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Glutenfree4her

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Glutenfree4her Rookie
Glutenfree4her
Posted

Daughter prescribed omeprazole 10 mg. called pharmacy to see if it had gluten in it and they said didn't look like it but I should call manufacturer. Whose responsible for that? I guess ultimately me just frustrating that they don't take time to be concerned.

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Roda Rising Star
Roda
Posted

My opinion it should be part of the service they provide at the pharmacy. I've had problems with chain pharmacys, but I do well at a private pharmacy where I live. In the event I can't use the private pharmacy, I still have to call myself and shop around. Sucks!

rosetapper23 Explorer
rosetapper23
Posted

Personally, I don't trust the pharmacies to check--I ALWAYS call the manufacturer directly because I know all the questions to ask.

Adalaide Mentor
Adalaide
Posted

I always ask for the name of the manufacturer so I can call myself. We need to be responsible for our own health. It sucks, but pharmacies seem to always be busy and we really just can't trust some harried person who doesn't even understand what gluten is to be responsible for knowing if something is gluten free. Usually when I ask for the number, they always ask why then look at the bottle and respond with something like "gluten is listed as an ingredient" or "it doesn't say there's wheat in it" or some other thing that makes us who know the in's and out's want to bang our heads on walls. There have been several instances where I have had to fill a prescription at an alternate pharmacy.

TiaMichi2 Apprentice
TiaMichi2
Posted

Daughter prescribed omeprazole 10 mg. called pharmacy to see if it had gluten in it and they said didn't look like it but I should call manufacturer. Whose responsible for that? I guess ultimately me just frustrating that they don't take time to be concerned.

I agree with you it should be the Pharmacy's responsability, but I do feel safer when I call the mfg. myself. Sometimes they can give me the number, sometimes is only a name, and I have to do the research myself :blink:

In the past 8 months I have had to do it like 3 times, since my Pharmacy keeps changing Manufacturers on one of my meds. At times I've had to call 5 or 6 places to get an actual person to get me the answers I am looking for, a royal pain in the you know what!!!!!

-Miriam

Gemini Experienced
Gemini
Posted

Personally, I don't trust the pharmacies to check--I ALWAYS call the manufacturer directly because I know all the questions to ask.

I totally agree with this! I trust no one to get this right, especially someone who doe not have celiac disease. Everyone is responsible for their own health, ultimately, so need to do their own homework. It's another good reason to only take meds you absolutely have to have and not ones doctors push on you for no good reason.

FernW Rookie
FernW
Posted

I got glutened once from a brand name medicine. My doctor gave me some samples. I called the mfg they said it was fine but also gave me a cya answer. I took it an got sick for my usual month. I had 2 pills tested and they both had over 50 ppm. Taking meds is always risky, I still call every single time, but I also hold my breath after I take the pill.

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    • Rogol72
      Guinness, can you drink it?

      By Rogol72 · Posted

      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
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      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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