Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My One Week Update

tctwhite

Recommended Posts

tctwhite Apprentice
tctwhite
Posted

Today has been a week in my gluten-free life. Ive had more energy this week than I have in years. And the kids are back in school so Ive been getting up early. Yesterday morning I washed AND waxed my truck :blink: and then in the evening I bathed my dog. Which I paid for last night because I was sore, but it was a good kind of sore. Not the debilitating aches. Its obvious that my body is going to have to get used to all this moving around again. I was talking to DH last night and I told him that I feel better, and that I wasn't sure if it was all in my head or if I really am improving. I want to believe that its true progress and its not all in my head. I guess Ive been told "its all in your head" one too many times.

My headaches seem to be lessening in intensity, but not frequency. One thing that is bothering me though. I am absolutely ravenous. I was that way before but this has just taken it over the top. Could that be a gluten withdrawal? I don't feel the absolute need to go raid the bread box per se but I feel as though Im starving. That is not a good feeling, and the scale is starting to creep up, which really bothers me since I constantly struggle with weight. Just curious as to if others have experienced this.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kittty Contributor
kittty
Posted

Today has been a week in my gluten-free life. Ive had more energy this week than I have in years. And the kids are back in school so Ive been getting up early. Yesterday morning I washed AND waxed my truck :blink: and then in the evening I bathed my dog. Which I paid for last night because I was sore, but it was a good kind of sore. Not the debilitating aches. Its obvious that my body is going to have to get used to all this moving around again. I was talking to DH last night and I told him that I feel better, and that I wasn't sure if it was all in my head or if I really am improving. I want to believe that its true progress and its not all in my head. I guess Ive been told "its all in your head" one too many times.

My headaches seem to be lessening in intensity, but not frequency. One thing that is bothering me though. I am absolutely ravenous. I was that way before but this has just taken it over the top. Could that be a gluten withdrawal? I don't feel the absolute need to go raid the bread box per se but I feel as though Im starving. That is not a good feeling, and the scale is starting to creep up, which really bothers me since I constantly struggle with weight. Just curious as to if others have experienced this.

I started feeling better after a week too, but not completely healed. It's been over four months, and I sometimes have setbacks, but the healing is still continuing. The first things to disappear were the D and the headaches, and the energy came back very quickly too. But the anxiety part, although reduced, is something I'm still struggling with. The brain fog comes and goes too, but less frequently.

As for the hungry feeling - I didn't have that. It could just be a mental thing, where you feel so deprived by not being able to eat the foods you're used to that your brain tells you to eat to overcome the deprival. I used to get that when I was trying to lose weight by cutting out certain foods. Not eating gluten will get easier though.

katrnc Newbie
katrnc
Posted

I'm a week free too! I feel amazing! I have so much energy and I feel so light on the inside! I'm happier, calmer...my family even noticed a difference! I do get terrible cravings, and I get very hungry. I try to just suppress these and ride it out, they will go away I believe.

Well done! :lol: Go us! :)

BigSweaty Newbie
BigSweaty
Posted

I am just over a week gluten-free..I can say the main thing that is constant is that I have an abundance of energy (or its normal energy that was not present due to the gluten intolerance). Also, I have seen a slight decrease in my belly (it was always "swollen".

Lost about 5 lbs. yet still eating when hungry(hunger has diminished, prob due to higher protein intake.

I dont crave wheat or wheat products and since I also cut back on sugar(to stop any yeast that may have been present), sweet tasting items seem much more sweet now.

GFinDC Veteran
GFinDC
Posted

HI,

Yes, I went through time of being extra hungry after going gluten-free. But it passed after a while and now I eat less than did before gluten-free.

tctwhite Apprentice
tctwhite
Posted
  • Author

Well either last night I got CC'd or just had a bad night in general. I was blown up like a balloon looking pregnant, stomach pains, nausea, and just felt like I could throw up at any second.

Im still blowing up like a balloon after meals. And these are meals I have made with no one else around and have been oober careful of CC possibilities.

I was just looking at labs that were done on me at the beginning of this year and just about all my vitamin deficiency tests were either right at the lowest normal level or just below normal. The writing has been on the wall for a long time and no one has caught it......or cared enough to delve deeper into what was going on. So many pieces of the puzzle are fitting together, even if it is self diagnosing. No way am I going to do the gluten challenge to try the blood work, and I dang sure am not having another endo done. :rolleyes:

GFinDC Veteran
GFinDC
Posted

HI,

Being low on vitamins is a sign you may have damage to your villi preventing absorption. That's probably something doctors should always test people for, vitamin deficiencies. You are still very new to the gluten-free diet, so it is not surprising it hasn't cleared all your symptoms up yet. It may be a few months up to a year or more for you to get back to feeling right digestion wise. Healing can take some time.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KMMO320 Contributor
KMMO320
Posted

The longest I went gluten-free was 3 weeks and I felt A M A Z I N G!!!!

I fell off the wagon and have been feeling pretty crappy all the time again. I do not have Celiac, I am Gluten Intolerant. I just went 4 days and felt great again and then stupidly ate some stupid cake at work today. I am not in pain, just feel lousy. I cannot say why I do this to myself, its all mental, I know that.

My energy level the last few days have been so amazing. Tonight I feel like I am ready to pass out but the last few days I had to find ways to get myself to sleep because I had so much energy!

nvsmom Community Regular
nvsmom
Posted

That's great you are feeling better so soon! Congrats! I'm sorry to hear you were cc'd though; it's amazing how noticeable the symptoms are when we've been off gluten a while (I'm 2 months in).

I was extra hungry the first week or two, and now I find I'm less hungry. I can go more than 2hours without eating. LOL I used to get the shakes if I did that. In those first weeks, I did eat gluten-free snack foods a lot, and I still lost a couple pounds. Now, after 8 weeks, I'm down about 10-15 lbs. I don't know if it's the lack of inflammation, or just eating healthier foods, but it's working for me so I'm going with it! LOL

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Celiac Diner Sues Olive Garden After Gluten Mix-Up Leads to Medical Emergency (+Video)

    2. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed. Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    3. knitty kitty
      - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

      Hello, @Jordan Carlson, So glad you're feeling better. Tecta is a proton pump inhibitor. PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12. Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the...
    4. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1. There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine. In Thiamine deficiency, the body...
    5. Scott Adams
      0

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,041
    • Most Online (within 30 mins)
      7,748
    Vfoley422
    Newest Member
    Vfoley422
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.