she kind of gave me a look. My fault for not being clear from the beginning. So, just learned THAT trick...

I can totally picture something like that happening to me my first time. :)

cap6 Enthusiast

Along with the "I'm gluten free" I also add "I am celiac (or have a wheat allergy). I don't eat this way because it is a fad diet......" I add that as I feel like the current gluten free fad has hurt celiacs in many ways and I want the restaurants to take me seriously !!!

  • 2 weeks later...
LauraB0927 Apprentice

Along with the "I'm gluten free" I also add "I am celiac (or have a wheat allergy). I don't eat this way because it is a fad diet......" I add that as I feel like the current gluten free fad has hurt celiacs in many ways and I want the restaurants to take me seriously !!!

I completely agree - I always feel pressured to say that I have Celiac so that they know that it should be taken more seriously. Those people who do the gluten free as a fad diet really tick me off - they should just go to Domino's.... :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748

    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.