Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Anyone Just Avoid The Gluten Free Alternatives?


Giambi

Recommended Posts

Giambi Newbie

I have yet to be diagnosed but i'm worried I may have Celiacs. Out of curiosity I've been trying a few gluten free food products to see what I'm in store for if I do indeed have celiac disease. So far, blah, not much success. We tried the new gluten free pizza from Dominos last night and it was just blah. It was eatable I guess but certainly far from good. The crust had a wierd chewy texture to it. I also have tried some gluten free bread that was just plain awful. Lastly I tried Redbridge Beer. I'm a huge beer lover so I was expecting the worst here. It was again, just okayish. Watery and kinda had a cider flavor. I'd rate it a 3 out of 10.

So anyways, all this has left me quite depressed about a possible diagnoses. I was wondering if anyone just plain avoids foods that are "supposed" to be made with gluten? I believe this may be the approach I take. It may be too depressing otherwise for me. No pizza is better then bad pizza kinda deal.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



veronika Newbie

I try to avoid most gluten-free alternative foods because they are generally pretty gross IMHO, too expensive, and not very healthy for you. That being said I do eat a couple gluten-free alternatives if I'm craving carbs or a sweet treat. Tinkyada brown rice pasta tastes pretty darn good for being gluten free and doesn't turn into a ball of mush when you cook it. Enjoy Life cookies are also really good if you are a fan of super-soft cookies (which I am :P).

Just try and remember that not everything tasty has gluten in it. For example, if you can tolerate dairy, you still have ice cream, yogurt, cheese to enjoy -- and chocolate! While you can't have a real beer, there are certainly other alcohols that are awesome and don't contain gluten.

Giambi Newbie

Yeah, I was glad to hear steak is gluten free lol. I can eat that 7 days a week I guess! Will be hard to give up a good burger though. Pizza I can live without.

love2travel Mentor

It's true that so much of this stuff is just plain yucky. I rarely purchase anything processed as I cook and bake everything humanly possible from scratch which is better tasting and better for you. There are, however, a couple of decent breads to try. One is Glutino's Genius and the other is Kinnickinnik's new soft bread that does not need to be toasted to make it edible. Others like Udi's and Rudi's as well. To be honest I did not eat processed bread for several months after my diagnosis as I found it too sad. To be sure there is, nor will there ever be, a replacement for gluten-containing bread. It just is not possible (at this point anyway).

Making your own pizza crust may be your only option but others please chime in on this. We have no gluten-free pizza options where I live so I cannot compare to my homemade. All I do know is I tried the Kinnickinnik crust and it was horrifying so we decided to grill it to inject better flavour and texture. Others swear by Chebe but we do not get that here.

It may be wisest to eat naturally gluten free foods and whole foods. The odd time I give in and buy a gluten-free treat but I usually regret it. Thankfully there are some good breakfast cereals that are safe for us such as gluten-free Chex (a few varieties) and Kellog's Brown Rice Krispies.

If you do find you have celiac, or if you feel better not eating gluten, head on over to the recipes section here for awesome meal ideas and recipes. :)

kareng Grand Master

Yeah, I was glad to hear steak is gluten free lol. I can eat that 7 days a week I guess! Will be hard to give up a good burger though. Pizza I can live without.

You can still make burgers. Udis have buns that are good. I prefer mine without a bun.

cahill Collaborator

I use Udi's bread and Hotkid rice crackers but that's it. And I am limiting these products.

I tried some of the other gluten free alternatives . My belly was not happy with them and I also gained A LOT of weight.

Not worth it to me.

IrishHeart Veteran

You are starting out with the wrong attitude.

Gluten free does not mean tasteless.

I make a really good hamburger bun!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Giambi Newbie

Thanks for the replies! I tried a gluten free bun once but I can't remember who made it. It was disgusting. Jungle Jims in Ohio was where I bought it. If I can find a decent gluten free beer I'll be somewhat placated. So far I've tried Redbridge and Bards. Both were just barely drinkable.

eatmeat4good Enthusiast

For Pizza, you can make a "Meatzza".

Roll out gound beef flavored with your Italian spices.

Roll it like a sheet of dough.

Bake the meat sheet before you put toppings on.

How long you bake it depends on if you make thick "crust" or thin "crust".

Then add the sauce and your toppings and bake.

wala!

This is what I do for pizza and it works great...you don't even miss the bread this way....totally gluten free.

Can't help you with beer.

squirmingitch Veteran

You could learn to brew your own gluten free beer like IrishHeart's hubby does. Way better than the gluten-free beer you buy. Irish will even provide the recipe! It's actually on this board somewhere as I remember when she posted it. I'm sure she will come along & provide the link.

But you know what? Gluten beer is not to die for. Pun intended. There ARE other things than beer. Ever had Apricot nectar with vodka? If you don't try it just once then you have no adventurous spirit.wink.gif

beachbirdie Contributor

Thanks for the replies! I tried a gluten free bun once but I can't remember who made it. It was disgusting. Jungle Jims in Ohio was where I bought it. If I can find a decent gluten free beer I'll be somewhat placated. So far I've tried Redbridge and Bards. Both were just barely drinkable.

For beer you need to find Green's. St. Peter's is also pretty good. However, you might just want to do without for a while so your taste buds can readjust.

I have not tried to replace everything, it's just too hard. Some things, like sourdough bread (I had a little stable of unique sourdough starters and made my own) and pizza just aren't the same. I think I will always grieve fresh, homemade sourdough.

Bob's Red Mill pizza crust mix is not bad, and the pizza crust mix from Open Original Shared Link is pretty darned good. I actually like Gluten Free Mama the best of any I've tried.

If you eat pasta, Tinkyada and Schar make the better ones though I have used Mrs. Leeper's corn pasta, and it's not bad. I'm just doing my best to avoid FrankenCorn, so don't use much mrs. leeper's.

Giambi Newbie

I read somewhere that gluten free food in Italy is FAR better then what we can get in the staes. Is this true?? If so, why?

GottaSki Mentor

IF you have Celiac Disease - removing gluten brings health - priceless.

At first you will have a lot of frustrating days thinking of what you can not have -- as time goes on you will find replacements for all the things gluten.

The learning curve is tough, but there is nothing our family has not replicated or replaced - in fact some foods taste better.

Many things labeled gluten free are not tasty, just as many tasty foods that are gluten free are not labeled gluten free!

Hang in there and Good Luck to you!

PS there are more gluten free beers to try - you may find one you like...read recently the Widmar Bros is coming out with a good one soon.

love2travel Mentor

I read somewhere that gluten free food in Italy is FAR better then what we can get in the staes. Is this true?? If so, why?

I have not been to the U.S. since my diagnosis so cannot compare there but I can compare Italy with Canada. It is better but Canada has really improved lately. Reason? Italy is far more aware of it than we are. It is mandatory that children are tested for celiac by the age of 6. Everyone knows about it and many have celiac disease. And Italians are, well, gregarious and demand and expect quality. On our trips to Italy there has been no eye rolling, sighing or stunned looks so far when I've asked about food/restaurants. You should see the specialty food shops there! Wowzers.

Giambi Newbie

Yeah I get the eye rolling thing. I mentioned the possibility of celiacs to an ER doc a few years back and he rolled his eyes and said "everybody thinks they have celiacs disease". My pcp is also not a fan lol. I mentioned it to him and he was like "eh, it's more hype then disease". And he is a world class physican from one of americas top 10 hospitals. Funny how much confusion there is.

TiaMichi2 Apprentice

Hi, :)

It is an adjustment, but just think how much better you will feel!

Bread was the hardest for me, before diagnosis I was a bread lover the doughiest (is there such a word?) the better for me, and guess what, when I found out what it was doing to me, and making me sick I removed it from my diet, and I felt so much better.

There are some good books out that you might want to check out, one is Cecilia's Market Place gluten-free grocery shopping guide, and The Essential gluten-free Grocery Guide from Triumph Dining. There are alot of gluten-free products listed on both of these that are not labeled gluten-free. Also there are some good gluten-free cooking books out there.

You will be ok,

-Miriam

GFinDC Veteran

I don't eat much of the processed gluten-free foods either. Most of them have either potato starch or soy and those don't work for me. I do eat Mission corn tortillas sometimes in a wrap. They are cheap and readily available. They aren't marked gluten-free but they are made on dedicated lines. I have never had a problem with them.

Here come the newbie threads, watch out! :)

FAQ Celiac com

https://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/

Newbie Info 101

What's For Breakfast Today?

What Did You Have For Lunch Today?

What Are You Cooking Tonight?

Dessert thread

How bad is cheating?

Short temper thread

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748

    Tara M
    Newest Member
    Tara M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.