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Any Fellow Cd's In Nc

Lisa

By Lisa
in Introduce Yourself / Share Stuff

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Lisa Mentor
Lisa
Posted

Anyone out there in Celiacland from North Carolina.

Lisa B.

  • 2 weeks later...
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lbsteenwyk Explorer
lbsteenwyk
Posted

Hi, I live near Asheville NC - but I don't have celiac disease, my daughter does. I just started a celiac support group in Hendersonville, though, and had a very good turn out. Where do you live? PM me if you want to chat.

Lisa Mentor
Lisa
Posted
  • Author

Laurie:

I'm on the northeast coast. Edenton, NC. I love the Fresh Market in Hendersonville. We used to live in Landrum, SC for two years when my husband was flying out of Charlotte.

My girls (12 years ago) used to ride horses in Tryon. It is a beautiful place.

I am the one with Celiac and I can sympothize with parents who have children with celiac disease. You know, when it is you, you can handle it. As a parent of a celiac disease child and you are the cook/server, it must be a heavy burden.

I am thinking about getting a support group here. I know of three other people in our small town and I bet there are alot more. Maybe you could give me some pointers on a beginning.

Good to talk to another TarHeel.

Lisa B. (several Lisa's who post, so I am the Lisa B.)

lbsteenwyk Explorer
lbsteenwyk
Posted

Hi Lisa B:

Too bad we are on opposite ends of the state. I was able to start the support group through the hospital where I work. Someone in the community approached the hospital's community outreach center about starting a group. They needed someone inside the hospital to take a leadership role and of course I jumped at the chance. I've had alot of assistance from Marketing in getting the word out. I wrote a press release which marketing sent out. They helped me with designing a flyer and I distributed it to all the doctor's offices. They also did a short interview with me on the radio as part of their weekly program on events at the hospital. Since I'm a dietitian, I also get referrals from physician when they diagnose people with celiac disease, so I was able to reach those people directly to tell them about the support group.

If you want to start a group, you might approach your local hospital with the idea. Having the support group affiliated with the hospital really helped me get the whole thing going!

Lisa Mentor
Lisa
Posted
  • Author

That is a wonderful idea to link into the hospital. My "new Doc" is very active with the hospital and he could get me started.

I signed a release form today at his office to get the Gastro. Dr. records (that biopsy confirmed celiac disease) not quite sure that I have him on board yet. I am glad that he is questioning.

I would love to be there with you to watch the trees turn. Enjoy them for me.

Lisa B.

  • 1 year later...
MaryKatherine Newbie
MaryKatherine
Posted

Dear Lisa B.,

I am celiac in Wilmington, NC. Have you heard of any fellow celiacs in this area. I have only been gluten free since Aug 2006 and really haven't found anyone to relate to.

Thanks for your help!

Have a Happy 4th!

Mary Katherine Talley

Lisa Mentor
Lisa
Posted
  • Author
Dear Lisa B.,

I am celiac in Wilmington, NC. Have you heard of any fellow celiacs in this area. I have only been gluten free since Aug 2006 and really haven't found anyone to relate to.

Thanks for your help!

Have a Happy 4th!

Mary Katherine Talley

Well Hello Mary Katyherine!

Welcome to the Board. I live up the coast about three hours from Wilmington and I have a daughter who lives in Wilmington.

I am glad that you found this site. It has helped me tremendously and there is nothing about Celiac that someone can't tell you. Feel free to ask any questions of just vent. We ALL can relate here.

Lisa

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CarlaB Enthusiast
CarlaB
Posted

I go to my grandmother's between Canton and Waynesville every summer. Maybe we could meet in Asheville ... know any gluten friendly places there?

Lisa Mentor
Lisa
Posted
  • Author
I go to my grandmother's between Canton and Waynesville every summer. Maybe we could meet in Asheville ... know any gluten friendly places there?

Carla, I'm on the ocean side of the state. Asheville is beautiful. I think that this was my first thread after joining the Board. My how time flyies :rolleyes:

CarlaB Enthusiast
CarlaB
Posted
Carla, I'm on the ocean side of the state. Asheville is beautiful. I think that this was my first thread after joining the Board. My how time flyies :rolleyes:

LOL

I read through the whole thread and remembered "Hendersonville" so I was thinking that's where you lived! :lol:

I didn't look at the date of the thread when it came up as a new post ...

Lisa Mentor
Lisa
Posted
  • Author

While we are on North Carolina...if any one comes to the Outer Banks, let me know because it's only about an hour away. Laura might be comming this summer and I hope we can meet for lunch.

Susan-in-NC Rookie
Susan-in-NC
Posted

Hi! I'm in Raleigh. New Dx, and learning to cope. I was reading through different threads getting tips and making notes. [i]Would REALLY LOVE :D to talk to others with more experience. Please feel free to contact me.

Susan

  • 2 weeks later...
Guest elysealec
Guest elysealec
Posted
Well Hello Mary Katyherine!

Welcome to the Board. I live up the coast about three hours from Wilmington and I have a daughter who lives in Wilmington.

I am glad that you found this site. It has helped me tremendously and there is nothing about Celiac that someone can't tell you. Feel free to ask any questions of just vent. We ALL can relate here.

Lisa

Guest elysealec
Guest elysealec
Posted
Well Hello Mary Katyherine!

Welcome to the Board. I live up the coast about three hours from Wilmington and I have a daughter who lives in Wilmington.

I am glad that you found this site. It has helped me tremendously and there is nothing about Celiac that someone can't tell you. Feel free to ask any questions of just vent. We ALL can relate here.

Lisa

Guest elysealec
Guest elysealec
Posted

It is so nice to hear of all of you in North Carolina. I often read this board and the information has been invaluable. I have been searching for others with celiac in the Wilmington area, so I was excited to see Mary Katherine's post. I am also in Wilmington and would love to chat and share ideas, restaurants, etc. I have been gluten free for three years. I just volunteered at Camp Kanata's gluten free week and the Raleigh area has some wonderful people who are active in the whole gluten free lifestyle and with different family members who have celiac disease. I'd love to hear from you.

Vicki Himmelstein

brenda in northcarolina Newbie
brenda in northcarolina
Posted

I'm from a very small town in nc there are NO doctors that specialize in or even familiar with celiac disease i feel so frustrated that i can't get information this disease much less a glutten free diet every thing i've read has come from the web site celiac.com

geeze Rookie
geeze
Posted
Hi! I'm in Raleigh. New Dx, and learning to cope. I was reading through different threads getting tips and making notes. [i]Would REALLY LOVE :D to talk to others with more experience. Please feel free to contact me.

Susan

Hi Susan: I live in Durham and was diagnosed 3 months ago tomorrow. Would love to communicate. I am an active senior citizen and this has really put a damper on my outdoor activities. Don't really know how to begin communications as I am just barely computer literate and am working my way through. As frustrated as I feel sometimes regards celiac, this forum surely does help. Gladys

  • 3 weeks later...
DawnS Rookie
DawnS
Posted

I live in Clayton, NC (about 30 min SE of Raleigh) and I work in Raleigh.

Momma Goose, I wish I had been more active on this board a month ago...I was just on a weekend vacation in Edenton! It's certainly a lovely town. I was staying in the historic district just a couple blocks from the courthouse and the sound.

  • 3 weeks later...
hollyberry Newbie
hollyberry
Posted

I am also in Wilmington and would love to meet other celiacs in the area. I was just diagnosed this week.

Holly

Ridgewalker Contributor
Ridgewalker
Posted

We're also in NC-- Pilot Mountain. Also a tiny little rural town. Good to see so many other NC people on here!

-Sarah

  • 1 month later...
lcmiller7 Newbie
lcmiller7
Posted

I'm also in NC if anyone wants to share favorite restaurants, etc. Try Biaggi's in Cary if you are near Raleigh as they have gluten-free pasta on the menu and a knowledgeable staff (I think it's www.biaggis.com) and the World's Best Carrot Cake in Asheville NC (chocolate gluten-free carrot cake, yum). Other options I've found are Bonefish Grille, Carraba's, Chick-Fil-A, and Outback.

My husband surprises me with orders from Foods By George (he orders online) sometimes - pricey but really good.

By the way, I recently discovered that I am having reactions to dairy as well...anyone else have this come on after being diagnosed celiac disease and going gluten-free?

Lisa Mentor
Lisa
Posted
  • Author
I'm also in NC if anyone wants to share favorite restaurants, etc. Try Biaggi's in Cary if you are near Raleigh as they have gluten-free pasta on the menu and a knowledgeable staff (I think it's www.biaggis.com) and the World's Best Carrot Cake in Asheville NC (chocolate gluten-free carrot cake, yum). Other options I've found are Bonefish Grille, Carraba's, Chick-Fil-A, and Outback.

My husband surprises me with orders from Foods By George (he orders online) sometimes - pricey but really good.

By the way, I recently discovered that I am having reactions to dairy as well...anyone else have this come on after being diagnosed celiac disease and going gluten-free?

lcmiller,

Welcome! Yes, it is often suggested that those who first go gluten free due to celiac/intolerance to go diary free as well. Dairy is absorbed on the tips of the villi which may have been damaged due to the gluten consumption.

Dairy may be introduced again once the villi are healed.

  • 3 months later...
kwatts7304 Newbie
kwatts7304
Posted
Anyone out there in Celiacland from North Carolina.

Lisa B.

I was recently told that I have Celiac Disease and was wondering if you know of any Support Groups in Hendersonville, NC. Thanks

Lisa Mentor
Lisa
Posted
  • Author
I was recently told that I have Celiac Disease and was wondering if you know of any Support Groups in Hendersonville, NC. Thanks

Hey Kwatts,

You are in the northwestern part of the state. I used to live about 20 minutes south of Hendersonville and loved the Fresh Market. Now, I live on the eastern part of the state.

I have included a list of support people in your area. They can direct you to where to shop and dine:

Open Original Shared Link

On Celiac.com, you will not find better experts and kinder people to help you walk through your journey with Celiac. We are glad that you have joined us.

If you have any questions, and I am sure that you have millions, please feel comfortable to ask. That's what we are here for.

Jodi Mills Apprentice
Jodi Mills
Posted

I do not know if anyone who has helped with getting a support group has posted on this thread in a while, but I am going to try and get one started for Fayetteville area. If there is any thoughts, ideas, or anything that could be of use let me know, Please!!!!

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