Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do You Do To Prepare You Child's School?


sashabetty

Recommended Posts

sashabetty Explorer

My 3 yr old is starting school next week. It's a small co-op preschool.

The parents take turns bringing and preparing the daily snack (can you feel my anxiety?) and I am trying to educate them as much as possible.

I have provided the Trader Joe's list, the Whole Foods list, a brief description and a list of our favorite foods.

The parents all get a list of food preferences and allergies for everyone that attends.

We had a practice school day and the teacher provided a snack for the group with foods from the Trader Joe's list. Didn't I just want to kiss her!?

But I don't trust that everyone else will get it, sigh.

I also got the gluten-free Playdough recipe (the best recipe I have found) from this site and have convinced the school to switch to gluten-free playdough and I don't even have to make it.

I spent time scrubbing the gluten playdough off of 5 cartons of playdough tools at the school.

I am in charge of tracking who makes the snacks so I can send reminders about gluten-free foods on the day my daughter atttends, is that too neurotic?

Is this normal anxiety for a parent with a gluten-free child or just a normal part of letting go of control when any child goes to school? Maybe a little of both.

What do you do to keep your child's school environment safe?

I was thinking of ordering the gluten free shirt from Jeeto and putting her in that for the first month or two!

Betty


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



VydorScope Proficient

Wow each parent sends in a snack??? That would freak me out. I have told my childs school that my son can not eat ANYTHING unless its in his bag. Nothing. I bought colorations gluten-free playdough for them, and offered to provid any snacks they need if theres a specail event. I do not make them try and figure it out, I take all that off thier hands.

emsmom Apprentice

our school does the same we take turns bringing in snacks, but to make it easy and so that i am sure shes safe i just pack a seperate snack for my DD untill its our turn and then iprovide the class with a gluten-free snack. i also leave a box of her fav cookies with the teacher for those special occasions like when cupcakes come in for birthdays. i just find it unrealistic that other parents will conform to a complete gluten-free class so i also just take that off theier hands.

VydorScope Proficient
i just find it unrealistic that other parents will conform to a complete gluten-free class so i also just take that off theier hands.

I agree, I als think its a bit unfiar to he other kids. They should not be prevented form haven what ever treats they parents think they should. As long as reasonalbe precautions are taken to keep it seperate, let them have thier cake and eat it too.

sashabetty Explorer

I will be keeping a selection of safe foods at school just in case.

The thing is, so many kids have special needs, vegetarian/vegan, lactose intolerant, no sugar, soy allergy, etc, so my daughter is one of many that the parents have to consider.

I guess I figure it's a learning opportunity for everyone, and there are compromises in preparing foods that everyone can eat.

The snacks are pretty basic. The teacher did corn chips with a bean and corn dip and veggies and bananas, which everyone loved, so I don't feel bad about it happening to be gluten-free.

I told the parents if they want to bring something like bagels, let me know in advance and I can provide a substitute.

And if there is a party they can have their cake, we can just bring Dowd and Rogers chocolate cupcakes and my daughter loves them.

I figure if they can include her without too much inconvenience then I will try to let it happen.

The thing is, I was raised Macrobiotic and vegan with no sugar so I know what it's like to be left out in school situations with foood that you are not supposed to eat. Plain apple while everyone else has a carmel apple? Done that, it sucks, sorry but it does. I realize that's the reality of this, but they don't have to leave her out all of the time.

The parents have the choice of making the entire snack gluten free, or providing a gluten-free option for my daughter.

Betty

Jnkmnky Collaborator

I would provide the snack for my child. I have found that teaching my child that he may NOT eat anything I haven't approved, is the key to our success. I do not want him to ever take food from a "stranger". Everyone's best intentions combine to create a catastrophe where a Celiac is concerned.

"Can he eat apples?" becomes dehydrated apples, or caramel dipping sauces with the apples.

"Can he eat popcorn?" becomes all sorts of multiflavored, gluten encrusted popcorns.

"Can he eat vegetables?" becomes a veggie tray with ranch dressing loaded with gluten.

It's difficult enough for the parents OF THE CELIAC to manage the diet. Dr.s give wrong advice, nutritionist give poisoning advice.... No way in hell I'd let some other well intentioned parent chose my child's food.

VydorScope Proficient
I would provide the snack for my child.  I have found that teaching my child that he may NOT eat anything I haven't approved, is the key to our success.  I do not want him to ever take food from a "stranger".  Everyone's best intentions combine to create a catastrophe where a Celiac is concerned. 

"Can he eat apples?" becomes dehydrated apples, or caramel dipping sauces with the apples.

"Can he eat popcorn?" becomes all sorts of multiflavored, gluten encrusted popcorns.

"Can he eat vegetables?" becomes a veggie tray with ranch dressing loaded with gluten.

It's difficult enough for the parents OF THE CELIAC to manage the diet.  Dr.s give wrong advice, nutritionist give poisoning advice....  No way in hell I'd let some other well intentioned parent chose my child's food.

<{POST_SNAPBACK}>

Out side of a very small close circle of faimly/freinds I feel exactly the same way. Some ppl CHOSE to limit their diet, based on moral, ethiclaa or other CHOICES. If they mess up, its no big deal, heck they may never know. Those ppl can not understand celiac disease, or even food alergies. Other parents are used to the concept of "only a little cant hurt, right?" and thats no good... Heres a REAL example...

"Well its made by Kraft, so that means its safe? Thats what you siad!!!"

*sigh*

I just do not expect other parents to understand, nor do I feel like I should. They normally mean well, they just dont live with it daily so lack understanding. My son being 2 does not yet understand to say no, so I can not trust him at all. Hence the rule "If its in his bag, he can eat it, otherwise NO!".


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ryebaby0 Enthusiast

I would not attempt to get an entire group of adults to manage a food issue -- celiac disease or otherwise. For me, the chance of x-contam. is so great (the food might be gluten-free, but what about the glutenated hands that packed it? or the dish it was cooked in? and what about those honest mistakes?) it's not worth the worry. You'll have to decide that for yourself, since you know this group of adults better than any of us do.

The upside of sending a "designated snack box" for your child is that (unless you plan to homeschool) you are training her for school, where you probably won't be able to get an entire class/grade to provide gluten-free foods.

I think the "we send gluten-free when it's our turn" is an excellent idea. Her classmates get the chance to try her food! Another option would be to make a list of "approved snack foods" and parents could only choose from that list -- but how many allergies/conditions would that include, and how long could the list be?

Good luck. You'll find a way that makes sense for you

connole1056 Rookie

It is very hard for children to be left out, but I think it is important for children with celiac disease to learn early on there will be times they will be. It does suck, you were right about that! I do not think it is right to expect other parents to go out of their way to accomodate different dietary needs. It is too time-consuming and unfair to ask someone to go running to different grocery stores to suit different children's diets. I do not know the prices of other foods, but gluten-free food is generally more expensive than regular food, so cost is also a factor. And as others mentioned, there is no guarantee the food will indeed be gluten-free or prepared using gluten-free utensils.

e&j0304 Enthusiast

I am going through the very same thing right now with my little girl, so I feel your frustration and anxiety over all of this!

I wrote a letter to the director of the school as well as Ella's teachers. I also printed off some info about Celiac Disease so they knew what it was, since I don't think most people know.

As another posted did, I also bought Colorations dough for the class to use and provided them with play dough toys to use with it.

At Ella's school I provide her lunch and I asked that she sit between the teachers to prevent any food sharing. I have told them that she cannot eat anything unless I bring it for her.

Originally I wanted to contact the other parents and ask them to inform me if they were going to bring a treat for a birthday so that I could make a similar substitute for Ella, but the school convinced me just to send a big bag of gluten-free treats to have on hand there for instances like that. They think that it's better that Ella learns now that she will not be able to have always have the same treats. I guess it's better she learn now than in kindergarden. Fortunately, Ella NEVER complains about having something different. She always say, "I have my special treat. Those other treats make me sick." She's such a trooper and I think it's more me feeling like she might be upset or feel left out.

Good luck with your situation. Honestly, it would completely freak me out if I knew she would be eating snacks other parents prepared. I know that I am a little overprotective of Ella, but I just am not ready to let go of that control yet. They way she was pre-gluten-free diet (so sick) is still so fresh in my mind that there is not a chance I could risk her getting gluten right now!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Russ H replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Guinness, can you drink it?

    2. - Scott Adams replied to Borky's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Gluten food test strips

    3. - Scott Adams replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Going for upper endoscopy today

    4. - elisejunker44 commented on Scott Adams's article in Latest Research
      1

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,269
    • Most Online (within 30 mins)
      7,748

    powergs03
    Newest Member
    powergs03
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      There are several blogs where people test different beers using commercially available gluten testing kits. Guinness definitely tests positive for gluten. Something to be mindful of is that in some regions, foodstuffs containing less than 20 ppm gluten can be sold as 'gluten free'. However, due to the volume involved, a UK pint of beer at 19 ppm would contain more gluten than the generally accepted as safe daily limit of 10 mg. I have seen gluten-free beers testing at between "undetectable" and 5-10 ppm. I have also seen a report of a positive home test on Daura Damm, which is sold as gluten-free beer - the manufacturer did not respond to the tester's query.
    • Scott Adams
      Welcome to the forum! Do you mean this article, and if so, I don't think these are available yet.  
    • Scott Adams
      First of all, I want to wish you the very best of luck with your procedure today. It's completely understandable to feel a mix of apprehension and hope. Your proactiveness in researching and advocating for that endoscopy was incredibly smart; securing that formal diagnosis is crucial for both insurance and long-term health management. While it's natural to worry that those five gluten-free days could affect the results, your logic is spot-on—it's highly unlikely your intestines healed completely in that short time, and the fact that your joint pain and stomach issues have flared back up aggressively after reintroducing gluten is a very strong, and unfortunate, sign that the inflammation is indeed present and active. It's also very common for people to look back and connect dots, like your lifelong migraines, once a potential celiac diagnosis is on the table, as it's a systemic condition with many non-gastrointestinal symptoms. I truly hope this scope provides the clear answers you need to finally start on the right path to managing your health and finding lasting relief from the fatigue and pain. Safe travels for your drive, and here's hoping for a definitive answer and a brighter, healthier chapter ahead.
    • Scott Adams
    • Borky
      I just recently saw something on this.  Has anyone tried test strips?  Which brand is better?  Not sure how they really work and if they really do work.  Thank you, Nancy (aka Borky)
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.