Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Think I've Been Oatened!


love2travel

Recommended Posts

love2travel Mentor

I was anticipating the day certified gluten-free oats could be re-introduced into my diet. Well, the big day was Thursday. It was exciting! Thrilling, even. My celiac diagnosis was 16 months ago. But yesterday I knew something weird was going on. My personality changed. I feel sort of ill (not a big deal). Walking into things. Stumbling. Intense forgetfulness. There is no chance of my being glutened - the only thing different in my diet was the oats. The neurological symptoms are more alarming than feeling ill. Oh, and rash between all my fingers that looks like eczema.

Dumb oats. Ah, well. It is not as though oats are vital or necessary to our diet! I haven't really missed them for 16 months so I won't miss 'em again. ;)

I had not felt ill from gluten in the past but imagine I now have a pretty good idea what it is like. :angry:

Not a vent or anything - it just goes to show how things change! Oatenings are just not all that fun. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mateto Enthusiast

I'm so sorry!

I know other people who can't tolerate oats either...feel better soon.

sora Community Regular

Yuk, hope you feel better soon.

Make sure you don't leave the stove on :) that's what I usually do.

ciamarie Rookie

A new term in the celiac disease vocabulary! Oatenings... I hope you feel better soon!

love2travel Mentor

Yuk, hope you feel better soon.

Make sure you don't leave the stove on :) that's what I usually do.

I've checked and double checked. Thanks for that! I'm putting kitchen things away in the wrong spots - it is so very weird. I walked smack dab into our couch and it is not even in the way. Not sure how that one happened...

love2travel Mentor

A new term in the celiac disease vocabulary! Oatenings... I hope you feel better soon!

It doesn't roll off the tongue quite like "glutened" but it works! :P

Roda Rising Star

Sorry you are feeling bad. Watch out of oat CC. It wasn't like when I actually ate the oats with an instant reaction, but it slowly built up and one day, then for 8 stinking months I was miserable. I am pretty careful where I source my gluten free ingredients calling and making sure there is no chance of oat CC. Hope you are feeling better soon.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Victoria6102 Contributor

Are there any big brands who's gluten free products may be contaminated with "gluten free oats"? I have had a rash on my fingers which the doctor said was eczema but none of the prescription creams are working! I know i react to gluten free oats, so now I'm wondering if something possibly may be contaminated with oats :P thanks...

And hope you get well soon, love2travel!

Roda Rising Star

Are there any big brands who's gluten free products may be contaminated with "gluten free oats"? I have had a rash on my fingers which the doctor said was eczema but none of the prescription creams are working! I know i react to gluten free oats, so now I'm wondering if something possibly may be contaminated with oats :P thanks...

And hope you get well soon, love2travel!

Yes there is. Here is a link to a topic I started on it.

jerseyangel Proficient

I'm so sorry the oats not only didn't work out but caused you so much distress :( I am sensitive to oats also, and have to watch out for even pure oat cross contamination. Feel better!

dilettantesteph Collaborator

I get "oatened" too. I like the term. I also need to watch out for cross contamination from oats.

Takala Enthusiast
"Oatenings"

I love it. :P:D:lol:

Sorry about the reaction.

love2travel Mentor

I'm so sorry the oats not only didn't work out but caused you so much distress :( I am sensitive to oats also, and have to watch out for even pure oat cross contamination. Feel better!

Thanks! I'm not quite as bad today. I'm functioning quite well. It is disconcerting when you suddenly forget simple tasks. I forgot to lock the front door of the house before leaving this morning!

The oats were certified gluten free. So long, oats! At least for now. I do not feel that bad about it because in comparison to many of you, I got off easy only having to avoid gluten and some cheeses.

dilettantesteph Collaborator

Maybe it should be "avenined."

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,772
    • Most Online (within 30 mins)
      7,748

    Brandi J
    Newest Member
    Brandi J
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • trents
      Tammy, in the food industry, "gluten free" doesn't mean the same thing as "no gluten". As Scott explained, the FDA (Food and Drug Administration) allows food companies to use the "gluten-free" label as long as the product does not contain more than 20 ppm (parts per million) of gluten. This number is based on studies the FDA did years ago to determine the reaction threshold for those with celiac disease. And the 20 ppm figure works for the majority of celiacs. There are those who are more sensitive, however, who still react to that amount. There is another, stricter standard known as "Certified Gluten Free" which was developed by a third party organization known as GFCO which requires not more than 10 ppm of gluten. So, when you see "GFCO" or "Certified Gluten Free" labels on food items you know they are manufactured with a stricter standard concerning gluten content. Having said all that, even though you may read the disclaimer on a food item that says the spices may contain wheat, barley or rye (the gluten grains), you should be able to trust that the amount of gluten the spices may contain is so small it allows the total product to meet the requirements of gluten free or certified gluten free labeling. I hope this helps.
    • Tammy Pedler
      As soon as I see gluten free I read the labels. I always find stuff that I cannot have on the products them selfs. Like spices, when the labels says  everything listed and then after like say garlic salt then the next thing is spices. When it says that that can contain wheat and other things I can’t have.. 
    • Scott Adams
      While hypoglycemia isn't a direct, classic symptom of celiac disease, it's something that some individuals with well-managed celiac disease report, and there may be a few plausible explanations for why the two could be connected. The most common theory involves continued damage to the gut lining or nutrient deficiencies (like chromium or magnesium) that can impair the body's ability to regulate blood sugar effectively, even after gluten is removed. Another possibility is delayed stomach emptying (gastroparesis) or issues with the hormones that manage blood sugar release, like glucagon. Since your doctors are puzzled, it may be worth discussing these specific mechanisms with a gastroenterologist or endocrinologist. You are certainly not alone in experiencing this puzzling complication, and it highlights how celiac disease can have long-term metabolic effects beyond the digestive tract.
    • trents
      Paracetamol, aka, acetaminophen (Tylenol) just does not do anything for me as far as pain relief. It does help with fevers, though.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.